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LaurenH

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  1. LUNGevity Foundation Issues Request for Applications for 2017 Career Development Awards for Translational Research in Lung Cancer Application now available online FOR IMMEDIATE RELEASE Media Contact: Austin Courtney acourtney@susandavis.com (202) 414-0791 Washington, D.C. (January 17, 2017) — LUNGevity has issued a Request for Applications (RFA) for translational research for Career Development Awards that will be granted in 2017. The RFA is available on the LUNGevity website at www.LUNGevity.org/career-development-awards and is also posted on the proposalCENTRAL website at https://proposalcentral.altum.com. LUNGevity’s Career Development Awards for Translational Research program was created to support future research leaders who will keep the field of lung cancer research vibrant with new ideas. Successful applicants may receive $100,000 per year for a possible period of three years and will participate as non-voting members of LUNGevity’s Scientific Advisory Board for the duration of the award. Applicants must be within the first five years of their faculty appointment. The Career Development Awards are mentored awards, and a mentoring plan is part of the required submission. Projects that will be funded in 2017 are expected to have a direct impact on the early detection of lung cancer or on the outcomes of lung cancer, or to provide a clear conceptual or experimental foundation for the future development of methods for early detection and/or individualized treatment, including through targeted therapy and immunotherapy. Letters of intent must be submitted by Friday, February 20, 2017. LUNGevity supports the largest research awards program of any lung cancer-focused organization in the United States. Since 2002, LUNGevity has funded 118 projects at 58 institutions in 23 states. About Lung Cancer in the U.S. About 1 in 15 Americans will be diagnosed with lung cancer in their lifetime More than 224,000 people in the U.S. will be diagnosed with lung cancer this year About 60%-65% of all new lung cancer diagnoses are among people who have never smoked or are former smokers Lung cancer takes more lives than the next four deadliest cancers (colorectal, pancreatic, breast, and prostate) combined Only 18% of all people diagnosed with lung cancer will survive 5 years or more, BUT if it’s caught before it spreads, the chance for 5-year survival improves dramatically About LUNGevity Foundation LUNGevity Foundation is firmly committed to making an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as by providing community, support, and education for all those affected by the disease. Our vision is a world where no one dies of lung cancer. For more information about LUNGevity Foundation, please visit www.LUNGevity.org. Click here to read the full press release online.
  2. It has come to our attention that a user claiming to be an oncologist turned alternative and integrative medicine practitioner has sent personal messages with inappropriate content to at least 22 users. This is a direct violation of the Terms of Use of this site. We apologize to the LCSC members who were contacted by this person. Thank you to the LCSC users who reported these actions. The user has been banned and the administrators are working to make sure that person cannot access the site. If you receive any inappropriate message, please report it to the administrators so that we can take action to block that user and maintain the integrity of this site. To report a post: Click Report Post in the dateline of the post You have the option to add a message explaining why you are reporting the post Click Submit Report To report a message: Click Report in the dateline of the conversation You have the option to add a message explaining why you are reporting the message Click Submit Thank you for helping to keep LCSC a safe and supportive space for our 11,200 members.
  3. Edward Garon, MD, of UCLA joins the LUNGevity Foundation Scientific Advisory Board Dr. Garon brings expertise in clinical trials and other key areas to LUNGevity’s research program FOR IMMEDIATE RELEASE Media Contact: Austin Courtney acourtney@susandavis.com (202) 414-0791 WASHINGTON, DC (January 13, 2017) – LUNGevity Foundation, the nation’s preeminent lung cancer research foundation, today announced that Edward Garon, MD, has joined LUNGevity’s Scientific Advisory Board, a group of 19 world-renowned scientists and researchers who guide LUNGevity’s scientific strategy and research program. The Scientific Advisory Board is integral to the Foundation, overseeing the scientific approach and ensuring that grants are awarded to the researchers whose proposals demonstrate the greatest potential for finding lung cancer at its earliest, most treatable phase, as well as extending and improving lives for lung cancer survivors. LUNGevity is the only lung cancer organization with programmatic focuses on early detection and Career Development Awards. LUNGevity-funded researchers are working on finding a better way to detect lung cancer, and to better diagnose, treat, and prevent its recurrence. The research program is a crucial factor in moving the science forward to improve outcomes for people living with lung cancer. Dr. Garon is the Director of the Thoracic Oncology Program at the Jonsson Comprehensive Cancer Center at UCLA and Associate Professor of Medicine in the Division of Hematology-Oncology at David Geffen School of Medicine at UCLA. He has been the principal investigator of peer-reviewed grants from various funding organizations, including the National Cancer Institute. His focus is on clinical research and biomarker development. He has served as the principal investigator on national and international phase I, II, and III clinical trials. Among these are trials that have led to the approval of drugs for the treatment of non-small cell lung cancer, including ramucirumab (Cyramza®) and the immunotherapy pembrolizumab (Keytruda®). “We are honored that Dr. Garon has joined our Scientific Advisory Board,” said Andrea Ferris, President and Chairman of LUNGevity Foundation. “His expertise and advice will be invaluable to furthering LUNGevity’s goal to improve outcomes for lung cancer patients.” Click here to read the complete press release on LUNGevity.org.
  4. Hi, Lydia, I'll see if I can find someone who can share more information about Tagrisso from personal experience. In the meantime, this webpage details some of the possible side effects of EGFR inhibitors https://www.lungevity.org/about-lung-cancer/lung-cancer-101/treatment-options/targeted-therapy Please let us know if you have any other questions! Lauren -- Digital Community Manager LUNGevity Foundation
  5. LUNGEVITY FOUNDATION INTRODUCES A NEW MOBILE APP TO HELP PATIENTS UNDERSTAND AND MANAGE LIFE WITH LUNG CANCER Lung Cancer Navigator is a Customized Communication Hub that Puts Education, Care Management and Personal Support in the Palm of Your Hand PR Newswire, WASHINGTON, DC (January 11, 2017) Click here to view the multimedia press release. LUNGevity, the nation’s leading lung cancer-focused nonprofit organization today launched a new mobile application designed to make understanding and living with lung cancer less daunting and considerably more manageable. The new Lung Cancer Navigator mobile app provides lung cancer patients with access to the latest medical and treatment information related to their specific lung cancer diagnosis, and serves as a convenient hub for organizing customized care and support networks, asking questions, describing and tracking symptoms, and managing multiple medications. Lung cancer is the second most commonly diagnosed cancer worldwide, with more than 1.8 million new cases diagnosed each year. The LUNGevity Lung Cancer Navigator app provides tools and forums to help those coping with the disease (including caregivers and support network members) communicate important details in real time, while handling care management needs with efficiency, medical guidance and less stress. “When someone receives a lung cancer diagnosis, it can be overwhelming,” said Andrea Ferris, President of LUNGevity Foundation. “Our goal with the LUNGevity Lung Cancer Navigator app is to empower patients and provide them with a forum for connecting to customized information and a support community that helps them navigate life with understanding and much less fear.” While lung cancer can affect anyone regardless of gender or ethnicity, only 18% of people diagnosed with the disease survive five years or more. LUNGevity Foundation strives to change outcomes for people living with lung cancer through research, education, support and advocacy. Through the LUNGevity Lung Cancer Navigator app, LUNGevity Foundation aims to provide patients and caregivers with a greater sense of empowerment, understanding and improved management of personal diagnostic, treatment and appointment information. The LUNGevity Lung Cancer Navigator was developed through an educational grant from Bristol-Myers Squibb. LUNGevity’s Lung Cancer Navigator Mobile App is available as a free download on iOS and Android devices. For more information and to view a demonstration video, visit https://www.lungevity.org/. About Lung Cancer: 1 in 15 Americans will be diagnosed with lung cancer in their lifetime More than 224,000 people in the U.S. will be diagnosed with lung cancer this year About 60% of all new lung cancer diagnoses are among people who have never smoked or are former smokers Lung cancer kills more people than the next three cancers (colorectal, breast, and pancreatic) combined Only 18% of all people diagnosed with lung cancer will survive 5 years or more, BUT if it's caught before it spreads, the chance for 5-year survival improves dramatically About LUNGevity Foundation: LUNGevity Foundation is firmly committed to making an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as by providing community, support, and education for all those affected by the disease. Our vision is a world where no one dies of lung cancer. For more information about LUNGevity Foundation, please visit www.LUNGevity.org. ### Press Contact: Cynthia Inácio 212-561-7476 cynthia.inacio@kingcompr.com
  6. Hi, Robin, Welcome to LCSC! We're glad you've joined as well. This is a great forum to connect with other patients/survivors who are living with a lung cancer diagnosis. I'm happy to hear that your side effects have been minimal. Please keep us posted on your CT scan results--we'll be sending lots of positive thoughts your way! Please feel free to explore the discussion boards and blogs and join in some of the conversations. And let us know if you have any specific questions or if you're looking for any additional resources/support. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  7. Hi, BobbieA, Welcome (back) to LCSC! I hope that you make many meaningful connections with other patients/survivors, caregivers, and advocates in this online community. Please feel free to explore the discussion boards and blogs and join in on any conversations that resonate with you. This is a great place to ask questions and get answers from patients/survivors with similar experience. And please let us know if there are any specific resources or support that you need and we'll be happy to help! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  8. Hi, Stephanie, Welcome to LCSC. My name is Lauren and I am the Digital Community Manager for LUNGevity. I'm glad that you've joined this community and hope that you can make many meaningful connections with other caregivers and survivors. I'll encourage our members who have experience with Keytruda to respond to your post. In the meantime, please feel free to explore the discussion boards and blogs. Everyone LCSC member's story is different, but this is a great place to find inspiration and hope! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  9. Hello, Gage and JayJay, Welcome to LCSC! I am glad to see that you've already connected with Tom. I hope that you will many meaningful connections with other patients/survivors, caregivers, and advocates whose lives have been affected by lung cancer through LCSC. As the Digital Community Manager for LUNGevity Foundation, I am happy to help you find the resources and support that will be most helpful to you. Please feel free to continue exploring the message boards and joining the conversations which ressonnate with you. And please let me know if you'd like more information on any particular topic or about LUNGevity's Support & Survivorship programs. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  10. Hi, Stephanie, Welcome to LCSC! I am happy that you've already connected with some of our most active members. This is a great forum to ask questions and share experiences. Here is a link to LUNGevity's Lung Cancer 101 website, which provides comprehensive information about types of lung cancer and treatment options: https://www.lungevity.org/about-lung-cancer/lung-cancer-101/types-of-lung-cancer/lung-adenocarcinoma. Please keep us posted on your dad's MRI results. Happy New Year! With gratitude, Lauren -- Lauren Humphries Digital Community Manager LUNGevity Foundation
  11. Hi, Wendy, I'm glad you've joined LCSC. This is a great place to connect with other survivors, patients, caregivers, and advocates and to ask questions. Once you have more information about your diagnosis, please feel free to share it with the group along with questions/concerns. We are here for you! Lauren -- Digital Community Manager LUNGevity Foundation
  12. Hi, Yyg, My name is Lauren and I am the Digital Community Manager for LUNGevity. I'm glad you've already connected with some of our members. This community is made up of patients, survivors, caregivers, and advocates who have all been affected by lung cancer, so it's a great place to ask questions. Please let me know if there is any specific support or resources that you need. We offer peer-to-peer support programs for survivors and caregivers and we have survivorship conferences all over the country that feature education sessions, the latest information in research and treatment, and the opportunity to meet other survivors and caregivers in person. Here is a photo of the survivors under the age 50 at National HOPE Summit in Arlington, VA, last May (pictured with Chris Draft, bottom row-center):
  13. That's wonderful news St. Michael! I am very happy for you and your family! Wishing all of you good health, hope, happiness, and healing in the new year! Lauren -- Digital Community Manager LUNGevity Foundation
  14. Hi, Lydia, Welcome to LCSC! I am sorry to hear about your diagnosis, but I'm glad that you've joined this online support community. This is a great place to connect with people like Donna, who can share experience, advice, and encouragement. Please feel free to join in conversations or start your own topics in the discussion boards. There are also member blogs, photo galleries, and a calendar of lung cancer events. Here is a page on LUNGevity's website with tips for managing side effects: https://www.lungevity.org/support-survivorship/survivor-resource-center/living-well-with-lung-cancer/managing-treatment-side. I'd also suggest making a post to ask specific questions about side effects that are affecting you. Many of our members may have experienced similar side effects and can share what strategies worked best for them. Please let me know if there are any specific resources/support that you need and I will be happy to help! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  15. Hi, Michelle, Welcome to LCSC! I am glad that you found us and I look forward to getting to know you. I work for LUNGevity as the Digital Community Manager. I became involved with the organization as a volunteer in 2011 when my uncle was diagnosed with Stage IV NSCLC. We just celebrated five years of survival with him this past fall. Like you and Susan, he has a positive attitude and is grateful for each new day. I hope that you make many meaningful connections on this forum. Please feel free to explore the discussion boards and join in on any conversations that resonate with you. This is a great place to ask questions and our members are happy to share their experiences and (non-medical) advice. There are also community blogs, photo galleries, and a calendar with lung cancer events. Please let me know if you are looking for any types of specific support or resources and I will be glad to help. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  16. Here is the link to the video on LUNGevity's YouTube page: If you'd like to watch other stories from survivors, caregivers, advocates, and medical professionals, check out all of LUNGevity's videos: https://www.youtube.com/user/LUNGevityFoundation/videos Lauren -- Digital Community Manager LUNGevity Foundation
  17. Hello, I'm very sorry to hear about your mom's diagnosis, but I'm happy that you've joined LCSC. I'm especially glad you've already connected with Tom. He is an incredible mentor to this community and can offer lots of reasons to have hope. I work for LUNGevity as the Digital Community Manager so I'm happy to talk with you about the support resources and programs we offer. If you're interested in peer-to-peer support, LUNGevity offers a free LifeLine Support Partner program that matches patient-to-patient or caregiver-to-caregiver. LifeLine Support Partners are volunteers whose lives have also been impacted by lung cancer, and they can offer advice, experience, and understanding. Here is the link to LifeLine: https://www.lungevity.org/support-survivorship/get-connected/lungevity-lifeline. Please let me know if you'd like additional information about LifeLine and I'll put you in touch with my colleague Nikole, who manages the program. I became involved with LUNGevity as a volunteer event coordinator after my uncle was diagnosed with Stage IV lung cancer in 2011. My uncle underwent chemotherapy, radiation, and multiple surgeries to address brain mets. When he found out he had ALK, he started taking a targeted therapy drug which produced great results for almost four years. This spring, he switched to another targeted therapy drug and is doing well. In September, we celebrated five years of survival as a family. In the past five years, he's attended his oldest son's wedding, his youngest son's graduation from college, and the birth of his first three grandchildren. I also wanted to share David Gobin's story. I met David and his wife Stephanie at my first Breathe Deep Baltimore in Camden Yards. They're a wonderful couple and I love spending time with them. This is a video that our partner SU2C produced about David's story: The theme in Tom and David and my uncle's stories is that there is always a reason to have hope. Please keep us posted about how you and your mom are doing and feel free to explore and join in on any of the discussion threads in this community. Lauren -- Digital Community Manager LUNGevity Foundation lhumphries@lungevity.org
  18. Hi, Maltman, Welcome to LCSC! Your post inspired an idea for a new discussion board. Every Friday, I will share a weekly "Clip Report" with news about LUNGevity and news about lung cancer. I'll start the thread in the Lung Cancer In The News forum under News/Advocacy. I'll post the first clip report this Friday, December 16. Here is the link to the post where I introduced the clip report: With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  19. Good afternoon, LCSC members! Every Friday, I will start sharing a weekly clip report in this forum. I encourage you to reply to each thread to let us know what kind of news stories are most interesting/relevant to you. I'll post the first weekly clip report this Friday, December 16! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  20. Tybris, Thank you for sharing your story. I have no doubt that your positive energy made a tremendous difference for your mom and that you will continue to make a positive impact on the lives of many, many others. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  21. Hi, Shari, Welcome to LCSC! I am sorry to hear about your diagnosis, but it sounds like you are in great hands. Please keep us posted whether or not you end up getting genetic testing. I hope that you make many meaningful connections with other members in this community like Donna, Tom, Susan, and Bridget. Please feel free to explore the blogs and discussion boards and join in on any conversation that resonates with you. Please let us know if there is any specific kind of support or if there are resources on specific topics that you are seeking. Know that we are here for you and we look forward to getting to know you! Lauren -- Lauren Humphries Digital Community Manager LUNGevity Foundation
  22. Hi, Bridget, I am sorry to hear about your diagnosis, but like Tom, I am happy to hear that it was detected early. That is always a good sign. I'm also glad that you've joined LCSC and connected with Tom and Shari. This is a great forum to share stories with and ask questions and advice from other patients/survivors. Tom already mentioned his blog and there are a few others as well. Please feel free to join in conversations on start new ones in the discussion boards. And let us know if there is any specific type or support or resources that you are looking for. LUNGevity's President Andrea Ferris is a member of the Stand Up to Cancer Lung Cancer Dream Team, which is dedicated to understanding and treating the KRAS mutation. You can learn more about their research program here https://www.standup2cancer.org/dream_teams/view/su2c_acs_lung_cancer_dream_team. Please keep us posted and let us know how we can help! Lauren -- Digital Community Manager LUNGevity Foundation
  23. After losing my mother to lung cancer in 2010, I had been looking for ways to help raise awareness for the disease and educate people that lung cancer is not just a “smoker’s disease.” My mother's efforts at raising awareness were very important to her and I wanted to honor her life and efforts by continuing that community outreach. After participating in Breathe Deep Nashville in 2012, I indicated in a post-race survey that I would be interested in helping out the following year. One of the coordinators reached out to me and asked if I would be willing to join the planning committee and I’ve been involved ever since. This past November was my 4th Breathe Deep Nashville to help plan. We usually start working on our November event in March or April, so there is obviously a lot that goes into putting together an event like this. The reward for me after all that is honoring the same group of survivors year after year knowing that we are helping to fund a Foundation that supports them in ways no other lung cancer focused organization does. We are lengthening lives through early detection and focused therapies. We are providing survivors and their caregivers with the support and resources they need. We are making a difference. We are very fortunate in Nashville to have an amazing group of doctors at the Vanderbilt-Ingram Cancer Center working on research and treatments to help end this disease. I choose to continue volunteering my time for the LUNGevity Foundation because some of the funds we raise come directly back to Nashville. Dr. Jonathan Lehman was a recipient of the LUNGevity Career Development Award in 2016. Through that grant I can see our fundraising efforts impacting his amazing research. I hope our fundraising efforts will help us to realize a world where no one dies from lung cancer: a world where no one has to lose their mother too early like I did. Ryan is pictured sixth from the left. The theme of Breathe Deep Nashville is "Stache and Lash" so participants grow or wear fake mustaches and false eyelashes to add creativity and laughter to event day!
  24. Hi, Rita, Welcome to LCSC. Thank you for sharing your story. I hope you will make many meaningful connections with other patients and survivors on this site. Please continue to keep us updated and feel free to join in any of the discussion threads or start new ones. Let us know if you have any questions or if you're looking for resources on a specific topic. In addition to LCSC, LUNGevity has peer-to-peer support mentorship programs as well as a wealth of educational materials available in print and online. LUNGevity's President Andrea Ferris is a member of the Stand Up to Cancer Lung Cancer Dream Team, which was created in 2015 to address treatment options for patients with KRAS-mutant lung cancer. There is more information about their work on this website: http://www.lungcancerdreamteam.org/ We are here for you. Let us know how we can help! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  25. I am happy to hear your great news! That is something to celebrate this holiday season! There are many opportunities to get involved with LUNGevity. Here are a few https://www.lungevity.org/get-involved If you have any questions, please feel free to email me at lhumphries@lungevity.org Lauren -- Digital Community Manager LUNGevity Foundation
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