leehee1 Posted May 3, 2009 Share Posted May 3, 2009 Hi, I am 57 years old and am new to this forum but not new to lung cancer. Was diagnosed with carcinoid cancer of right lung in 2003 - had right upper lobectomy and have metastases to the spine. Unfortunately cannot receive the Sandostatin med usually given because I do not have the receptors for the meds. This whole diagnosis is a story in itself. Immediately after this diagnosis (still feel the rib pain from surgery), I was diagnosed with papillary cancer of thyroid. Had one lobe removed and they cut my nerves so that now I have a permanent tracheostomy (breathing tube in neck). Had a recurrence in 2008 and the other lobe was removed and had radioactive iodine. They discovered Scleroderma during this time which has affected my lungs among other things -wheezing, sob etc. Take meds etc. On follow up scans (I have wonderful docs) a tumor in my parotid (salivary) gland was found. Biopsy was inconclusive and all opinions agree needs to come out. Was about to schedule surgery when I had a routine CT scan. A nodule they had been watching in upper left lobe has tripled in size in last year and has all signs of being malignant. I am an ex smoker - stopped with first lung cancer diagnosis. I am totally blown away as are my docs. What are the odds of getting two kinds of lung cancer? I just hate the waiting part and just want to have a plan of action. Docs say I need a surgical biospy as they cannot get to the tumor with a regular biopsy. I am already looking further and have read so much - that is how I stay proactive and involved - knowledge is power for me. I am asking myself already can I live a good quality of life without two upper lobes? Are the two tumors connected and if so is this metastases and can I take all these major surgeries? Just needed to find a place where I can vent. Hope to make lots of friends here and to be a survivor for a long time. Lee Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.