Dear Amy,
I felt your pain when I read your post. I remember feeling so much of what you are going through during my mom's illness. In fact, if you look back in this forum about 6 months you will probably find a similiar post from me. In a way, the day she was diagnosed our roles begun to change. I was very active in helping her fight the disease and helping my dad care for her. As her disease progressed I watched it take away my mom. We would have moments when it seemed like she was present, but through her pain and the medication the life was mostly gone.
I have more to say, but actually it is really painful for me. Please PM if you need to chat.
This is such a hard road, please know aren't alone in your feelings.
Blessings to you,
Andrea B.