Rachel Posted November 5, 2004 Share Posted November 5, 2004 Hello to all my dear message board friends. I am still in Oregon completing my radiation to my spinal area. From like C-4 to Lumbar & brain mets. Feeling good & stronger walking since rad. My Rad Onc ROCKS!!! Going to the coast Sunday to camp in the Yurts . Last Rad on the 9th of Nov then North to Alaska on the 11th. Can't wait to get home! There I will begin a pill form of chemo called...Temodar sp? I believe that is the spelling. Anyone heard or done this? How about you Dr. Joe? Time for the drive to Portland. Rachel Quote Link to comment Share on other sites More sharing options...
ginnyde Posted November 5, 2004 Share Posted November 5, 2004 Rachel, Earl was on Temodar for 2 months. 3 pills/day for 5 days and then no pills for 23 days. He did get sick to his stomach the first day each time. He took them right before going to sleep to lessen nausea and I gave him a compazine with each dose. I understand this is considered a brain cancer med and does cross the blood/brain barrier. I think Earl had way too many brain mets by the time he started on the Temodar and even though the rad onc wanted him to continue with it, he was too, too weak to really do any more treatment. I still have a full month supply of the Temodar. Seems like such a waste. Hope you do well on it. I understand they are having some good success. Happy going home, just in time for the winter. Quote Link to comment Share on other sites More sharing options...
Nushka Posted November 5, 2004 Share Posted November 5, 2004 Rachael, It sounds like you are doing pretty well with your treatments and I hope your trip home helps you feel a little back to normal. Best of luck to you. Still in my prayers. Nina Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 5, 2004 Share Posted November 5, 2004 Rachel, glad things are going well and that you are getting around. Keep us posted. Don Quote Link to comment Share on other sites More sharing options...
Fay A. Posted November 5, 2004 Share Posted November 5, 2004 Rachel, Glad to hear that the radiation treatments are going well for you. Enjoy the trip home! Quote Link to comment Share on other sites More sharing options...
Ry Posted November 5, 2004 Share Posted November 5, 2004 Hang in there Rachel. Thinking of you... Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted November 5, 2004 Share Posted November 5, 2004 Good to hear from you and sounds like you are right on track. I know it will be great to get home. Best wishes, Margaret Quote Link to comment Share on other sites More sharing options...
Wendy Posted November 5, 2004 Share Posted November 5, 2004 I love it when someone has a great doc - there is nothing worse than not agreeing or liking the doc. Best wishes, Wendy Quote Link to comment Share on other sites More sharing options...
SandyS Posted November 6, 2004 Share Posted November 6, 2004 .............still waiting for you to come by with more salmon........! Glad to hear you're doing well. Keep it up and stay in touch, Hugs and prayers, SandyS Quote Link to comment Share on other sites More sharing options...
Elaine Posted November 6, 2004 Share Posted November 6, 2004 Good to hear from you and that you are getting some relief from a pleasant surrounding! You remain in my thoughts and prayers. elaine Quote Link to comment Share on other sites More sharing options...
NellW Posted November 6, 2004 Share Posted November 6, 2004 Glad to hear you are doing well, Rachel. It is so cool when you get a great doc too. I know there is no place like home, though . Hope the weekend trip is fun and relaxing. Nell Quote Link to comment Share on other sites More sharing options...
MayFrog Posted November 6, 2004 Share Posted November 6, 2004 Rachel, So glad to hear you've got a good doc and that you're feeling so good! Bet you can't wait to get home! Keep it up!! Mary Quote Link to comment Share on other sites More sharing options...
Addie Posted November 6, 2004 Share Posted November 6, 2004 Rachel... Not only do you make the best of things (weekends at the gorgeous Oregon coast)...but you're feeling good too!! So glad to hear it. I betcha there's gonna be one happy pup in Alaska when you get home....eh? Keep us posted on how you're doing. Glad to know tx has been successful and that you'll be headed home soon. One question....what are the Yurts? Quote Link to comment Share on other sites More sharing options...
kitkathi Posted November 6, 2004 Share Posted November 6, 2004 Rachel, Glad things are going okay. Enjoy your trip before heading home. I received your recipes! Gosh, I want to make them now!! Let us know when you get back home. My husband just got back from a week trip to Alaska. He loved it!! kitkathi Quote Link to comment Share on other sites More sharing options...
Kaffie Posted November 10, 2004 Share Posted November 10, 2004 Rachel, I e-mailed you, hope you get it. I missed the chance to meet you at OHSU and I can't begin to tell you how sorry I am!! Prayers Kathy Quote Link to comment Share on other sites More sharing options...
Melinda Posted November 11, 2004 Share Posted November 11, 2004 Feeling good & stronger walking since rad. My Rad Onc ROCKS!!! Thanks for posting, Rachel. I'm so glad you are feeling well. Enjoy your trip--and then update us! Melinda Quote Link to comment Share on other sites More sharing options...
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