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Barb1260

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Posts posted by Barb1260

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Tomm-#2 yesterday. I was fine until mid morning today and the fatigue came on suddenly. Right now I could use a nap but that won’t go over well with my boss. What are they doing for your thyroid? And is a fever a side effect?  And no matter how much I eat I am always hungry. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Hi Tomm. I’m a little tired but nothing out of the ordinary. Having a little stomach issue today but not sure if it’s related. Could be the huge slice of pepperoni pizza I had last night. Greasy food sometimes gets me so I’ll see how I feel tomorrow. Hope you get over the fatigue fast. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    DHey Charles. Thanks for all the knowledge and not insulted at all. Only thing the Onc’s office told me was watch for colitis symptoms, shortness of breath and coughing and anything new. So I’ll be vigilant. Planning on joining the lighthouse tonight and reading up on it all. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Thanks Charles. I will read through all. Just nervous about what to worry about and when to worry about side effects. How do you know it’s minor inflammation?  

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    So the port check with the dye revealed no leaks, kinks or clots.  Was advised by the doc doing the check that it most certainly can be soft tissue and nerve irritation from the port.  Prednisone is done. Onto the Durvalumab tomorrow-finally. Can one of you tell me if your side effects start at a predictable time, do they go away after a few days and start again with the next infusion?  Am I going to lose more hair? cause it hasn’t grown back all the way yet. Getting nervous about this 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Thanks for the support. I honestly can’t complain. Others are far worse off than I am. My minor issues are temporary. I’m thankful I wake up, can breathe, have a job to go to because lord knows I gotta have a place to go every day to keep me sane. Now to figure out how to get a beach trip squeezed in somewhere. 🏖

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Just as I thought, no Imfinzi today. Finishing 4 more days of prednisone. But I get to go to the hospital tomorrow to have my port checked with dye because of the shoulder and neck issue. If it’s the port will change it then. So no eating breakfast. Waiting, waiting, waiting. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Just as I thought, no Imfinzi today. Finishing 4 more days of prednisone. But I get to go to the hospital tomorrow to have my port checked with due because of the shoulder and neck issue. If it’s the port will change it then. So no eating breakfast. Waiting, waiting, waiting. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    The oncologist and pulmonologist spoke on the phone while I was standing there. They decided together to knock it out before the Durvalumab because it can be a side effect of the Durvalumab and I guess they want to start with a clean slate. All the docs are in contact because of the newness of immunotherapy and basically are still learning themselves because there is not a lot of history. Guess we can call them trail blazer guides. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Lucky I am. Most of the time I can go with the flow, other times I just want to give up when I’m stuck in the same place and not moving forward.  Nerve wracking to wonder what’s going on inside your body when there’s a setback. Guess I’ll find out at the Oncologist office Thursday. Enjoy the weekend 😎

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    1 hour ago, Charles said:

    Barb,

    Sorry to hear about the pneumonitis. Charles

    Thanks Charles. It’s very minor, asymptomatic. Doing the 2 steps forward one step back dance seems to be the norm with my treatment. Just want to get on with it. 

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Just at the pulmonologist, putting me on prednisone for the inflammation which he is calling radiation pneumonitis. Can you be on prednisone and take the Durvalumab?  Thanks to you knowledgeable gents. 

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