Wow.... It took me so long to post this and now I am so glad I did.
Gail, thanks for the perspective. My daughter's school has been great. My oldest daugther is the one about to boil over... but she won't talk. That is another issue.
Rochelle, the place you describe sounds wonderful. Fllint is not far from me and it puts my mind at ease at least knowing it exists. My whole family is very close to I-75 and flint and Frankenmuth are very frequent stops, so I would imagine if that ends up being the closest NICE facility, they will be okay with it. I will look into the inpatient hospice places NOW though.
Thank you all so much.