Leo Posted April 26, 2018 Share Posted April 26, 2018 Three months following a 1/23/17 PETCT reporting complete response to 1st line treatment (NED - no evidence of disease), I’m happy to say my 4/23 PETCT reports “ No hypermetabolic masses or lymphadenopathy in the neck, chest, abdomen or pelvis” So while my name is Leo, today I’m happy being called NED . As a point of reference I was diagnosed with Limited Stage SCLC Oct 2017, underwent 4, 3 day rounds of chemo (Carboplatin/etoposide) with 30 concurrent Radiation treatments & concluding with PCI. In addition to the PETCT , a serum Chromogranin A Tumor antigen assay(test) fell within normal range for the first time since immediately prior to treatment. While acceptable ranges vary by the lab performing the test (protocols), the normal range for my lab was 0 - 95. Prior to the start of Chemoradiation treatment, my Chromogranin A was 900+ (Nov 13/17), had fallen to 165 by Jan 2 2018 (prior to my final round of chemo) and is now at 92. Needless to say I very happy with this outcome. That said, there were a couple of areas of Small FDG (sugar) update presumed to be effects of radiation treatment and pneumonitis related inflammation. These areas will be monitored over the short term to ensure the voracity of those conclusion. I’m told these radiation related effects are not unusual this early in the monitoring period. I hopeful in that regard. Any one else experience this? My final step in monitoring is an appt. with my Radiation Oncologist on May 1, having completed visits with my Pulmonologist and Medical Oncology team yesterday. I’m not only thankful for theses results , but also for the words of wisdom, advice, and experience sharing I have found here. It means a great deal! Link to comment Share on other sites More sharing options...
BridgetO Posted April 27, 2018 Share Posted April 27, 2018 Yay for NED! Woo hoo! Bridget O Link to comment Share on other sites More sharing options...
Judy M. Posted April 27, 2018 Share Posted April 27, 2018 Yay!! Thanks for sharing your great news. Judy M. Link to comment Share on other sites More sharing options...
Tom Galli Posted April 27, 2018 Share Posted April 27, 2018 Ned (Leo), Wonderful, marvelous, and magnificent -- so nice to see a clean scan result! Stay the course. Tom Link to comment Share on other sites More sharing options...
JoshK Posted April 27, 2018 Share Posted April 27, 2018 Congratulations! My Mom hit NED after just 2 cycles of chemo. I hope she follows in your footsteps. God Bless You. Link to comment Share on other sites More sharing options...
Steff Posted April 27, 2018 Share Posted April 27, 2018 Happy dance! Link to comment Share on other sites More sharing options...
Donna G Posted April 27, 2018 Share Posted April 27, 2018 Happy News ! Thanks so much for sharing. Donna G Link to comment Share on other sites More sharing options...
Roz Posted April 27, 2018 Share Posted April 27, 2018 That is fantastic news!! Thanks for sharing!! Link to comment Share on other sites More sharing options...
Mally Posted April 28, 2018 Share Posted April 28, 2018 Thats the best news and i bet your feeling fabulous Link to comment Share on other sites More sharing options...
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