afeldman43 Posted November 8, 2018 Share Posted November 8, 2018 Hi, my mother in law just started chemo and radiation (she is NSCLC adeno IIIA) and is on Alimta and Carboplatin. Curious if anyone has views as to how to address side effects of these drugs, as well as views of carboplatin versus Cisplatin. Thanks so much!! Link to comment Share on other sites More sharing options...
BridgetO Posted November 8, 2018 Share Posted November 8, 2018 What side effect is she having? For another cancer (not lung, stage 3) I had concurrent radiation and cisplatin, followed by carboplatin and taxoterre. Cisplatin has a reputatio for causing more nausea/vomiting than carboplatin.. My experience with cisplatin/radiation may not be comparable fo your mom's because my gut was being radiated, causing digestive problems. On thing I can say is that in my case this stuff worked. I'm 7 years out from the end of that treatment for a cancer that had a "dismal prognosis" and I'm NED (no evidence of disease). Link to comment Share on other sites More sharing options...
afeldman43 Posted November 8, 2018 Author Share Posted November 8, 2018 thank you! probably a premature post - she just started and I'm just trying to be proactive. Great to hear that you are NED! We are trying to be very positive but know this is the beginning of a long journey. Link to comment Share on other sites More sharing options...
Rower Michelle Posted November 8, 2018 Share Posted November 8, 2018 Hi! I started out on Carboplatin/Alimta/Keytruda. The best advice came from one of the nurses: drink lots of water. I managed 100 ounces a day. I had zero side effects. Bottoms up! Link to comment Share on other sites More sharing options...
BridgetO Posted November 8, 2018 Share Posted November 8, 2018 With platinum drugs, nausea and vomiting are common side effects. If your mom does develop these, here are a couple of suggestions. Keep track of when in the chemo cycle they occur I found that it was worst on (if I recall correctly) the third day after the infusion and so I needed extra nausea meds then. Bland white carbohydrate foods lke plain white toast, saltines and white rice can be helpful. Michelle's advice about drinking plenty of water is good.You want to get that stuff flushed out ASAP Link to comment Share on other sites More sharing options...
Kleo Posted November 8, 2018 Share Posted November 8, 2018 Hi afeldman43! I had 3 doses of Cisplatin and Alimta, then had 1 dose of Carboplatin and Alimta. I feel like the Carboplatin wasn't as bad with side effects as the Cisplatin was! I was nauseated for all of them though...but usually only bad for a couple days following infusion. Started about the 3rd day after treatment and lasted 2-3 days for me. I agree with the others.... flush it out. Fluids & more fluids. Nurses told me that too! Link to comment Share on other sites More sharing options...
Tom Galli Posted November 9, 2018 Share Posted November 9, 2018 Afeldman, Here are some tips for infusion that may be helpful. Stay the course. Tom Link to comment Share on other sites More sharing options...
Tomm Posted November 9, 2018 Share Posted November 9, 2018 Hi, I had Carboplatin, PACK LA TAXOL and radiation at the same time. I took 1/2 gram CBD oil and 1/2 gram THC oil in a cap every day. I had NO side effects, no nausea,no pain , no weight loss, no neuropathy, no sore throat. I suggest trying a low dose tincture of CBD.This is link to PUBmed a govt. web site on cbd and cancer side effects. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4791148/ water is good too... Link to comment Share on other sites More sharing options...
afeldman43 Posted November 13, 2018 Author Share Posted November 13, 2018 Thank you all again. I've passed along all the helpful information and anecdotes! Link to comment Share on other sites More sharing options...
Steff Posted November 14, 2018 Share Posted November 14, 2018 Another suggestion: my mom was on Keytruda + Carbo + Alimta for 6 rounds. She had received carbo before with her first lung cancer diagnosis. The second bout was much worse for her. But she felt nauseous both bouts. It ended up being severe acid reflux causing the nauseousness. Both bouts, she had to be on a regimen of antacids (2 different types daily) throughout the treatment and for a bit afterward. They also had to switch it up mid stream because the first antacid "cocktail" stopped working. After the acid reflux was controlled, nauseousness was minimal. Link to comment Share on other sites More sharing options...
afeldman43 Posted November 26, 2018 Author Share Posted November 26, 2018 Steff, thank you so much - i didn't see this until now but will pass along asap! Link to comment Share on other sites More sharing options...
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