[Mri scan]

So happy you got positive news with your scan results and that movement is getting better on your right side. Sleep is elusive for myself as well and you are right that it is a long time with your thoughts but at least they are better for you.

 

[Mri scan]

Praying that your ct scan results are good Justin.

[Mri scan]

Hi Justin….so glad you have a care nurse now, that should help a lot. Sorry that you are feeling so lousy and I do hope the symptoms from treatment will calm down soon. Hang in there. Your hair will grow back!…maybe a different color and texture but it will come.

Pam

[Gastroscopy results normal and three year cancerversary]

That is great news!

[Brain MRI]

Glad to hear stable on the ct also Karen.

[Mri scan]

Justin…so sorry you have had to deal with the family drama on top of your cancer journey. Don’t give up on your dreams and even tho it is hard, stay on the positive side. Thinking and praying for you.

[Nighteen Years!]

Congrats Tom!….enjoy your cruise and celebration.

[Blog: How Nina’s Clinical Trial Led to a High-Five Celebration]

What was the immunotherapy Nina was on?

[Scan results]

Lou,

When I had my original pet scan in Nov 2021, the adrenal mass was labeled as a myelolipoma. It has been stable since then until the Jan scan. If the pet scan I have on Feb 7 shows avidity, then I will have a biopsy. My previous ct and brain mri were in Oct. which showed stability in the lung but the metastasis in the brain for which I had gamma knife. I didn’t have any scans in Dec.

[Scan results]

Well I had brain mri and ct scans on Jan 20.  The brain scan showed that the gamma knife did its job and the metastasis is gone with no new lesions but there is faint enhancement along my optical and auditory canals. I am having a repeat mri on Feb 10. The ct scan showed that my lung nodule had grown slightly from 1.8cm to 2 cm. The mass on my right adrenal gland that has been stable all along has now grown from 2.5 cm to 3.5 cm. I am having a pet scan on Feb 7 to address those issues. 

[Mri scan]

Glad you are done with the treatment. Praying for you and sending positive thoughts. Totally agree with Lily.

[Lost a mentor]

Losing anyone so close and always there for you is a very hard thing. You just put one foot in front of the other and plod thru your days until the grief starts to ease. I was devastated when my mother passed as she was my rock. My friends, coworkers and family helped me to cope. The first year was the hardest but things are better. I still miss her every day but life does go on, just in a different way. Hang in there. Sorry for your loss.

[Another ambulance ride to the ER]

Good bro,

So sorry to hear that your brother passed. I hear you with it being the hardest thing you ever had to do. I was there when my mother passed. Although it was hard on you, rest assured that he was glad you were there with him til the end. 
Sending thoughts and prayers to you and your family.

Pam

[Mri scan]

I agree with cat lady and Lily. Please keep us updated and share your feelings. We are all here for you. Sending thoughts and prayers your way.

Pam

[Residual effects of chemo/radiation]

My stools also smell awful since chemo and radiation. I don’t have nausea or vomiting just the smell.

[Mri scan]

Are they molding the mask to your face Justin? I had that done for my gamma knife radiosurgery. It was a little strange but not that bad. The unknown always is. I wasn’t able to open my eyes and a little hard to open my mouth but I got thru it. My treatment was about 20 minutes long.I lost my hair when I had chemo but it started to grow back really quick.Wishing you the best and sending prayers and positive thoughts your way.

Pam

[Brain MRI]

That is great news Karen! 

[Mri scan]

Oh Justin…I am so sorry to hear of this news. Hopefully the whole brain radiation will keep the tumor in check. Do not give up hope. You have your amazing family to help you fight this set back. Please stay strong. Sending prayers and positive thoughts your way.

Pam

[Another ambulance ride to the ER]

I’m heartbroken to hear this news about your brother Good Bro. I hope that the infliximab will help his breathing. Sending prayers and positive thoughts to you both.

Pam

[Mri scan]

I am hoping for good news on Thursday for you Justin. I go on Jan 20 for brain mri and ct scan of lungs/abdomen/pelvis. I understand your sleep issues..I wake up multiple times during the night. You need to only focus on yourself at this time. Praying for you.

Pam

[Husband diagnosed yesterday]

Hello Kristin, welcome and sorry you need to be here. I’m sure the next step will be the biopsy ,then staging and treatment plan. The initial shock of it all is the hardest but once the treatment plan is in place you feel a little more in control. Keep us updated.

Pam

[Mri scan]

So sorry to be replying to this thread so late Justin. Sorry you have to go back on the steroids but I guess it is a small price to pay for mobility. Hopefully they will reduce the swelling and you can get off of them for good! Praying for you.

Pam

[NED!]

Awesome news Lily! 

[I'm also still stable!]

Awesome news Susan! Congrats and happy new year!

[Valerian and other herbal teas]

Hi Lily…when I was on chemo with carboplatin and etoposide I was told by my pharmacist not to drink any herbal teas or take any essential oils as it could interfere with them. I know it isn’t the same thing but ,yes, it will be best to talk with your pharmacist.

Pam