sundancin Posted November 6, 2004 Share Posted November 6, 2004 Good Morning to Everyone!! I wanted to post today and say a few words to the wonderful people on this forum. Your posts are so helpful to me and my daughters. Your info and news are the best support for all of us. I am listed on other forums as well but this one has alot more info. GOOD JOB!!!! You all "rock" as my 15 yr old daughter would say!! I am writing to tell our story and to say that we are fighting on a lot of fronts too. My oldest daughter has written to our Gov.(Va), to declare for the 1st time ever--November as Lung Cancer Awareness Month. She also has organized-another 1st--A Lung Cancer Awareness Walk to take place Nov. 14, in Charlottesville, Va. We are hoping for success and will post photos after our walk. I am petioning our delegates to sign into law a Lung Cancer Research License Plate to raise funds for research!! An area that so needs more attention!! We are taking little steps now and praying that they will become hugh leaps by the way of treatments and increased life for all of us. I am also battling this beast since 2001. I was diagnosed with Stage 1a, had the surgery, Aug. 2001. Told I didn't need anything else--I was cured as the surgeon announced. Well not so!! Jan. 2003 a nodule appeared on my rib. Then the surgeon just said good luck-you are a stage IV--Not as lucky as I thought you would be. After some dissapointing Docs in my hometown-I went to Johns Hopkins for chemo. Carbo/Taxol 6 rds. Stable. Radiation 6/2004- Stable and healing. I also have tried Iressa and Celebrex and it slowed down alot but still shows a litte prgression. Sept. it came back again--several nodules small and also small lymph nodes. Now I am in a trial at NCI-this is Taxotere and Tariquidar. Great Docs there!! So, crossing my fingers for the scan at the end of Nov. Keep fighting, and also have a I don't have cancer day!! Go out and do what you did before this happened to you!!! Good luck to all!! Karen (Sundancin) Quote Link to comment Share on other sites More sharing options...
Ry Posted November 6, 2004 Share Posted November 6, 2004 Hi Karen, We have other members in your area I believe. Hopefully they can make your walk. You are doing a lot for the cause, good for you! Welcome to the board. Rochelle Quote Link to comment Share on other sites More sharing options...
Donna G Posted November 6, 2004 Share Posted November 6, 2004 Hi Karen, sorry to hear that you evidently had micrometastasis, for which an excepted test is still in the making. Did you have an Onocologist when first diagnosed? It suprises me how many only see a surgeon. Keep us posted on how you are doing. Donna G Quote Link to comment Share on other sites More sharing options...
Elaine Posted November 6, 2004 Share Posted November 6, 2004 Welcome! And thank-you and your daughter for all you are doing to raise awareness of this horrid disease. I pray your treatments work and that many, many I don't have cancer days are in front of you! love and fortitude elaine Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted November 6, 2004 Share Posted November 6, 2004 Hi Karen,good to hear from you.Hope that this trial will do the job for you.Thanks to you and your daughters for the effort in cancer awareness. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 6, 2004 Share Posted November 6, 2004 Hi, Karen, and welcome! You are an inspiration to us with your three year survivorship. Wish you the best. Keep us posted. Don Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted November 6, 2004 Share Posted November 6, 2004 Hi Karen. Welcome. You and your girls are doing some amazing things. God bless ya. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Wendy Posted November 6, 2004 Share Posted November 6, 2004 Karen, We need many more advocates such as you and your daughters to bring awareness and research forward - what an inspiration you are. I agree - lets have a "before cancer day". Best wishes for a successful fight. Wendy Quote Link to comment Share on other sites More sharing options...
sundancin Posted November 8, 2004 Author Share Posted November 8, 2004 Hello again, Well it was so nice of you to respond to me, and it made my day that you took the time to send me good wishes, and to also say how much help my daughters are going to be to bring attention to research for this disease. Thank you so much, Wendy, Cindi o'h, Don, Frank, & Elaine !! God Bless you all too!! Take care, Karen Quote Link to comment Share on other sites More sharing options...
Fay A. Posted November 8, 2004 Share Posted November 8, 2004 Don't know how I missed you, Karen, but want to say welcome and thank you to your daughters for their advocacy efforts. It all counts... Quote Link to comment Share on other sites More sharing options...
stand4hope Posted November 8, 2004 Share Posted November 8, 2004 Hi, Karen and WELCOME! It sounds like you are a very busy lady, and all of us here certainly appreciate your hard work for lung cancer. I'm sorry to hear about the progression of your disease, but have just said a prayer that your scans at the end of the November will be good news! God bless you, Peggy Quote Link to comment Share on other sites More sharing options...
Nushka Posted November 8, 2004 Share Posted November 8, 2004 Karen, It sounds like you have had a really tough time lately. I pray that things are much better with your next scan? As for your daughters work in raising funds for lung cancer research...I say hip, hip, hurray. Welcome to our family. Keep us posted. Nina Quote Link to comment Share on other sites More sharing options...
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