Tomm

Hi,
Just an update on everything, I got the results from the CT scan today and it was brilliant news, the cancer in my right lung has shrunk significantly and gone from my lymph nodes, the oncologist was really happy with the results and said it was fantastic news and that I responded great to the treatment, i will have my next scan at the end of April beginning of may and they are hoping it continues to shrink and stay stable, thank you to everyone for there support throughout this 
Kind regards 
Justin 

Happy New Year to all as well. I’ve just been living and working and was football Grammy for a while there, not the pros my grandson. Getting ready to start spring practice, which starts February here in the south. No news good or bad health wise. 3 years since diagnosis, almost 2 years finished with treatment. Now on the 6 month schedule for scans, finally. Still have my port, scared to tempt fate by taking it out. I don’t know how I’ll get over that fear. And I get to see all the great ladies at the doc’s office every 2 months for flushes.  Michelle sorry about your mom. 
Hugs and kisses to all!!

 

Happy New Year to all! Still kicking the rocks around, gratefully. Everything is stable, since last scan I had in December, except a small 7mm tumor (probably a cyst) the radiologist quoted, my oncologist said no worries, all's good 👍 hmmm. Sometimes I wonder. But hey, been ok so far. So I'll take it. Glad to see everyone is doing pretty ok too. We seem to all be staying ahead of the curves for now.
God Bless, stay safe,
Namaste 🙏 Roseann
 
 

Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions.  How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L.  Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many. 
Stay safe.
old joke   ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab

Hi All, and happy new year. It's a great feeling welcoming another year. And hard to believe the time that passed since Durva forum started. 
I was so truly happy to see posts and especially the 5 year cancerversary, Tomm. Way to go! TX for sharing. It is great encouragement, at least for me. November was 3 years I finished my Durva. March are scans and if all is well, I should be able to do scans annually. Makes me a bit nervous but I will think positive.
M Rower, sorry to learn you lost your Mom. I help out to care for mine, she turns 91 end of this week. 
Lexiecat you're in my prayers.
Barb, Ron, Sillycat, Eagle 13, Tom G and anyone I may have left off here it's great to see your posts.
God Bless, stay safe and healthy. Hugs to all.
Opal
 

Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions.  How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L.  Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many. 
Stay safe.
old joke   ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab

Hi Ron...
good to hear your doing well with ALK+, I'm doing well too and hope the rest of the club is staying safe
I'm so excited—it's time to take out the garbage. What should I wear?
So many coronavirus jokes out there, it's a pundemic.
The only jokes allowed during the coronavirus are inside jokes.
 

Hi Ron...
good to hear your doing well with ALK+, I'm doing well too and hope the rest of the club is staying safe
I'm so excited—it's time to take out the garbage. What should I wear?
So many coronavirus jokes out there, it's a pundemic.
The only jokes allowed during the coronavirus are inside jokes.
 

Hi Ron...
good to hear your doing well with ALK+, I'm doing well too and hope the rest of the club is staying safe
I'm so excited—it's time to take out the garbage. What should I wear?
So many coronavirus jokes out there, it's a pundemic.
The only jokes allowed during the coronavirus are inside jokes.
 

Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions.  How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L.  Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many. 
Stay safe.
old joke   ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab

Just wanted to say hi to all. Michelle I hope your family got through the storms ok. I’m just living life. Hope everyone is doing well. 

Congratulations Tomm! I'm still here and kicking life around! One year after Durva. Last scan was in May, tumor still at 8mm so, yay! I come on here once in awhile to see what's happening, usually not much. Fall is just around the corner. It's great to be alive!
Namaste 🙏
Roseann

Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions.  How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L.  Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many. 
Stay safe.
old joke   ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab

Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions.  How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L.  Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many. 
Stay safe.
old joke   ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab

Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions.  How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L.  Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many. 
Stay safe.
old joke   ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab

Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions.  How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L.  Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many. 
Stay safe.
old joke   ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab

Exactly one year ago I had my 26th and last Imfinzi infusion. So far so good!!  

SteveD..
more on PDL-1
PDL1 (Immunotherapy) Tests
What is a PDL1 test?
This test measures the amount of PDL1 on cancer cells. PDL1 is a protein that helps keep immune cells from attacking nonharmful cells in the body. Normally, the immune system fights foreign substances like viruses and bacteria, and not your own healthy cells. Some cancer cells have high amounts of PDL1. This allows the cancer cells to "trick" the immune system, and avoid being attacked as foreign, harmful substances.
If your cancer cells have a high amount of PDL1, you may benefit from a treatment called immunotherapy. Immunotherapy is a therapy that boosts your immune system to help it recognize and fight cancer cells. Immunotherapy has been shown to be very effective in treating certain types of cancers. It also tends to have fewer side effects than other cancer therapies.
Other names: programmed death-ligand 1, PD-LI, PDL-1 by immunohistochemistry (IHC)
What is it used for?
PDL1 testing is used to find out if you have a cancer that may benefit from immunotherapy
here is the link  https://medlineplus.gov/lab-tests/pdl1-immunotherapy-tests/
and a joke...  Atheism is a non-prophet organization
 

SteveD..
more on PDL-1
PDL1 (Immunotherapy) Tests
What is a PDL1 test?
This test measures the amount of PDL1 on cancer cells. PDL1 is a protein that helps keep immune cells from attacking nonharmful cells in the body. Normally, the immune system fights foreign substances like viruses and bacteria, and not your own healthy cells. Some cancer cells have high amounts of PDL1. This allows the cancer cells to "trick" the immune system, and avoid being attacked as foreign, harmful substances.
If your cancer cells have a high amount of PDL1, you may benefit from a treatment called immunotherapy. Immunotherapy is a therapy that boosts your immune system to help it recognize and fight cancer cells. Immunotherapy has been shown to be very effective in treating certain types of cancers. It also tends to have fewer side effects than other cancer therapies.
Other names: programmed death-ligand 1, PD-LI, PDL-1 by immunohistochemistry (IHC)
What is it used for?
PDL1 testing is used to find out if you have a cancer that may benefit from immunotherapy
here is the link  https://medlineplus.gov/lab-tests/pdl1-immunotherapy-tests/
and a joke...  Atheism is a non-prophet organization
 

SteveD 
sorry to hear about your bad reactions... I suggest you try CBD oil in a tincture, it's good for a lot of your problems. Do a search about it and talk to your doctors 1st. Most people on this Forum that had to stop Durva because of side effect did start again after a pause. Do you know your PDL-1?
good luck on your journey
 

Lindsay..
real life after Durva, as Doctors tell us after we find out we have cancer and we ask what to expect they tell us we are all different. I was NED when I started Durva and  stayed that way during my entire treatment year. I finished in March and still have some fatigue but am now able to mow my lawn and harvest my garden and  go to the grocery for my curbside pickup. My onc tells me non of his Durva patients has had a recurring cancer   after Durva is done. So real life after is great, your future is Bright.
I got results from my CT last week... still NED
Good news! There are well over 100 labs in America working on developing a vaccine.
Just wait til they get the German shepherds involved!
 
.

Lindsay..
real life after Durva, as Doctors tell us after we find out we have cancer and we ask what to expect they tell us we are all different. I was NED when I started Durva and  stayed that way during my entire treatment year. I finished in March and still have some fatigue but am now able to mow my lawn and harvest my garden and  go to the grocery for my curbside pickup. My onc tells me non of his Durva patients has had a recurring cancer   after Durva is done. So real life after is great, your future is Bright.
I got results from my CT last week... still NED
Good news! There are well over 100 labs in America working on developing a vaccine.
Just wait til they get the German shepherds involved!
 
.

Lindsay..
real life after Durva, as Doctors tell us after we find out we have cancer and we ask what to expect they tell us we are all different. I was NED when I started Durva and  stayed that way during my entire treatment year. I finished in March and still have some fatigue but am now able to mow my lawn and harvest my garden and  go to the grocery for my curbside pickup. My onc tells me non of his Durva patients has had a recurring cancer   after Durva is done. So real life after is great, your future is Bright.
I got results from my CT last week... still NED
Good news! There are well over 100 labs in America working on developing a vaccine.
Just wait til they get the German shepherds involved!
 
.

Lindsay..
real life after Durva, as Doctors tell us after we find out we have cancer and we ask what to expect they tell us we are all different. I was NED when I started Durva and  stayed that way during my entire treatment year. I finished in March and still have some fatigue but am now able to mow my lawn and harvest my garden and  go to the grocery for my curbside pickup. My onc tells me non of his Durva patients has had a recurring cancer   after Durva is done. So real life after is great, your future is Bright.
I got results from my CT last week... still NED
Good news! There are well over 100 labs in America working on developing a vaccine.
Just wait til they get the German shepherds involved!
 
.

Roseann
congratulations on joining the Done with Duva club. A year of your life is a big investment and it appears it paid off for you. 
A link on Naltrexone .. https://khn.org/news/naltrexone-addiction-medication-chronic-pain-treatment-small-doses/  
and this link is about it's use for cancer treatment https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6126779/  I get it from my naturopathic oncologist.
I was once bitten by a rabid female deer.
Now, every time there's a full moon, I turn into a weredoe.