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Rower Michelle

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  1. Like
    Rower Michelle got a reaction from DMaddox in Justin   
    See if you can find some Manuka honey with tea which does wonders for post procedure sore throats.  The higher the floral count the better.   Good luck! 
  2. Like
    Rower Michelle reacted to Deb W in Defining Treatment Outcomes   
    Tom - This is so helpful.  Thank you so much!  Now I see why I've been so confused by the terms!
  3. Like
    Rower Michelle got a reaction from ColleenRae in Pulmonary emboli   
    Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly.     New biomarker methods identified a mutation the “old” testing missed.   So hold onto hope there’s a new horizon for lung cancer survivors.   
  4. Like
    Rower Michelle reacted to Justin1970 in Justin   
    Hi Rikke thanks for the reply, the waiting is a nightmare and I'm dreading the PET SCAN and bronchoscopy and what else they might show, I really hope you start treatment soon all the best Justin 
  5. Like
    Rower Michelle got a reaction from AleHondaa in My updates (22 Years old, NSCLC)   
    Finally!  You got some well deserved good news…. So happy for you!
  6. Like
    Rower Michelle reacted to TJM in My updates (22 Years old, NSCLC)   
    Best of luck on scans. I'm one of those who also got scanned yesterday. You've heard of group think? This is group wait!
    Peace
    Tom
  7. Like
    Rower Michelle reacted to Justin1970 in Justin   
    Thank you, this is a really hard thing to swallow yet everyone on here seem so brave in comparison to me I really wish I could get some strength from somewhere I feel so hopeless to my family because they are all trying to be strong, I have started some tablets which hopefully will help the anxiety and some sleeping pills so fingers crossed thanks Justin 
  8. Like
    Rower Michelle got a reaction from Deb W in Justin   
    Hi Justin,
    I was diagnosed with lung cancer at the age of 51, three years ago.  I’m grateful for all the research as I’ve been in remission for almost two years now.  There is life with lung cancer, it’s a roller coaster in the beginning for all of us.  
    One of the books I read early on was written by long term lung cancer survivor, Greg Anderson: Cancer- 50 Things to do.   For me it was a good road map on how to sort through the chaos and find a way forward.  
    Anyone with lungs can get lung cancer… as Lou said, no one is alone here.  Step by step we will help you find the brighter days ahead. 
    Michelle
  9. Like
    Rower Michelle got a reaction from DMaddox in Pulmonary emboli   
    Yes. Indeed that is good news! 
  10. Like
    Rower Michelle reacted to LouT in Justin   
    Justin,
    Michelle nailed it!  The waiting seems interminable, but will be over and once you are fully diagnosed and a treatment plan is laid out you will certainly feel some sense of control returning to the situation.  Hang in there and stay strong.  You can do this.
    Lou
  11. Like
    Rower Michelle got a reaction from LouT in My updates (22 Years old, NSCLC)   
    Ale- you and whole lot of our peeps are up for scans today… Let’s hope for some good news, you’ve been through so much….
  12. Like
    Rower Michelle got a reaction from LouT in Justin   
    Hi Justin-
    We’re all too familiar with the whole waiting thing- it’s not easy for any of us.  There is a process and it never moves as fast as we hope it would. It seems like things are moving along as best they can so hold on as best you can.  
  13. Like
    Rower Michelle got a reaction from LouT in Pulmonary emboli   
    Yes. Indeed that is good news! 
  14. Like
    Rower Michelle got a reaction from LouT in Pulmonary emboli   
    Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly.     New biomarker methods identified a mutation the “old” testing missed.   So hold onto hope there’s a new horizon for lung cancer survivors.   
  15. Like
    Rower Michelle got a reaction from AleHondaa in My updates (22 Years old, NSCLC)   
    Ale- you and whole lot of our peeps are up for scans today… Let’s hope for some good news, you’ve been through so much….
  16. Like
    Rower Michelle reacted to AleHondaa in My updates (22 Years old, NSCLC)   
    Hey yall, today is my scan so I’m pretty nervous. Wish me luck 🤞🏼😬
  17. Like
    Rower Michelle reacted to Sillycat1957 in Durvalumab   
    Hey Michelle, getting to be that time of year again 🍂 nice to be in your thoughts, I just got some emails from Land's End with the new Fall promos 😉
    Hey Barb, hope all's well with you too 😁
    Life goes on, for that I'm grateful 💜
  18. Like
    Rower Michelle got a reaction from Sillycat1957 in Durvalumab   
    Hey Roseann- was thinking about you when the Lands End Fall catalog arrived the other day.  40% off, time to start shopping! 
  19. Like
    Rower Michelle got a reaction from Barb1260 in Durvalumab   
    Hey Barb- great to hear from you!  Dad said they are all okay In Bloomfield.  They got a little bit of water in the basement which wiped out the pilot light on the water heater.  This was the first house repair issue since Mom died.  He managed it well enough.   Glad to hear you are doing well! 
  20. Like
    Rower Michelle got a reaction from Tom Galli in Pulmonary emboli   
    Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly.     New biomarker methods identified a mutation the “old” testing missed.   So hold onto hope there’s a new horizon for lung cancer survivors.   
  21. Like
    Rower Michelle got a reaction from DMaddox in Pulmonary emboli   
    Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly.     New biomarker methods identified a mutation the “old” testing missed.   So hold onto hope there’s a new horizon for lung cancer survivors.   
  22. Like
    Rower Michelle got a reaction from Judy M2 in Pulmonary emboli   
    Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly.     New biomarker methods identified a mutation the “old” testing missed.   So hold onto hope there’s a new horizon for lung cancer survivors.   
  23. Like
    Rower Michelle reacted to DMaddox in Pulmonary emboli   
    Wow, Lexie, such incredible information.  I am blown away by the things medical science can do in these days.  How exciting!  Thank you for taking your time to explain all of what you have been through.  It sure does a newly-diagnosed person a lot of good to read there are so many options available for treatment these days.  My oncologist said, right after saying you have stage IV lung cancer, is "This is not a death sentence."  He said 15 years ago, he would have told someone in my shoes to start getting their affairs together but not anymore (not that that should be overlooked and/or set aside by any means) but just the fact that there are options.  I don't even know my TNM, I'm embarrassed to say.  I have vanilla NSCLC with no identifiable mutations as well.  I'll be thinking of you next Tuesday when we both get our scans  Here's hoping we both get good news!
  24. Like
    Rower Michelle got a reaction from ChiMama in Pulmonary emboli   
    Hello and welcome,
    Thanks for joining our group.  A few of the members in my LC support group have had PEs shortly after diagnosis, they were all hospitalized for at least a week to receive IV blood thinners and were discharged following a confirmation via CT scan the clots were responding before going onto Xarelto.  Unfortunately this is a common situation.   It is serious condition but treatable condition that requires long term medication.  

    With a stage IV diagnosis, SSDI will be approved, there is a six month waiting period before payments can be received and two years before Medicare eligibility.  It’s possible to work and earn a small amount of money each month.  The best source of information is contacting the Social Security Administration directly as the internet is loaded with misinformation.  
     
    You’ve been through a lot this summer- I hope your scans go well for you.  Keep us posted. 
     
    Michelle
  25. Like
    Rower Michelle got a reaction from LouT in Pulmonary emboli   
    Hello and welcome,
    Thanks for joining our group.  A few of the members in my LC support group have had PEs shortly after diagnosis, they were all hospitalized for at least a week to receive IV blood thinners and were discharged following a confirmation via CT scan the clots were responding before going onto Xarelto.  Unfortunately this is a common situation.   It is serious condition but treatable condition that requires long term medication.  

    With a stage IV diagnosis, SSDI will be approved, there is a six month waiting period before payments can be received and two years before Medicare eligibility.  It’s possible to work and earn a small amount of money each month.  The best source of information is contacting the Social Security Administration directly as the internet is loaded with misinformation.  
     
    You’ve been through a lot this summer- I hope your scans go well for you.  Keep us posted. 
     
    Michelle
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