eppie

Looking over the side effectos of the antinausea meds I noticed dry mouth and mucous membranes on the lists. It might be the culprit in this case. Ask your onc nurse what she/he thinks.

Kim, Elvis and Bobby Sherman! How weird is this? When I was a little girl the family story is that I would say that I was going to marry Elvis or my Daddy!!!! Well, I didn'r marry either but I still love both. Kim, I had a truly great friend in Texas who moved to Colorado. Her name was Kim Mech. She was not blond when I knew her but her children were. Much love, Eppie

I was raised catholic but have become a Unitarian-Universalist. The joke is that we're hedging our bets that all the world's religions have a bit of the truth but no one religion has all of the truth. What can I say? In times of trouble we all turn inward. I recommend turning outward, too. POsting my worries, fears and daily joys here is a source of strength for me. I know that all of our positve energy combines as a force that will and does combat this beast we're all fighting....call it cancer...call it fear. It is deadly but there is hope and that is what fuels my soul today. Hope. Do not despair. In prayer and hope for a better tomorrow. Eppie

My father in law died in 1999 of stage IV adenocarcinoma with mets to the brain. He chose radiation and no chemo. We tried to enroll in a clinical trial at Dana Farber in Boston. They said come back in 2 months. He knew he didn't have that long. He died in his sleep...starved in my opinion. In 2005 my dad is diagnosed with Stage IIIb and the first chemo drug they offer him is the very drug in the study offered in 1999 at Dana Farber---Pacitacixil plus Carboplatin. Sadly my FIL had a personality of fatalism. It was very pervasive and at time I had considered not marrying into this family because of it. I made my choice but could not persuade my FIL to choose living. His cancer was too far gone and his choices reflected that outlook. My dad on the other hand is a happy, 000, optimistic, earthy soul who is not a statistic. HE's a dirty-minded ol'coot who is fun-loving and affectionate. He'll dance to any tune and shoot hoops with people much taller and beat them oneonone. He kicks *ss! I am placing my bets on his desire to live and fight. However or whatever outlook you choose is based on the individual temperment of the person facing this terrible disease. I pray you seek advice and advocate in a positive manner for your loved one. Whatever she choses...it is ultimately her choice. Peace, Eppie

Healing thought flowing your way! Love, Eppie

DOn't apologize for loving those 'Stros!!!! I love the Astros and the Red Sox. BOth teams are blessed by bi-polar saints. Up and down up and down. But, oh,what a ride!!! Thanks all for the good advice about Levenox. At first I was bummed thinking that this was a chemo deal breaker. His blood counts are good and he didn't lose weight this week. I just feel that every day must be a good cancer fighting day. Truthfully, he has more good days than bad so the battles wages on.....the only bad days are the ones when I don't have a sense of humor. He is staying in hospital for observation and to also have the port changed to his chest from his right arm. the clot is inhis right hand. He will have an ultra sound of the site tomorrow. Staying positive is the most important thing. I love this site so much. You all are so generous and kind to each other here. I wonder wheter it is ok to say this but...I am proud to be a member of this terrible club. Hugs of healing to all in need and power to vanquish this horrible beast called LUNG F@$%ing Cancer, pardon my French. Eppie

hide the keys....blame the mets. Say, Gee mom those keys must be somewhere,um, i dunno. be outta da house for the temper tantrum. Allow keys to be "found" when she is better. I don't know if I would be brave enough to follow this advice. I don't think you'd let her drive your kids in the car drunk, would you? Well, friends don't let friends or parents drive with brain mets either. God bless you and your family. May god in his mercy return your mom whole and in good health soon. Please forgive me for putting my .02 in. I mean no harm only safety. Eppie

What a week. Update: Dad had last WBR on Monday. he threw up even though they stopped his amisphostine (sp) becuase they thought that was what was making him feel so bad. He had Taxol yesterday. This morning he had pain and stiffness in his right hand. It is a blood clot. Heparin and hospital stay for 3-5 days. I am bummed and so is he. This puts off his gamma knife procedure till next week. Now his hair is falling out in clumps and the chemo is on a break. Astros are blowing the World Series. The only joke I could make is at least his right hand can't write any checks to pay his medical bills this week. All he has to do is sit quiet for a few days. They aren't going to stick a scope into any orifice. javascript:emoticon(':D') He can eat anything he wants and have morphine on demand. I have to guess this is common? Keeping all of ya'll in my prayers. Healing thougths to all on this message board. WE'll get through this. Eppie

I like this for so many reasons. First, I am glad the doctor respected Brian so much that he made this possible. We are all responsible for a part of the "story" of our lives. These doctors understood that the "story" is the history we make. Brian and Pat are meant to be in Florida celebrating this joyful occasion. I think this decision has honor. Eppie

(((((((((Nancy))))))))))

Keep up the fight, Tann! You are our inspiration. Thanks for letting us know how your're soing. YOu and everybunny else on this messge board are in my my prayers. Stable....That will do....but keep fighting for more. Hugs for all, Eppie

I have CD. It is on the colon and I have never had to go on Prednisone. Which is very good. Do you thikn there is a connectin between LC and CD? MY dad has the LC. I have CD. My Uncle has ITP and my aunt had MHLymphoma. My grandmother had RA and her sister had Lupus. How far can this list go on? Add Heart diesase and Diabetes and Glaucoma to the genetic mix and statistically we're all doomed. I for one will not tolerate any talk of that nature. Be healthy everyone and do healthy things. Work out eat right, love right and be right always. Hugs for all eppie

I have an aunt Toni and a best friend named Toni so Hi Hi hi. Avastin, eh? Sounds very aggressive. good luck to you and Terry.

I loved Napoleon Dynamite. Mom and I watched Connie and Carla" Dad and I watched "Cheech and chong's Up in Smoke" just for old times sake. Movies are personal. Memories have power. Make them last. Eppie

((((((((Hugs))))))))))))))))) And Hope via cyber waves are aimed at you. Healing and prayers, Eppie

How do you stay strong? To me there is no alternative. Kick *ss. My dad is strong until he says he is not strong. Then we do option "B" which is to be comfortable and have digntiy. This challenge is why we live. To love and to help other heal. cancer is bad but love brings us together and is the reason we fight. Healing to all those in need and love every moment like it will lat forever. Eppie

I am new but seeing how many people here love her and you make me feel good and since I always love good news, I feel compelled to add my .02. Cheers to you and yours and may good health continue to bless your life. Happiest when healing and health thrive! Eppie

Thanks so much for replying....I hate all or nothing thinking. Telling my dad something like "all people who receive WBR lose their hair permanently" is just something I would hate to do. Knowing just one case where this was not the case helps. Thanks so much for your kind response. eppie

Does it always result in permanent hair loss? I just want to know before I shoot my mouth off like a know it all to my dad. My hubs thinks I should let my dad know this is true. I am not so sure. He is only having 10 treatments and he hasn't lost his hair yet....#7 WBR rad. was today. Much love and healing hugs to all on this precious message board, Eppie

Did you realize that mine is # 8 in a line of powerful prayers? Hope is here at Lung Cancer Support Community!

I just saw this thread today and I sincerely want to thank all of ya'll for this. It was the best thing I have ever cyber experienced. Kisses and hugs for all of youse!!!!! So how did we celebrate? I wish I could say we went to his favorite restaurant: P. F. Chang's in the Galleria. we did not. He was too sick. So, for my Dad's Birthday: I did not bake a cake. I did not bake pie. I did not bake cookies. I did not bake a roast. I did not bake a quiche. I did bake him something..... Fifty healing cancer points to the very smart alternative cancer guesser! Hint: It helps with nausea and it is controversial. Please don't judge me. I want my dad to eat and it has helped him do that and watch the Astros play in the play-offs. Now, that is quality of life. Prayers of healing to all on this very special message board, Your friend in strength, Eppie

Sending prayers your way! I don't have any advice medically speaking but I know how powerful positive energy is so I am sending healing cyber love to you and yours. Eppie

http://www.raysahelian.com/genistein.html Just looking around at the alternatives. This one is interesting.

http://www.coleypharma.com/coley/cpg_7909

Saint Carlos Santana for his work and healing music....I can't think of a better treatment to go with chemo! Hugs to your brother for his fabulous gift....Listening to Carlos play is like going to church for me. Eppie