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edivebuddy

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  1. Like
    edivebuddy got a reaction from Livin Life in Dad has ROS mutation   
    Do not let the term aggressive fool you.  While in the ICU for because mine for more aggressive than any seen or heard of at about 2 am an oncologist sat down beside me after starting my first chemo.  He said he knew I had to be scared with the days events and it was indeed more aggressive than he would have ever imagined cancer could be.  He then said in his experience aggressive Cancers that respond to treatment tend to respond just as aggressively as they grew.  He was so right.  My cancer responded faster than they thought was possible.  After my first infusion of keytruda is was 12 days and an metastasis on my neck was 100% gone.  I could see the one in my neck was either gone or at least too small to notice. It was bigger by an two hands held in prayer 🙏.
    ROS1 can be aggressive, but it's also associated with better overall survival.  Alimta, plus chemotherapy with addition of a TKI should be very very effective  since ROS1 positive Cancer tend to respond well.
     
    Good luck to you and your family.  Hopefully you guys get a break and some good News soon.
     
     
  2. Thanks
    edivebuddy got a reaction from LilyMir in Dad has ROS mutation   
    Do not let the term aggressive fool you.  While in the ICU for because mine for more aggressive than any seen or heard of at about 2 am an oncologist sat down beside me after starting my first chemo.  He said he knew I had to be scared with the days events and it was indeed more aggressive than he would have ever imagined cancer could be.  He then said in his experience aggressive Cancers that respond to treatment tend to respond just as aggressively as they grew.  He was so right.  My cancer responded faster than they thought was possible.  After my first infusion of keytruda is was 12 days and an metastasis on my neck was 100% gone.  I could see the one in my neck was either gone or at least too small to notice. It was bigger by an two hands held in prayer 🙏.
    ROS1 can be aggressive, but it's also associated with better overall survival.  Alimta, plus chemotherapy with addition of a TKI should be very very effective  since ROS1 positive Cancer tend to respond well.
     
    Good luck to you and your family.  Hopefully you guys get a break and some good News soon.
     
     
  3. Like
    edivebuddy got a reaction from Tom Galli in It's that time again (1 year CT Scan)   
    I'm sure it's going to say No evidence for local Recurrence or distant metastasis.  Good luck I know waiting is an anxiety filled part of all our lives.  It gets better.
  4. Like
    edivebuddy got a reaction from Tom Galli in Surgery done   
    Congratulations.  Important results for you. Clean margins clean nodes will be back quick.  The biomarker testing may take some time.  Glad it all went well.  Do your rehab as they tell you. Don't skip it and keep moving. Before you know it you'll be back to normal. 
  5. Like
    edivebuddy got a reaction from LouT in Surgery done   
    Congratulations.  Important results for you. Clean margins clean nodes will be back quick.  The biomarker testing may take some time.  Glad it all went well.  Do your rehab as they tell you. Don't skip it and keep moving. Before you know it you'll be back to normal. 
  6. Thanks
    edivebuddy got a reaction from Blossomsmom in Surgery done   
    Congratulations.  Important results for you. Clean margins clean nodes will be back quick.  The biomarker testing may take some time.  Glad it all went well.  Do your rehab as they tell you. Don't skip it and keep moving. Before you know it you'll be back to normal. 
  7. Like
    edivebuddy got a reaction from Livin Life in Surgery done   
    Congratulations.  Important results for you. Clean margins clean nodes will be back quick.  The biomarker testing may take some time.  Glad it all went well.  Do your rehab as they tell you. Don't skip it and keep moving. Before you know it you'll be back to normal. 
  8. Thanks
    edivebuddy got a reaction from Pstar in Still stable   
    Nice.  I love reading Stable. Stable is a great term.  
  9. Like
    edivebuddy got a reaction from LouT in Still stable   
    Nice.  I love reading Stable. Stable is a great term.  
  10. Like
    edivebuddy got a reaction from Scruboak in Five year scan - whoops! Corrected to FOUR year scan   
    Always great to hear good news.  My at all your future scans return with the same results.
  11. Like
    edivebuddy got a reaction from LouT in Finally!   
    Nice.  I was ineligible because I already retired early.
  12. Like
    edivebuddy got a reaction from TJM in Finally!   
    Nice.  I was ineligible because I already retired early.
  13. Like
    edivebuddy got a reaction from RJN in Five year scan - whoops! Corrected to FOUR year scan   
    Always great to hear good news.  My at all your future scans return with the same results.
  14. Like
    edivebuddy got a reaction from allicat1214 in Breast cancer survivor w/8 mm upper nodule seeking info after 2 CT scans   
    Not a doctor but before you worry needlessly, over 80% of solid pulmanary lesions are benign. But just in case You should ask for a PET/ CT scan as recommended by the NCCN guidelines for solid lesions >8mm.
    You need to register to see anything but it's free.
    https://www.nccn.org
    This is the RADS that will tell what's suspicious.
    https://www.acr.org/Clinical-Resources/Reporting-and-Data-Systems/Lung-Rads
    While a PET is not perfect it's way safer and less painful than a biopsy.  If nothing glows you can probably skip the biopsied 
     
    If the PET comes back not suspicious then LDCT in 3 months if no charge 6 months then yearly LDCTs until you're longer a candidate for definitive treatment
     
    Don't settle for less than the guidelines. 
     
     
  15. Thanks
    edivebuddy got a reaction from Blossomsmom in About to get real   
    Good luck to you. 
  16. Like
    edivebuddy got a reaction from LouT in Five year scan - whoops! Corrected to FOUR year scan   
    Always great to hear good news.  My at all your future scans return with the same results.
  17. Like
    edivebuddy got a reaction from LouT in About to get real   
    Good luck to you. 
  18. Like
    edivebuddy got a reaction from LouT in Latest scan results   
    Ask if they will be performing a Rapid On Site Evaluation.   They look at the tissue right there in the operating room.  (Some have separate rooms but close)   
    You've already started the rehab and it is going to go a long way towards your recovery.  Follow their plan and move as much as possible.   
  19. Like
    edivebuddy got a reaction from Livin Life in Latest scan results   
    Ask if they will be performing a Rapid On Site Evaluation.   They look at the tissue right there in the operating room.  (Some have separate rooms but close)   
    You've already started the rehab and it is going to go a long way towards your recovery.  Follow their plan and move as much as possible.   
  20. Like
    edivebuddy got a reaction from TJM in lung nodule 6mm to 9mm   
    I personally would not delay with a rescan or a separate biopsy.  Even though not 100% odds are high of it being malignant.   Stage 1a lung cancer stops at 10 mm  your at 9 now. While it's not known how fast it's growing, every day you wait is a day closer to 1b.  While that's still very wet early it's not 1a. 1a systemic (chemotherapy, immunotherapy, targeted treatment) are not even offered.  While because of your history they would most likely recommend it if you were 1b.
    This is the very reason they no longer wait for 10 mm to do a biopsy and now do it at   8 mm 
    Good luck to you.  ROSE may come back benign.
  21. Like
    edivebuddy got a reaction from TJM in Lung Nodule   
    @NYC GUY 
    I personally would get a vats fine needle biopsy with a rapid in site evaluation ROSE.  That way a positive finding gets you a resection right then and there.  An early resection is your best chance for a cure.    Good luck to you and sorry you're even faced with this decision.
  22. Like
    edivebuddy got a reaction from Livin Life in lung nodule 6mm to 9mm   
    Unfortunately a PET sucks at seeing early cancers.   AIS and MIA lung cancers normally show way less than an SUV of 2 . I'd continue to follow the doctor's advise. Continued good luck to you. AIS and MIA Lung cancers have a 100% 5 year survival.  AIS. Has a 100% 10 year survival if treated.
  23. Like
    edivebuddy got a reaction from LouT in lung nodule 6mm to 9mm   
    Unfortunately a PET sucks at seeing early cancers.   AIS and MIA lung cancers normally show way less than an SUV of 2 . I'd continue to follow the doctor's advise. Continued good luck to you. AIS and MIA Lung cancers have a 100% 5 year survival.  AIS. Has a 100% 10 year survival if treated.
  24. Like
    edivebuddy reacted to BridgetO in lung nodule 6mm to 9mm   
    I had a small, slow-growing nodule in my lower right lobe that didn't show any uptake on the PET.  Because of its location, it couldn't be biopsied without surgery. I had a lobectomy and the noduleturned out to be an adenocarcinoma. My decision to go with the surgery was influenced by my having had two prior non-lung cancers and this thing could have been a metastasis, although the docs all agreed that it was most likely a primary lung cancer due to its appearance on the CTs.
  25. Thanks
    edivebuddy got a reaction from NYC GUY in lung nodule 6mm to 9mm   
    I personally would not delay with a rescan or a separate biopsy.  Even though not 100% odds are high of it being malignant.   Stage 1a lung cancer stops at 10 mm  your at 9 now. While it's not known how fast it's growing, every day you wait is a day closer to 1b.  While that's still very wet early it's not 1a. 1a systemic (chemotherapy, immunotherapy, targeted treatment) are not even offered.  While because of your history they would most likely recommend it if you were 1b.
    This is the very reason they no longer wait for 10 mm to do a biopsy and now do it at   8 mm 
    Good luck to you.  ROSE may come back benign.
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