Sorry you have gotten this awful disease. My wife's case has similarities to yours (see below bio). First, feel free to express yourself here often. We are all here to support and exchange info. We are all on this walk together. I recommend that you seek someone out where you are that you feel you can trust and express yourself to on a regular basis. You will need to do this for yourself. Secondly, you need an advocate --whether your husband or sister or someone else -- who will fight for you through the system. You will often be too sick, too tired, too medicated to do the best for yourself, so you need another pair of ears and mouth. And let them do that for you. There is hope here, so hang on to that. You have friends here. Don