Elaine
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Posts posted by Elaine
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Thank you Jane. Pls know I am thinking of you and your dear husband through the hard times you are having now with his throat. I hope you sit today with a fine cup of tea.
love
elaine
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Angie
Just do what is in your heart. Your heart can never be wrong. Let us know how your dad is doing. I know many men seem to handle things diferently, but just remember that your husband is following his heart too.
Love to you all.
Glad to see your beautiful faces!
elaine
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Nina
You may have forgotten to ask for prayers, but I pray for you by name every day. I know that waiting is tough, so I will pray extra today.
love
elaine
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Don
I just saw your post that chemo started. I hope all is well with Lucie and you. Just want you to know that you are in my prayers.
love
elaine
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Carleen
I can't stand this damn disease and what it does to us all. I pray the Drs were right the first time, and this is not cancer. I pray it loud and clear. I pray God helps us find a cure to end this suffering for us all.
I pray for strength for us all in the meantime.
Love to you both
elaine
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What beautful children! Thanks for sharing.
elaine
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Oh Lily,
I don't know what to say. I am just so sorry you are so sad. I wish you could find something that would fill up at least a tiny bit of the space that Johnny's death left in your life.
I am pretty darn sad today, too. So I doubt I can be of much help, but I did want to let you know I am thinking of you.
About the tape: I don't know what to do about it. I guess just ask again. Maybe she would be more willing to to just tape the part of it that has "your song" on it. That way the other parts of the tape can just be for her and her father.
I know what you mean about songs. I love music but now I often find myself just sobbing when I hear songs that remind me of things....
I love you Lily.
elaine
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The above article says:
Patients who have been diagnosed with NSCLC and are to undergo chemotherapy with a platinum compound may wish to speak with their physician regarding their individual risks and benefits of participation in a clinical trial further evaluating these genes or other "markers" that may affect treatment outcomes
Since this is not now routinely done but based on the article the markers make a HUGE difference, I wonderi f getting these gene tests are expensive to do and what is involved. Anyone know? John?
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It's so nice to see how happy and excited David A is!!!
Hope it's a great time!
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Bo
I remember another post of yours about bone pain and you were questioning the dx of mets. You may be right. I have hypertrophic pulmonary osteoarthropy (sp?) which causes bone pain, but it is NOT a met. It shows up on bone scans differently than mets do. The pain, in my case, comes and goes, mostly goes. Are your fingers clubbed? IF they are it could definately be a sign that your bone problems aren't mets. The other thing is that my PET scan lit up everywhere becuase of the HPOA. It may be a long shot, but I only say this because if those aren't mets, maybe you are a candidate for surgery.
elaine
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David
I knew you would wake up fighting!
love
elaine
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Hi
Sorry to hear of the new problems. I hate to disagree (LOL) with your Doctor, but several people on the board HAVE done other treatments for brain mets AFTER WBR. David C has had WBR and just yesterday, he found out he has brain mets and his Doctors are going to do other treatments.
I was raised 12 miles north of Kansas City, so I am just wondering where in Missourit you are.
My best to you both.
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David
You must be devastated. Go ahead and be that so that soon you can gather your strength to help Doctors get rid of the mets--. I am so sorry. I don't know what to say. I think one of the worse things about cancer is how sly it is. Dang mets sitting there causing no symptom and not even visible couple months prior--then seeming to come out of the blue....
I hate it. Even days when a person has no strange ache or slight pain don't mean a hill of beans...
Love to you all
elaine
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I don't have the experience to be able to help you with the medical stuff. I just want you to know I am wishing for the best for your dad and your family.
love
elaine
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Dolly
I sure don't have any answers for you, but want you to know you are in my thoughts, you and your husband. I hope Iressa works its wonders to make the side effects worthwhile.
elaine
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Joni.
Here is a poem by Emily Dickenson that talks about what your are experiencing. After my Dad died, I really understood this poem in a much deeper way. Hope it helps.
love
elaine
After Great Pain
After great pain, a formal feeling comes--
The Nerves sit ceremonious, like Tombs--
The stiff Heart questions was it He, that bore,
And Yesterday, or Centuries before?
The Feet, mechanical, go round--
Of Ground, or Air, or Ought--
A Wooden way
Regardless grown,
A Quartz contentment, like a stone--
This is the Hour of Lead--
Remembered, if outlived,
As Freezing persons recollect the Snow--
First - Chill - then Stupor - then the letting go
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Jamie
I have not one clue but I do want you to know I understand your worry and your dad's. Hope you all get your questions answered soon..
love
elaine
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Welcome! I also want you to know that we are here to support you, too!
love
elaine
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Betty
I am sending best wishes for clean scans, including an empty head, which will be just the right empty after the good news comes back--since all those lingering fears will head out..... (lots of puns in that sentence!) Some were intended but others just popped out!
love
elaine
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Gayle
THis is heartbreaking. I couldn't help being sad and then angry at your mother's doctors for letting this get to such a severe point without doing something about the bone mets. There are no doubt people on this website who could better suggest treatments than some oncs we have been hearing about lately.
I pray your mother and your family find comfort and peace in the days ahead. Pls keep hope alive.
love
elaine
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Peggy
Was just about to post to see if anyone had heard from you. Sounds like good news, huh? And no pain is great. Enjoy!!! You both deserve it.
Pls don't spare us the a-hole Dr story. It helps knowing others have assholes (for doctors), too. I see you are practicing usind the word cleanser feature of the board! Good for you!
love
elaine
Apparently the word cleanser feature isn't working any longer.????
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Andrea
Too Funny!
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You are right: surgery is sometimes done and so is staging. I still think she should check to be sure.
elaine
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Shellie,
I am so happy for you and so glad you are here to support us. I know it must be so painful to you to come here and see more suffering. But there are good things too.
Your sister is pretty unlucky to have cancer, but very lucky to have you beside her.
love
elaine
Maybe SURGERY afterall!!!
in HOPE
Posted
It may sound "funny" to some people, but we here know that praying that your mom CAN and WILL have surgery is the best of all prayers.
elaine