Barb1260
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Posts posted by Barb1260
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Tomm, no music for me. That’s nap time 😴
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Hi BC Joe. That sunburn might be from the radiation. I developed that kind of spot on my back 2 months after and before the Imfinzi was started. I just happened to have a follow up visit at the radiologist office and the physicians assistant said it was definitely from the radiation. Welcome aboard. I’m at #8. Hoping you have a non eventful journey.
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DFK-I too have gained 15 lbs since this whole adventure began. My thyroid is in the normal range and my eating habits are healthier than before. Doc can’t explain it either. I’m betting it’s the Imfinzi and they just don’t have it as a common side effect yet. Still better than the alternative. Just got to increase my walking miles.
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Hi DFK. My insurance states I can get scans every 3 months for the first 2 years, then every 6 months until 5 years. If there is an issue and a scan is needed for diagnosis, they usually have to have a peer to peer phone conversation to give details why it’s needed.
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Sorry this is so difficult for you Tomm. Hopefully it will all straighten out and you can continue until the end.
- Rower Michelle and Charles
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Hey Tomm. Yup #7 today. Not really having any side effects. Can’t even say I’m fatigued. I feel more tired from the Benadryl they give me before the Imfinzi than any other time in the 2 weeks between. Other than that I feel normal. How are you doing?
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Woohoo. Brain MRI came back clean. That with the PET results a few weeks ago is making me believe this Durva stuff is doing what it’s supposed to. Only 19 more to go!!!
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Well the onc is so pleased with the PET results that I just have to keep going for the infusions and see her after the next CT end of September. Asked her if the Durvalumab causes weight gain, she said no but being cancer free can. Don’t think she means I’m NED yet, I think she’s referring to the little activity left in the tumor.
Anybody have head pain that comes and goes or a feeling of pressure in your head? I’m getting a CT on Monday to check it out
- Robert Macaulay, PaulaC and Tomm
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Robert-how have your scans been?
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Tomm-what is Amor?
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Tomm-so far my thyroid numbers are good. I nap during my infusion with a warm blanket because it’s a refrigerator in the infusion room. Then I treat myself to Starbucks for a large iced coffee and a snack on my ride to work.
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Hey Tomm. Going for #6 tomorrow. Got my results for last weeks PET/CT. lymph node is inactive and no longer large-death to that spot of cancer. Main tumor is now 2.8cm and not very active. Radiologist gave me the lowdown on Tuesday. Small pleural effusion-he wasn’t concerned about it but he showed me the pic, it’s very small compared to other pics I’ve seen. Will get onc’s opinion on that tomorrow.
I actually flew north this past weekend and had no problem with fatigue like I thought I would. I’m feeling normal almost-whatever normal is. Enjoy the weekend
- PaulaC, Tomm, Robert Macaulay and 1 other
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Durvalumab
in IMMUNOTHERAPY
Posted
Ron-congratulations on the brain being ok. Sorry about the tumor issue, I am keeping my fingers crossed that it’s an infection or some other benign issue. I don’t get cortisol testing but I’m going to discuss this next week. I don’t understand why I’m gaining so much weight when I’m counting every calorie and fat and carb and eating way less than the app I’m using says I should be eating. Keep us posted!