Babs

I’m shocked and saddened to hear this.  I’m glad she was at peace and pain free. It seemed to happen so fast. She seemed to be doing pretty good not that long ago, but that’s what this nasty disease does.  May you and your family find comfort in how she passed and how she lived!  Prayers to you all,
 
Babs

I’m shocked and saddened to hear this.  I’m glad she was at peace and pain free. It seemed to happen so fast. She seemed to be doing pretty good not that long ago, but that’s what this nasty disease does.  May you and your family find comfort in how she passed and how she lived!  Prayers to you all,
 
Babs

Steph,
My heart goes out to your family. I know you grieve your mom’s loss but battling lung cancer is so difficult. Sadly, cancer often wins. 
I applaud supporting your mom’s hospice decision. She knew best about treatment mayhem. Often, families try to push for more treatment. There is a tipping point in this disease and your mom knew it. Thank you for respecting her wishes. 
 
I feel like there is a vast hole in our forum community. Your mom was a pillar of support offering wise advice for everyone here. She helped so many. We morn her passing and honor her memory. 
Stay the course. 
Tom

I’m shocked and saddened to hear this.  I’m glad she was at peace and pain free. It seemed to happen so fast. She seemed to be doing pretty good not that long ago, but that’s what this nasty disease does.  May you and your family find comfort in how she passed and how she lived!  Prayers to you all,
 
Babs

Steph,
 
I am so very sorry to learn of what is going on.  She sure is brave.  She has helped me tremendously along the way as well as many others as you can see.  Please let us all know if there’s anything we can do.  Sending hugs and prayers to all of you.
Babs

Steph,
 
I am so very sorry to learn of what is going on.  She sure is brave.  She has helped me tremendously along the way as well as many others as you can see.  Please let us all know if there’s anything we can do.  Sending hugs and prayers to all of you.
Babs

Steph,
 
I am so very sorry to learn of what is going on.  She sure is brave.  She has helped me tremendously along the way as well as many others as you can see.  Please let us all know if there’s anything we can do.  Sending hugs and prayers to all of you.
Babs

Hi Steph,
Glad to hear about your Mom.  Hoping things are improving.  Do you have anymore info to share?  I don’t want to pry but she has helped me and many more on this site, we are just concerned.  Sending hugs and positive thoughts your way.  
 
Babs

Hi Steph,
Glad to hear about your Mom.  Hoping things are improving.  Do you have anymore info to share?  I don’t want to pry but she has helped me and many more on this site, we are just concerned.  Sending hugs and positive thoughts your way.  
 
Babs

Hi Steph,
Glad to hear about your Mom.  Hoping things are improving.  Do you have anymore info to share?  I don’t want to pry but she has helped me and many more on this site, we are just concerned.  Sending hugs and positive thoughts your way.  
 
Babs

Hi Steph,
Glad to hear about your Mom.  Hoping things are improving.  Do you have anymore info to share?  I don’t want to pry but she has helped me and many more on this site, we are just concerned.  Sending hugs and positive thoughts your way.  
 
Babs

Hi Justin,
I had terrible pain when I ate at the end of my radiation.  I used Magic Mouthwash and it helped long enough for me to eat a meal.  It’s a prescription that I would drink before a meal.  Lidocaine and a couple other things.  Not sure if they have it over there but it’s worth a shot.  Good luck
Babs

Hi Justin,
I had terrible pain when I ate at the end of my radiation.  I used Magic Mouthwash and it helped long enough for me to eat a meal.  It’s a prescription that I would drink before a meal.  Lidocaine and a couple other things.  Not sure if they have it over there but it’s worth a shot.  Good luck
Babs

I had my 10th treatment today.  Very quiet!  Greeted at the front door by the health care worker with the mask, gloves and gown with a clipboard.  Had to answer 4-6 questions about fever, symptoms, travel, etc.  If you answer no to all, you are allowed to proceed to your appointment.  I was told later if you answered yes to any, you would not be allowed to enter and advised of your next steps.  
 
My BP was unusually high, I think due to the fact I was nervous about being there.  I told my nurse I really thought hard about whether it was smarter to forgo 1 treatment to try and avoid the virus or not?  She didn’t disagree.  Sad it’s come to that!  Glad our treatments are still essential services, I’m sure they will stay that way. 
 
All be safe, 
Babs

Hi,
Tomm - Thanks for the info.  Do you think your side effects went away because of the meds?  My Onc was thinking about starting me on steroids today as the CT showed some “activity, inflammation, fluid” but wasn’t real concerned, especially when I told her my back pain and shortness of breath seemed to be getting a little better.  She thought we should watch it and see what happens going forward.  I agreed.  She did say the original tumor is “scar tissue now with no signs of cancer cells”.  Good I guess?  Amazing how you think you understand everything being said and later question what you heard. I even had hubby with me. 😆 
 
Hope all is well with you and the rest here.  I have yet to know all your stories.
Take care,
Babs

Welcome Babs,
Tomm did a a great job of covering side effects with you. My muscle aches and joint pains, headaches and back pain lasted thru out my year of Durvalumab......it was something I was able to live with with the aid of Ibuprofen 800mg and Tylenol ES. My symptoms never escalated to a point where I felt it needed more than my OTC analgesics. My thyroid levels were fine but I did experience fatigue and a lack of stamina and endurance. It helped that I continued being active and I tried to get in some "formal" exercise at least every other day. I never felt that it got better or worse as time went on with Durvalumab...it was just always there, reminding me that I do have some limitations. 
I will also echo Tomm's recommendation of drinking water and lots of it if you don't have any fluid restrictions.

Congratulations on having your original tumor delegated to being scar tissue. How freaken awesome is that!!!
Take Care, DFK
I'm taking care of my procrastination issues. Just you wait and see.

Hi all, 
I am going for my 9th dose of Durva today, also results of CT scan from last Thursday.  Did anybody in their course of treatment have side effects stop or get better?  Was having terrible muscle joint pain and started having back pain that would wake me early morning and had to get out of bed. It seems to be subsiding some.  Also my shortness of breath is less often.  I’m not complaining mind you, just curious. 
 
Thanks,
Babs

Hi,
Tomm - Thanks for the info.  Do you think your side effects went away because of the meds?  My Onc was thinking about starting me on steroids today as the CT showed some “activity, inflammation, fluid” but wasn’t real concerned, especially when I told her my back pain and shortness of breath seemed to be getting a little better.  She thought we should watch it and see what happens going forward.  I agreed.  She did say the original tumor is “scar tissue now with no signs of cancer cells”.  Good I guess?  Amazing how you think you understand everything being said and later question what you heard. I even had hubby with me. 😆 
 
Hope all is well with you and the rest here.  I have yet to know all your stories.
Take care,
Babs