myagle2 Posted February 16, 2007 Share Posted February 16, 2007 Hi again, Dont post much, as you can see by my profile, but I am absolutely here every single day, no matter what. My husband, Danny, is stage 4 non cell, and has been through it all.He has brain mets, 2 blood clots, one in the leg,( they put an umbrella in) and the other in the lung, stable I guess, I say i guess, because I try to make all his appointments, but I do still have to be at work most of the time, because my insurance says I have to lol!So I dont get to hear what I should some of the time. I so appreciate what you all have taught me. I totally feel we are on the down hill slide of all this, and hope you will pray for us, as I do the same for all you. Thamks Mary Quote Link to comment Share on other sites More sharing options...
yellowbow Posted February 16, 2007 Share Posted February 16, 2007 I'm prayering for you and DH. Maybe I shouldn't say this but , you could call the Dr and talk to him. I had to have the Dr call me before I called n Hospice. I was very hard. I called his cancer center and the nurse's suggested this. Sometimes if you talk to them they can help you. God bless and the best. Quote Link to comment Share on other sites More sharing options...
carolhg Posted February 16, 2007 Share Posted February 16, 2007 Both you and your husband are in my prayers. Carol Quote Link to comment Share on other sites More sharing options...
Nick C Posted February 16, 2007 Share Posted February 16, 2007 I have suggested the tape recorder. Sometimes the info is so much, and I know neither mom or I caught everythingevery time. So that might help. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 17, 2007 Share Posted February 17, 2007 Mary, Know that we are here for you. Your post really touched my heart. I had the luxury of being there with my husband during each doctor appointment and every step of the way. I can't relate to your circumstances. I do think I would call the doctor and talk with him. I'm assuming that your husband would have no objection to that. It is so very hard for members here to help when we don't have the facts, but on my behalf I send prayers... God Bless. Love & Prayers, Sue Quote Link to comment Share on other sites More sharing options...
myagle2 Posted February 17, 2007 Author Share Posted February 17, 2007 Thanks all! I have decided to call the doctor on Monday! Mary Quote Link to comment Share on other sites More sharing options...
RandyW Posted February 17, 2007 Share Posted February 17, 2007 If you use a tape recorder, Make sure Onc is comfortableand agrees to it of course. Good Luck and sending Prayers. Quote Link to comment Share on other sites More sharing options...
terriep Posted February 18, 2007 Share Posted February 18, 2007 Prayers for you and your husband, Mary. Quote Link to comment Share on other sites More sharing options...
lionking Posted February 18, 2007 Share Posted February 18, 2007 hi mary, i was the health care proxy and my moms caregiver (she passed on 1/10/07) but the doctor called me after every visit, when i could not be there....i worked at that time too. they should call you and let you know so that you can make informed decisions and help your husband as much as possible...just my little addition. much love and prayers Quote Link to comment Share on other sites More sharing options...
myagle2 Posted February 21, 2007 Author Share Posted February 21, 2007 I DID infact call his oncoligist, but he is STILL on vacation, wow what a surprize. Ill try tomorrow, hope to get some sucess. He is having trouble swallowing again, that really scares me! Mary Quote Link to comment Share on other sites More sharing options...
candys Posted February 22, 2007 Share Posted February 22, 2007 Mary, I will be thinking about you. Can you qualify for FMLA through your job? This could be an option if so. I like the suggestion about taking a tape recorder. Candy Quote Link to comment Share on other sites More sharing options...
myagle2 Posted February 22, 2007 Author Share Posted February 22, 2007 absolutly I can get mfla but do I want to go with nopay? no I can not, not right now. Mary Quote Link to comment Share on other sites More sharing options...
Flowergirlie Posted February 22, 2007 Share Posted February 22, 2007 My thoughts are with you! It is so hard when you have to work and be the caretaker and wife. Please know we are all here for you! Flowergirlie Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted February 22, 2007 Share Posted February 22, 2007 Mary, So sorry you are going through this and I can only imagine how difficult it must be for you. Have you thought about sending a tape recorder with him to his appointment. He could record the oncologist. Just a suggestion. God Bless!! Jamie Quote Link to comment Share on other sites More sharing options...
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