Wendy Posted October 4, 2008 Share Posted October 4, 2008 Leave it to me to be a little different..... I found out I have a skull met at the base of my skull. The brain is clear. I just finished 10 radiation treatments because the pain I had from my neck/head. I was getting pain/shocks similar to a pinched nerve problem. The pain hasn't totally subsided but it is much better than it was. So right now I have 1 met at spine, t10 - stable 1 met at thyroid area - stable (they have no idea where it is, they can't find it on ultrasound) and the newest to my skull. I meet with my doc next week and will discuss what is next for me. I have been Tarceva and Avastin for 2 yrs 9 month and zometa for a year. Geesh I hate this damn rollercoaster - time to kick butt again. Wendy - 4yr 6 month survivor Quote Link to comment Share on other sites More sharing options...
Muriel Posted October 4, 2008 Share Posted October 4, 2008 Wendy, I'm so sorry about your new met. You've been on such a wild trip with this monster already. Sending good vibes, prayers, anything else I can think of. Let us know about your Onc's suggestions next week. Muriel Quote Link to comment Share on other sites More sharing options...
Caren Posted October 4, 2008 Share Posted October 4, 2008 Sorry to hear that they have found a new Met. My dad has just been told that he has two lesions (I'm assuming this means mets) to the skull, along with some to the ribs and shoulder. They are all stable right now and are being left alone. But, the Oncologist did state that the ones to the skull will usually not present any problems and that they aren't at all concerned about them. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted October 4, 2008 Share Posted October 4, 2008 Wendy, kicking cancer butt must be second nature to you now with 4 hrs 6 months behind you. We all know by that you are up to this next challenge. By my count, six more months and you've got it cornered for a long time to come. Sending positive energy to help you in your fight. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Kasey Posted October 4, 2008 Share Posted October 4, 2008 Right you are, Wendy, time to kick butt again. And boy, amd I sorry you have to. I remember as a kid just LOVING rollercoasters. Little did I know then about the ride!!!!! Hope there is a good plan put in place real soon and you get on with taking care of business. Hoping/praying for nothing but the best. Kasey Quote Link to comment Share on other sites More sharing options...
Bruce u Posted October 4, 2008 Share Posted October 4, 2008 Wendy so sorry to hear about the new met. But you certainly have almost 5 years of kicking cancer's butt this is just 1 more round. Take care and keep us updated. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted October 4, 2008 Share Posted October 4, 2008 Wendy, So sorry you have a new met. Yes, it can be a rough roller coaster ride for sure, but you have a great track record... I believe you will be fine. Know that I will keep you in my prayers. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted October 4, 2008 Share Posted October 4, 2008 And you are one of the best butt kickers I know!! God bless! Jamie Quote Link to comment Share on other sites More sharing options...
Janet B Posted October 4, 2008 Share Posted October 4, 2008 Wendy I have total faith that you will KICK BUTT again!! You are in my prayers - Janet Quote Link to comment Share on other sites More sharing options...
Connie B Posted October 4, 2008 Share Posted October 4, 2008 What THE $*&@ ?????? Sorry, but that's not what I was expecting to hear, as I'm sure you weren't either!!! ((((WENDY)))) Okay, get the fighting gloves back on, and go punch it out. Or, maybe you need to kick higher then a BUTT!! That's IT! Practice kicking HIGHER!! Let's kick this out of the park, once and for ALL! And A One, And A Two, And A Three, KICK!!!!! We're here for you my dear and wonderful gal pal. Just kind of broadsided me on this news. Okay, I'm ready to fight with you! Let go GET R DONE!!!!!!! Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted October 4, 2008 Share Posted October 4, 2008 Wendy Sorry about this latest news. But I am with Connie on this.. In your corner and ready to help you kick the crap out of this once again!! (((((Wendy))))) Warm Hugs Christine Quote Link to comment Share on other sites More sharing options...
Patti B Posted October 4, 2008 Share Posted October 4, 2008 Wendy- I agree with Kasey - used to LOVE roller coasters - the bigger and faster the better. Now......... I no longer need to go to an amusement park. I too am in your corner and hoping and praying for some good cancer butt-kicking coming from you. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
P.S. I Love You Posted October 5, 2008 Share Posted October 5, 2008 Wendy- I’m P.O.’d, and I don’t mean Post Office. Surely that radiation has knocked that met out And you can get back doing what you’ve been doing. You are an inspiration. Kim Quote Link to comment Share on other sites More sharing options...
recce101 Posted October 5, 2008 Share Posted October 5, 2008 Wow, Wendy, if it's not one thing it's another. Aside from the remaining neck pain, how are you feeling? Many accumulated aches and pains from the long-term Avastin use? You're still leading the charge! Best wishes and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
SandraL Posted October 6, 2008 Share Posted October 6, 2008 Hi Wendy. So sorry about your latest news...that is weird, I have never heard of a skull met. Glad to see you are in kick butt mode again. We LC survivors sure are a tough bunch! I hope they get a treatment plan in place for the skull met and that your pain is lessened. Take good care Sandra Quote Link to comment Share on other sites More sharing options...
Wendy Posted October 7, 2008 Author Share Posted October 7, 2008 Thank you for everyones support! I am starting to feel some relief from the pain in my head/neck from the radiation. Caren, interesting that the doc said they weren't all that concerned about the skull mets. My doc was leaving town the day before my brain mri/neck mri so we didn't have alot of time to discuss the what if's other than getting the pain under control. I visit with the doc next week and will find out more, but I sure feel a little better hearing what your dad was told about skull mets. Ned, I am actually feeling pretty good (other than the pain I already mentioned above). I have been Avastin for 9 months again. I did purchase a new mattress and the aches and pains seemed to have gone out the window with my old mattress. I do continue to have problems with the temperatures/feelings in my hands and feet from neuropathy. Quote Link to comment Share on other sites More sharing options...
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