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Rower Michelle got a reaction from ColleenRae in Pulmonary emboli
Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly. New biomarker methods identified a mutation the “old” testing missed. So hold onto hope there’s a new horizon for lung cancer survivors.
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Rower Michelle got a reaction from LouT in My updates (22 Years old, NSCLC)
Ale- you and whole lot of our peeps are up for scans today… Let’s hope for some good news, you’ve been through so much….
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Rower Michelle reacted to AleHondaa in My updates (22 Years old, NSCLC)
Hey yall, today is my scan so I’m pretty nervous. Wish me luck 🤞🏼😬
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Rower Michelle reacted to Sillycat1957 in Durvalumab
Hey Michelle, getting to be that time of year again 🍂 nice to be in your thoughts, I just got some emails from Land's End with the new Fall promos 😉
Hey Barb, hope all's well with you too 😁
Life goes on, for that I'm grateful 💜
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Rower Michelle got a reaction from Sillycat1957 in Durvalumab
Hey Roseann- was thinking about you when the Lands End Fall catalog arrived the other day. 40% off, time to start shopping!
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Rower Michelle got a reaction from Barb1260 in Durvalumab
Hey Barb- great to hear from you! Dad said they are all okay In Bloomfield. They got a little bit of water in the basement which wiped out the pilot light on the water heater. This was the first house repair issue since Mom died. He managed it well enough. Glad to hear you are doing well!
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Rower Michelle got a reaction from LouT in Pulmonary emboli
Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly. New biomarker methods identified a mutation the “old” testing missed. So hold onto hope there’s a new horizon for lung cancer survivors.
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Rower Michelle got a reaction from Tom Galli in Pulmonary emboli
Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly. New biomarker methods identified a mutation the “old” testing missed. So hold onto hope there’s a new horizon for lung cancer survivors.
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Rower Michelle got a reaction from DMaddox in Pulmonary emboli
Just to give some perspective as to how fast the research is moving…. Three years ago I was told upon learning my stage IV diagnosis to get my affairs in order…quickly. New biomarker methods identified a mutation the “old” testing missed. So hold onto hope there’s a new horizon for lung cancer survivors.
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Rower Michelle reacted to DMaddox in Pulmonary emboli
Wow, Lexie, such incredible information. I am blown away by the things medical science can do in these days. How exciting! Thank you for taking your time to explain all of what you have been through. It sure does a newly-diagnosed person a lot of good to read there are so many options available for treatment these days. My oncologist said, right after saying you have stage IV lung cancer, is "This is not a death sentence." He said 15 years ago, he would have told someone in my shoes to start getting their affairs together but not anymore (not that that should be overlooked and/or set aside by any means) but just the fact that there are options. I don't even know my TNM, I'm embarrassed to say. I have vanilla NSCLC with no identifiable mutations as well. I'll be thinking of you next Tuesday when we both get our scans Here's hoping we both get good news!
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Rower Michelle got a reaction from ChiMama in Pulmonary emboli
Hello and welcome,
Thanks for joining our group. A few of the members in my LC support group have had PEs shortly after diagnosis, they were all hospitalized for at least a week to receive IV blood thinners and were discharged following a confirmation via CT scan the clots were responding before going onto Xarelto. Unfortunately this is a common situation. It is serious condition but treatable condition that requires long term medication.
With a stage IV diagnosis, SSDI will be approved, there is a six month waiting period before payments can be received and two years before Medicare eligibility. It’s possible to work and earn a small amount of money each month. The best source of information is contacting the Social Security Administration directly as the internet is loaded with misinformation.
You’ve been through a lot this summer- I hope your scans go well for you. Keep us posted.
Michelle
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Rower Michelle got a reaction from LouT in Pulmonary emboli
Hello and welcome,
Thanks for joining our group. A few of the members in my LC support group have had PEs shortly after diagnosis, they were all hospitalized for at least a week to receive IV blood thinners and were discharged following a confirmation via CT scan the clots were responding before going onto Xarelto. Unfortunately this is a common situation. It is serious condition but treatable condition that requires long term medication.
With a stage IV diagnosis, SSDI will be approved, there is a six month waiting period before payments can be received and two years before Medicare eligibility. It’s possible to work and earn a small amount of money each month. The best source of information is contacting the Social Security Administration directly as the internet is loaded with misinformation.
You’ve been through a lot this summer- I hope your scans go well for you. Keep us posted.
Michelle
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Rower Michelle got a reaction from Deb W in Justin
Hi Justin,
I was diagnosed with lung cancer at the age of 51, three years ago. I’m grateful for all the research as I’ve been in remission for almost two years now. There is life with lung cancer, it’s a roller coaster in the beginning for all of us.
One of the books I read early on was written by long term lung cancer survivor, Greg Anderson: Cancer- 50 Things to do. For me it was a good road map on how to sort through the chaos and find a way forward.
Anyone with lungs can get lung cancer… as Lou said, no one is alone here. Step by step we will help you find the brighter days ahead.
Michelle
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Rower Michelle got a reaction from Tom Galli in Pulmonary emboli
Hello and welcome,
Thanks for joining our group. A few of the members in my LC support group have had PEs shortly after diagnosis, they were all hospitalized for at least a week to receive IV blood thinners and were discharged following a confirmation via CT scan the clots were responding before going onto Xarelto. Unfortunately this is a common situation. It is serious condition but treatable condition that requires long term medication.
With a stage IV diagnosis, SSDI will be approved, there is a six month waiting period before payments can be received and two years before Medicare eligibility. It’s possible to work and earn a small amount of money each month. The best source of information is contacting the Social Security Administration directly as the internet is loaded with misinformation.
You’ve been through a lot this summer- I hope your scans go well for you. Keep us posted.
Michelle
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Rower Michelle got a reaction from Tom Galli in Durvalumab
Hey there! I miss your jokes! So glad to hear that you’re doing well! I can’t believe how many years it’s been. That’s great news! I hope you had a fabulous summer at the farmer’s market!!! Carry on…
Michelle
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Rower Michelle got a reaction from LexieCat in Pulmonary emboli
Hello and welcome,
Thanks for joining our group. A few of the members in my LC support group have had PEs shortly after diagnosis, they were all hospitalized for at least a week to receive IV blood thinners and were discharged following a confirmation via CT scan the clots were responding before going onto Xarelto. Unfortunately this is a common situation. It is serious condition but treatable condition that requires long term medication.
With a stage IV diagnosis, SSDI will be approved, there is a six month waiting period before payments can be received and two years before Medicare eligibility. It’s possible to work and earn a small amount of money each month. The best source of information is contacting the Social Security Administration directly as the internet is loaded with misinformation.
You’ve been through a lot this summer- I hope your scans go well for you. Keep us posted.
Michelle
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Rower Michelle got a reaction from DMaddox in Pulmonary emboli
Hello and welcome,
Thanks for joining our group. A few of the members in my LC support group have had PEs shortly after diagnosis, they were all hospitalized for at least a week to receive IV blood thinners and were discharged following a confirmation via CT scan the clots were responding before going onto Xarelto. Unfortunately this is a common situation. It is serious condition but treatable condition that requires long term medication.
With a stage IV diagnosis, SSDI will be approved, there is a six month waiting period before payments can be received and two years before Medicare eligibility. It’s possible to work and earn a small amount of money each month. The best source of information is contacting the Social Security Administration directly as the internet is loaded with misinformation.
You’ve been through a lot this summer- I hope your scans go well for you. Keep us posted.
Michelle
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Rower Michelle reacted to Sillycat1957 in Durvalumab
Congratulations Tomm! I'm still here and kicking life around! One year after Durva. Last scan was in May, tumor still at 8mm so, yay! I come on here once in awhile to see what's happening, usually not much. Fall is just around the corner. It's great to be alive!
Namaste 🙏
Roseann
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Rower Michelle reacted to catlady91 in Justin
Hi Justin, I'm from the UK as well. My mum was told she had lung cancer before they did the biopsy- it seems to be common practice in the UK. It turns out they were right anyway. As difficult it is to process a lung cancer diagnosis it's not all doom and gloom. Do not believe everything you read on the internet- the statistics are outdated and so many treatments have been approved for lung cancer over the past few years. The very first consultant told my mum that 10/15 years ago her prognosis would have been very poor but nowadays treatment has come far. My mum was diagnosed with stage 3B lung cancer in Feb 2020 and now she's currently NED (no evidence of disease). Her oncologist thinks that she's in an excellent state and mum is currently away on holiday enjoying life! Mum is 72 but they gave her the most aggressive treatment plus immunotherapy.
Don't lose hope. This is a fantastic site. The people on here are so positive and helpful. There are people on here who have been living with stage 4 lung cancer for years. Positive attitude is everything. It's as scary as hell when you or a loved one is diagnosed but it gets better. I was so terrified and scared. I saw cancer as the ultimate death sentence but nowadays it's not. Treatments for cancer especially lung cancer are getting better and better.
Please keep us updated. We are here for you. This group really lifted my spirits and gave me hope in my darkest days so stick with us. We're going through this journey together. Make sure that you are an advocate for yourself and find an oncologist that you trust and believes in you. My mum had some awful doctors but her oncologist now is amazing. In the UK it's not as common to get a second opinion or switch doctors but if you're not satisfied with the doctor or their care and attitude, don't be afraid to fight and switch to another one.
All the best. The first part is scary but the storm will finally blow over.
Monica xx
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Rower Michelle got a reaction from DMaddox in Justin
Hi Justin,
I was diagnosed with lung cancer at the age of 51, three years ago. I’m grateful for all the research as I’ve been in remission for almost two years now. There is life with lung cancer, it’s a roller coaster in the beginning for all of us.
One of the books I read early on was written by long term lung cancer survivor, Greg Anderson: Cancer- 50 Things to do. For me it was a good road map on how to sort through the chaos and find a way forward.
Anyone with lungs can get lung cancer… as Lou said, no one is alone here. Step by step we will help you find the brighter days ahead.
Michelle
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Rower Michelle got a reaction from LouT in Justin
Hi Justin,
I was diagnosed with lung cancer at the age of 51, three years ago. I’m grateful for all the research as I’ve been in remission for almost two years now. There is life with lung cancer, it’s a roller coaster in the beginning for all of us.
One of the books I read early on was written by long term lung cancer survivor, Greg Anderson: Cancer- 50 Things to do. For me it was a good road map on how to sort through the chaos and find a way forward.
Anyone with lungs can get lung cancer… as Lou said, no one is alone here. Step by step we will help you find the brighter days ahead.
Michelle
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Rower Michelle got a reaction from AleHondaa in My updates (22 Years old, NSCLC)
Hi Ale, Given what you’ve been through over the last few months, you are being a real trooper through the chemo. Tell your doc about the nausea & fatigue to see if there is something to change up the meds they are giving you. Maybe a tweak will help? Always good to hear from you- hang in there as best you can… we’re all rooting for you.
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Rower Michelle got a reaction from Tom Galli in My updates (22 Years old, NSCLC)
Hi Ale, Given what you’ve been through over the last few months, you are being a real trooper through the chemo. Tell your doc about the nausea & fatigue to see if there is something to change up the meds they are giving you. Maybe a tweak will help? Always good to hear from you- hang in there as best you can… we’re all rooting for you.
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Rower Michelle reacted to AleHondaa in My updates (22 Years old, NSCLC)
Hey all!
Update for everyone, today I’ll be getting my fourth dose of enhertu. After this dose I’ll be due for more pictures to see how everything is going. Hopefully I’m due for some good news like I’m been hoping for and continue this treatment. Lately I’ve been pretty fatigued and nauseous so lying down has been my remedy most of the time. I’ll update you guys with results once I get them, fingers crossed 🤞🏼