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Curt

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  1. Like
    Curt reacted to St Michael in Interesting Article   
    Good afternoon everyone. I came across this article this morning and found it interesting since it mentions its potential efficacy against NSCLC.
    https://finance.yahoo.com/news/progress-report-cancer-breakthroughs-2020-130000224.html
    Have a good day.
  2. Haha
    Curt got a reaction from Susan Cornett in Scan Time (again)   
    Why did the chicken cross the road?  No one knows, but the road sure was pissed.   

    I figured a joke would go further than any of the advice I could give.  You’ve probably received or given it all at this point.  Prayers, positive thoughts, good ju ju amd karma all heading your way.   
    My wife and I got engaged on Amelia Island on the beach.   Cumberland Island is a great day trip.  Wild horses can be found on the beaches there.  We haven’t been back since but we talk about doing it at some point.   
  3. Haha
    Curt got a reaction from DFK in Scan Time (again)   
    Why did the chicken cross the road?  No one knows, but the road sure was pissed.   

    I figured a joke would go further than any of the advice I could give.  You’ve probably received or given it all at this point.  Prayers, positive thoughts, good ju ju amd karma all heading your way.   
    My wife and I got engaged on Amelia Island on the beach.   Cumberland Island is a great day trip.  Wild horses can be found on the beaches there.  We haven’t been back since but we talk about doing it at some point.   
  4. Haha
    Curt got a reaction from Rower Michelle in Scan Time (again)   
    Why did the chicken cross the road?  No one knows, but the road sure was pissed.   

    I figured a joke would go further than any of the advice I could give.  You’ve probably received or given it all at this point.  Prayers, positive thoughts, good ju ju amd karma all heading your way.   
    My wife and I got engaged on Amelia Island on the beach.   Cumberland Island is a great day trip.  Wild horses can be found on the beaches there.  We haven’t been back since but we talk about doing it at some point.   
  5. Like
    Curt reacted to Steff in Possible recurrence   
    St Michael,
    I've been keeping track of your mom's lung cancer recurrence journey here.  I finally feel like I might have something helpful to share.  My message is one of HOPE.  I received a punch in the gut when my mom was diagnosed with her lung cancer recurrence 3 years ago, 1 year after finishing treatment for NSCLC adenocarcinoma, stage 3a.  Her lung cancer recurred on the back of her trachea, closing it to about 30% airflow and requiring a stent.  At original diagnosis, testing for mutations was too new, but with her recurrence, she found that she had a high PD-L1 level and was a good candidate for immunotherapy.  So, not only was my mom diagnosed with lung cancer AGAIN, their treatment recommendation was not the traditional one (chemo and radiation), they were suggesting this new, fancy immunotherapy drug.  I was doubly scared and feared the worst.  It took me nearly a year to calm down and accept that my mom had lung cancer again. That is where I began to understand that these days, lung cancer is often being treated as a chronic disease (as you mentioned).  My mom already has a couple of chronic conditions - rheumatoid arthritis and diabetes, what's another one! lol   My mom's road to NED was not a walk in the park, but she made it.  
    We have just surpassed 4 years since initial diagnosis.  My mom has decided to call herself a lung cancer survivor rather than saying "I have lung cancer".  According to the statistics, my mom isn't supposed to be here.  Nor are many others on this forum.  Statistics/progression free survival/etc is not who your mom is, nor does it define my mom.  Originally, my mom asked her doc if she was just buying time.  Her doc said "yes".  Well, the time that my mom "bought" has been great.  She lives her life to the fullest and has recently tried new things like painting and going to hockey games.  Honestly, we both feel that our lives are fuller because my mom is a lung cancer survivor.  The journey here was hell and I definitely would not have said this 2 years ago. This is probably not the last time my  mom has to deal with lung cancer.  We've both accepted that, but when it does recur, we know that treatment advances with again help her to buy time.  
    I know that your mom has a long road ahead, but please know there is HOPE.
    Take Care, 
    Steff
  6. Like
    Curt got a reaction from LouT in First Timer   
    Hello Charmaigne,  
    Welcome.   I’m sorry to hear about your diagnosis and your moms passing.  My father passed from LC in October 2013.  I was diagnosed last year at an early stage.   Having been a caregiver and now a patient gives some helpful perspective on this forum.  There will be opportunities to give and get support where needed.   
  7. Like
    Curt reacted to Opal in Durvalumab   
    DFK, you must be counting the days by now. I know I did. Time seems to fly except when you want it to. Just think, 2 weeks from now at this time Durva will be behind you. Congrats on a mission well accomplished.
    I vote you and Rower get together and  take your knowledge, encouragement and gift you both seem to have to help others with your words, and travel the world, or at least across the States, cheering others like us on.  
    Giving thanks,
    Opal
  8. Like
    Curt reacted to DFK in Durvalumab   
    Dear dear Opal, 
    What an absolutely endearing sentiment to say about me and Michelle. And yes, chomping at the bit just doesn't quite come close enough to describing how I'm looking forward to my last Durvalumab infusion. A "C" rights of passage. It's been a heck of a year.....I tasked myself to keep all my appointments and to keep my wits about me. If push came to shove, I really can't say what task was harder.
    As Tom G has alluded to many times, we need to live our lives fully each and every day. Allow for our physical challenges but do what we can, when we can. And always smile and laugh in the face of adversity (sometimes, in between the tears). That strategy was gifted to me early on in my journey. I am blessed. 
    As we amble forward, we'll have lots to take notes on and compare as others pull us forward, as we pull others along.
    Take Care, DFK
     
  9. Like
    Curt reacted to DFK in First Timer   
    Hi Charmaigne,

    First and foremost, welcome to Lungevity, and thank you for taking the time to join this forum. I have been a member since August of 2019 in search of information after being diagnosed in August of 2018 with NSCLC Stage 3A. I do not have any biomarkers so my treatment plan involved chemo and radiation followed by one year of Immunotherapy. My one year of immunotherapy will be ending in a week. I usually post under Immunotherapy and find that sharing my experiences and reading of others experiences has been very helpful. 
    Our journey, so individual and yet so similar. We are all here to support each other so feel free, and let her rip. You are safe here to air all of your questions, your fears, your concerns, your triumphs and whatever may be foremost in your mind. 
    My heart ached when I read that your mom passed away in 2018. My sincere condolences. It must have extraordinarily difficult knowing you both were diagnosed within a month of each other. 
     
    Take Care, DFK
     
     
  10. Like
    Curt reacted to Rower Michelle in First Timer   
    Hi Charmaigne, 
    Welcome to our group, so glad you found us.  I’m sorry for the loss of your mother and your diagnosis.  I was diagnosed with the ALK mutation in September, 2018 and take Alectinib.  
    We can talk about anything here, there’s a lot a wisdom and support to help us manage our day to day lives.  Look forward to getting to know you!
    Michelle
     

     
     
  11. Like
    Curt got a reaction from Barb1260 in Happy Holidays to all!   
    @LouT life has a way of continuing to knock us down.  Here’s to getting back up...again.   
  12. Like
    Curt got a reaction from Deb W in Happy New Year - 308 Days Post Lobectomy   
    It’s been 308 days since I had an upper right lobe lobectomy.   I’m spending this New Years Eve with my wife and three sons (7, 9 and 11) at an indoor water park.  Walking the stairs probably isn’t like it would have been last year but I’m able to do it and here to enjoy it.   I’ll add making it easier to climb stairs to the list of resolutions (I’ve got a few).   Another year in the books.  I hope 2020 is a little healthier, a littler easier and a lot happier for everyone here.  ❤️🌟💫💪🏼🥊💥🥂
  13. Like
    Curt got a reaction from Mally in Mally   
    Awesome!
  14. Like
    Curt reacted to Mally in Mally   
    Well I got my results of my scan today and all is good with no new spots anywhere so NED is feeling pretty good right now and I hope you are all doing well too ...my only problem is this inflammatory pain which is not comfortable but a common side effect and if I use my cold pack on my shoulder and neck it soon settles so forward march and I'm planning a holiday for my birthday in march and my 4 kids and partners and lots of my grandkids are coming for a trip down memory lane to the little town I lived my first 10 yrs of life in and i cant wait to watch my grandkids swim in the same swimming pool that i swam in all those years ago and to visit the school that i started in ....sorry about the ramble but makes me feel good ...
  15. Like
    Curt got a reaction from Mally in Happy New Year - 308 Days Post Lobectomy   
    It’s been 308 days since I had an upper right lobe lobectomy.   I’m spending this New Years Eve with my wife and three sons (7, 9 and 11) at an indoor water park.  Walking the stairs probably isn’t like it would have been last year but I’m able to do it and here to enjoy it.   I’ll add making it easier to climb stairs to the list of resolutions (I’ve got a few).   Another year in the books.  I hope 2020 is a little healthier, a littler easier and a lot happier for everyone here.  ❤️🌟💫💪🏼🥊💥🥂
  16. Like
    Curt got a reaction from Kate7617 in Kate7617   
    @Kate7617 my father battled cancer and now I have.   I’ve told this story here before.  When my dad was sick I was always trying to be strong around him.  I didn’t want him to know I was upset so it wouldn’t upset him.  I thought that was helping him.  I’d hold it all in until I left his house or hospital room and then fall apart.  Eventually I fell apart in front of him and he was genuinely surprised.  He told me that he didn’t think anyone was that upset.   I had to tell him that we were all devastated but wanted to be strong from him.  After that exchange I looked for ways to share my concern and hurt with him in ways that let him know I cared but didn’t put the burden of my devastation on him.   I’m sure I didn’t balance it well, but I did the best I can.   
     
    Fast forward to my own diagnosis, what I have found is that after the explosion that comes from diagnosis and initial treatments is the world kind of returns to where it was.   People get back to their lives and the world keeps moving.   It was upsetting to see that while my world was still in such turmoil.   I’d ask myself how can everyone else’s world keep going while mine feels like it’s falling apart?  I still struggle with it sometimes.  Other times I appreciate the fact that the word is continuing for the people I care about and I remember that just because I didn’t show my dad how upset I was didn’t mean I wasn’t.  It just meant I was trying to maintain a sense of “normalcy” for his sake.  
  17. Like
    Curt got a reaction from G.A.M. in Tick-tock, tick-tock.   
    This phase of diagnosis is definitely all consuming.  Things do settle in once a clear path and treatment plan are formed.   There are plenty of variables to consider when evaluating both those options.  If you have specific questions on either ask away.   There are plenty of us here who have been through one or both.   
  18. Like
    Curt got a reaction from Opal in Kate7617   
    @Kate7617 my father battled cancer and now I have.   I’ve told this story here before.  When my dad was sick I was always trying to be strong around him.  I didn’t want him to know I was upset so it wouldn’t upset him.  I thought that was helping him.  I’d hold it all in until I left his house or hospital room and then fall apart.  Eventually I fell apart in front of him and he was genuinely surprised.  He told me that he didn’t think anyone was that upset.   I had to tell him that we were all devastated but wanted to be strong from him.  After that exchange I looked for ways to share my concern and hurt with him in ways that let him know I cared but didn’t put the burden of my devastation on him.   I’m sure I didn’t balance it well, but I did the best I can.   
     
    Fast forward to my own diagnosis, what I have found is that after the explosion that comes from diagnosis and initial treatments is the world kind of returns to where it was.   People get back to their lives and the world keeps moving.   It was upsetting to see that while my world was still in such turmoil.   I’d ask myself how can everyone else’s world keep going while mine feels like it’s falling apart?  I still struggle with it sometimes.  Other times I appreciate the fact that the word is continuing for the people I care about and I remember that just because I didn’t show my dad how upset I was didn’t mean I wasn’t.  It just meant I was trying to maintain a sense of “normalcy” for his sake.  
  19. Like
    Curt reacted to Steff in Kate7617   
    Kate,
    I am sorry you are feeling that you have no support from your family.  DFK and Curt have some really good points.  As a caregiver and very caring person, I have often found myself at a loss for words when dealing with my mom's cancer journey.  Some of it is due to being overwhelmed, other times it's from pure exhaustion.  The reality is that lots of folks don't deal with other people's pain/suffering/negative feelings/etc very well.  Perhaps your daughter-in-laws are included in this group.  But no matter how supportive or unsupportive a person is, those of us on the "outside" of lung cancer have a hard time figuring out the best way to help.  Most of us need to be told what to do and how to help.  Have you done that? Have you been specific in telling people what your needs are?  While with your family, are you acting like all is okay even though it might not be? If so, your family might be taking this cue from you and acting as if all is okay too.  Asking for help or telling your daughter-in-laws what you need from them does not mean they will be "fake" if/when they change their behavior.  Perhaps all they needed was to be told what their role is in your battle.  
    I hope you are able to get the support you want from somewhere, whether it is from your family, friends, a support group, or here.  
    Take Care,
    Steff
  20. Like
    Curt got a reaction from Rower Michelle in Kate7617   
    @Kate7617 my father battled cancer and now I have.   I’ve told this story here before.  When my dad was sick I was always trying to be strong around him.  I didn’t want him to know I was upset so it wouldn’t upset him.  I thought that was helping him.  I’d hold it all in until I left his house or hospital room and then fall apart.  Eventually I fell apart in front of him and he was genuinely surprised.  He told me that he didn’t think anyone was that upset.   I had to tell him that we were all devastated but wanted to be strong from him.  After that exchange I looked for ways to share my concern and hurt with him in ways that let him know I cared but didn’t put the burden of my devastation on him.   I’m sure I didn’t balance it well, but I did the best I can.   
     
    Fast forward to my own diagnosis, what I have found is that after the explosion that comes from diagnosis and initial treatments is the world kind of returns to where it was.   People get back to their lives and the world keeps moving.   It was upsetting to see that while my world was still in such turmoil.   I’d ask myself how can everyone else’s world keep going while mine feels like it’s falling apart?  I still struggle with it sometimes.  Other times I appreciate the fact that the word is continuing for the people I care about and I remember that just because I didn’t show my dad how upset I was didn’t mean I wasn’t.  It just meant I was trying to maintain a sense of “normalcy” for his sake.  
  21. Like
    Curt reacted to DFK in Kate7617   
    Happy New Year Kate,
    Good to hear from you and to get an update of where you're at. I can truly appreciate your concerns of no treatment with still a "trace" of cancer, however, chemo/radiation has been a good standard of care for years before Durvalumab or targeted therapy came along. My girlfriends dad is 7 years NED after receiving only the chemo and radiation combo, Stage 3b inoperable. He is an inspiration for hope and prayers. 
    Although it's nice to have family and friends inquire about our health and show initiative to assist in some of our needs, whether physical or emotional, sometimes the harsh reality is that not everyone can be empathetic or feel comfortable talking about the big "C". It appears that having a cancer diagnosis not only asks of us to deal with all the medical treatments and all that that entails but it also asks that we dig deep within to find our own core of strength to help us through the dark nights of the soul. This is especially true for those of us who may not have a primary caregiver and partner/spouse. 
    I find it difficult NOT to get philosophical about our journey with cancer, about setting our priorities and values in order and making my life meaningful.
    I'll keep you in my prayers. Take care, DFK
     
  22. Like
    Curt got a reaction from LUNGevityKristin in Happy New Year - 308 Days Post Lobectomy   
    It’s been 308 days since I had an upper right lobe lobectomy.   I’m spending this New Years Eve with my wife and three sons (7, 9 and 11) at an indoor water park.  Walking the stairs probably isn’t like it would have been last year but I’m able to do it and here to enjoy it.   I’ll add making it easier to climb stairs to the list of resolutions (I’ve got a few).   Another year in the books.  I hope 2020 is a little healthier, a littler easier and a lot happier for everyone here.  ❤️🌟💫💪🏼🥊💥🥂
  23. Like
    Curt reacted to Roz in Happy New Year   
    Let's all strive for a new year with improved health and more cancer research that will benefit all of us!!
     
    Best,
    Ro
  24. Like
    Curt reacted to Lisa66 in Happy New Year - 308 Days Post Lobectomy   
    Good for you!!! May this year be the best for you and your family.
    Prayers
    Lisa
  25. Like
    Curt reacted to Donna G in Happy New Year - 308 Days Post Lobectomy   
    Curt, celebrating the new year having fun and with your loving family ---
    that begins a Happy New Year .  Thanks for sharing.
    I pray your New Year continues just like that. 
    Donna G
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