2weimies Posted March 3, 2007 Share Posted March 3, 2007 Not what I wanted to hear.after completing my pre op and PFT's tests yeaterday and all the pre registration I inquired about my previous PE where was it located ( no one ever told me ) the nurse practioner took the time to look it up and said upper right lobe.I was estastic..thinking then the nodule now showing up on right upper lobe was either scar tissue or dead tissue or somehow related..I fooled myself into believing this new premise and used that knowledge as the basis for most of the 18 questions I prepared for my surgeons appointment today.after all I reasoned he did not have all the info so I was going to share my new knowledge with him , and surely he would agreed and viola~ I'd be off surgery schedule.. However that is not what happendd.I was soberd quickly by his saying if it were me , I would have the surgery as the only chance for a cure if its caught early ( 80%) huh??? I questioned.....What are the chances percentage wise this could remotely be malignant.I was told 95%-98%...what ? what about the radiologist who stated in his report it was in an atypical location for malignancy.No its not according to the surgeon.In fact He said it will be very difficult to do the VATS surgery as he may not be abl;e to find it bacause its so small.so they are probably going to have to open me up... He also said something about staging taking about 7-10 days and If they send out other things for Cultures ( maybe that was if its by some miracle not cancer)that could take 6-8 weeks.I was in tears after I left his office.He explained all the possible risks and complications and I was just shell shocked.My sister (a nurse) and my DH were also with me.I stopped asking questions bacuse I could not think clearly and my sister took over and asked alot....She feels confident that my only hope if it is cancer is to get it out now and seemed to think the surgeon was very good and thorough. Even what could appear to be "caught early" may still be worse depending on lymph nodes which the doctor said are often not picked up on a PET scan..... I asked why I had that pain that took me to the ER and he could not explain...I asked how such a small think showed up on a PET scan and he marvelled at why the doctor even sent me for one ,he said he would not normally done that@ 6mm cause it usually would never show up. He also seemed to think that in the lungs a positive PET scan was most reliable as opposed to other organs in a PET scan. Sorry to be so long winded but I was totally caught by surprise after convincing myself it was a scar from the previous PE..... Now I am feeling like a slightly scratchy throat and everyone around me is sick at work.. I am feeling very scared.Thank you all for your support and positive thoughts. Quote Link to comment Share on other sites More sharing options...
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