Jana_W Posted June 14, 2005 Share Posted June 14, 2005 Hi all I am needing some input and advice (and support!) from you wonderful group of people. Mum was diagnosed with multiple skeletal mets last month and has just completed her radiotherapy for two spinal lesions. We had more bad news last week in that a CT scan has revealed disease progression with the cancer having spread to the liver now (a few smallish spots) . As a result of this, she has been removed from the Tarceva trial she was on (it is not available in Australia on a non-trial basis yet). Her oncologist basically told her he did not want to offer her any more treatment at all, and referred her to a palliative specialist. Mum still wants to fight and isn't done with this disease yet. It's been an awful time for all of us, but I would really appreciate any information regarding liver metastases and treatments (alternative or conventional) that might be beneficial. In fact, any information that might be of any help at all would be warmly welcomed. Am feeling rather lost at the moment. I know that you all have so much on already and really appreciate any help you can offer. Thanks Jana xxxx Quote Link to comment Share on other sites More sharing options...
Fay A. Posted June 14, 2005 Share Posted June 14, 2005 Radiofrequency Ablation to treat liver mets? I don't know what you have available in Australia, Jana. Can your Mum travel to the UK or Canada for treatment? Prayers for you all. Quote Link to comment Share on other sites More sharing options...
Jana_W Posted June 14, 2005 Author Share Posted June 14, 2005 Thanks for the reply Fay. I had mentioned RFA to Dad. I do think it is available in Australia, so that might be worth looking in to. I was not sure if they would do RFA if she already has brain and skeletal metastases. As for travelling, I do not think that would be an option at the moment as she is very uncomfortable as a result of either the spinal mets or the radiation (probably both I guess). Thank you for the suggestions. I really appreciate them. I will mention RFA to Dad again. Prayers to you too, Jana xxx Quote Link to comment Share on other sites More sharing options...
rwoodburn Posted June 14, 2005 Share Posted June 14, 2005 Another option is sterotactic body radiosurgery. It is a less invasive option compared to RFA. Robert Woodburn M.D. Quote Link to comment Share on other sites More sharing options...
pammie Posted June 14, 2005 Share Posted June 14, 2005 There are some alternative supplements. I sent them on an earlier posting on this site. you will be able to find some websites to check out. Do a word search for alternative on the forum and it will get you there. praying for your mom. pammie Quote Link to comment Share on other sites More sharing options...
Jana_W Posted June 15, 2005 Author Share Posted June 15, 2005 Thanks for the information guys. I think we are all just very bummed out because when Mum asked her oncologist what treatment he would now recommend for her he said he wouldn't recommend anything She has an appointment today with a palliative specialist. We are still scouring the internet for any information we can find on things that could help. There are no clinical trials in our city for her to enrol in so that rules that idea out. Am feeling very down in the dumps about all of this now, so appreciate any and all positive thoughts sent our way. Thanks Jana xx Quote Link to comment Share on other sites More sharing options...
bunny Posted June 15, 2005 Share Posted June 15, 2005 I'm short on information, but positive thoughts (and prayers) I can do. xoxo bunny Quote Link to comment Share on other sites More sharing options...
Treebywater Posted June 15, 2005 Share Posted June 15, 2005 I have no information, but I want you to know that I'm praying for all of you. Quote Link to comment Share on other sites More sharing options...
Elaine Posted June 16, 2005 Share Posted June 16, 2005 Jana, I don't have an suggestions but I want you to know that I have you all in my thoughts each day. love and fortitude elaine Quote Link to comment Share on other sites More sharing options...
elnodel Posted June 16, 2005 Share Posted June 16, 2005 Jana, No answers here either, but I'm thinking of you and your sister and -- of course -- your Mum. I hope you get some good answers soon. Many hugs, Ellen Quote Link to comment Share on other sites More sharing options...
stand4hope Posted June 17, 2005 Share Posted June 17, 2005 Jana, You and I and Karen have PM'd already about some of these things, but I just wanted you to know that I'm sorry about the "bummed out" feelings you guys are having. It's no fun and totally consumes a person. I will be praying for better days ahead for you, Karen, your mum, and your whole family. Love and hugs, Peggy Quote Link to comment Share on other sites More sharing options...
Calintay Posted June 17, 2005 Share Posted June 17, 2005 Prayers for your mum! Quote Link to comment Share on other sites More sharing options...
patut Posted June 17, 2005 Share Posted June 17, 2005 I am so sorry. Have been in your place and know what you're going through. Prayers… Cyndy Timothy: 9/38-12/04 Quote Link to comment Share on other sites More sharing options...
Don M Posted June 18, 2005 Share Posted June 18, 2005 Jana: I am sorry your mom's oncologist is being such a downer. I know others have had liver mets removed and continued with treatment. I hope you find doctors who will help your mom. I have heard good things about the RAF. I have heard that avastin in combination with standard chemo drugs is very promising. You all have my prayers. Don M Quote Link to comment Share on other sites More sharing options...
Maryanne Posted June 19, 2005 Share Posted June 19, 2005 Hi Jana, Thinking of your both. Once she gets into the rightI know things will turn around for your mom. Keep positive that things will change. Prayers sent. Maryanne Quote Link to comment Share on other sites More sharing options...
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