Guest TraciAnn Posted January 31, 2005 Share Posted January 31, 2005 My name is Traci. I'm here because my mom was diagnosed in September with inoperable adenocarcinoma of the left lung. She's still working and playing as usual. In fact, if it weren't for the horrible coughing, you'd never know she was sick. We (my sister and I) are so worried about upsetting her at Dr. visits that we don't ask questions. She doesn't want to know. I'm glad to have found you, at least now I can get some answers to questions that are nagging at me. Quote Link to comment Share on other sites More sharing options...
SBeth Posted January 31, 2005 Share Posted January 31, 2005 Hi Traci, I'm sorry to read about your mother's diagnosis. I cannot imagine how hard it must be to have those questions and not be comfortable asking. I wish you and your sister all the best as you work to help your mother continue to be a survivor. Please come back often and keep us posted on your mother's progress and ask ask ask away. This board is full of the most knowledgable, helpful and loving folks around! Love and prayers, Quote Link to comment Share on other sites More sharing options...
finster Posted January 31, 2005 Share Posted January 31, 2005 Welcome Tracy! I'm pretty much in the same boat you're in. As you can see below, my mom has extensive SCLC. She also seems to prefer not knowing all the details. I'm trying to keep informed for her. Good luck to you and your family. Come back often! Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted January 31, 2005 Share Posted January 31, 2005 Hi Traci, Welcome and sorry to hear about your mother's diagnosis. I myself want to know exactly the way it is and that it is very important for my family to know also. Of course everyone is different, deals with it diferently and there request should be respected and honored. Have you talked to you mother about your (and sisters) fears and concerns and the need to know? Maybe as time goes on she will change her mind. Might help if you research some of the members profiles and you can print them out to let her know that people can still have a sustained life and are doing well. Stay with us, the best place with the best people for caring, sharing and knowledge. Hopes this helps. Prayers for the best. Rich Quote Link to comment Share on other sites More sharing options...
Ry Posted January 31, 2005 Share Posted January 31, 2005 Welcome Traci~ I am glad you found this board. Lots of information which will be useful to you and your family. Rochelle Quote Link to comment Share on other sites More sharing options...
kimmek Posted January 31, 2005 Share Posted January 31, 2005 Hi Traci and welcome. I too have one of those moms who wants to know nothing. And i am one who cannot get enough info and knowledge. She knows I research everything, and that i come here. When ever she does have a concern i usually have an answer or can come here and get one in no time flat. At first I did not understand this and tried and tried to get her involved, but it never happened. She is doing wonderful today, but I think she is becoming like most everyone else now and worries about every little ache and pain. She just had her first 3 month scans after being "ned" and this weekend has been rough on her, but we go to the onc tomorrow and i am sure all is still fine. Be sure to continue going to your moms appointments with her, someone does have to be on top of things, but its ok if its not her. Come here often and ask any questions you may come across thats why we are all here. God bless you and your family Kim Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted January 31, 2005 Share Posted January 31, 2005 Hi Traci, and welcome.You will find lots of knowing and caring people here.No matter what comes up someone here has usually been there and done it,so there is plenty of support here. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted January 31, 2005 Share Posted January 31, 2005 Welcome! If your mom doesn't want to ask questions, see if she will give the doc permission to discuss with you when your mom is not present. Don Quote Link to comment Share on other sites More sharing options...
Donna G Posted January 31, 2005 Share Posted January 31, 2005 Hi Traci, welcome. Hope we can help during this tough time. Donna G Quote Link to comment Share on other sites More sharing options...
Justakid Posted February 1, 2005 Share Posted February 1, 2005 Hi and welcome! Glad you found us! Sorry about your Mom. Lots of information here! Quote Link to comment Share on other sites More sharing options...
Nushka Posted February 1, 2005 Share Posted February 1, 2005 Glad you found us and I hope we can answer at least some of your questions. Maybe you can get permission to talk to your mom's doctor without her. It might be worth a try. Nina Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 1, 2005 Share Posted February 1, 2005 Hi Traci , I just want to welcome you and tell you that you have found a wonderful, caring group of folks here to help you through this. I know it must be very hard on you to be left in the dark about your mom's case. There is a lot of information here, but every case is so unique. Maybe you can find some positive way to approach it with her. There is so much hope to be found here. My thoughts and prayers are with you. sue Quote Link to comment Share on other sites More sharing options...
appleton Posted February 1, 2005 Share Posted February 1, 2005 Hi Traci, Welcome to the group. Come often......it helps to talk to others and get their info,etc. Quote Link to comment Share on other sites More sharing options...
elnodel Posted February 3, 2005 Share Posted February 3, 2005 Dear Traci, So sorry that your mom has this awful illness. I hope that this site will be as helpful to you as it has to me. I hope that you'll get your mom to agree to allow the doctor to talk to you when she's not there--most people want someone to be strong for them and you're the likely candidate. I know you'll feel better if you can get information on what exactly is going on. In the meantime, ask all the questions of the forum that you can think of and hang in there, for yourself and your mother. Ellen Quote Link to comment Share on other sites More sharing options...
Lisa O Posted February 6, 2005 Share Posted February 6, 2005 Welcome Traci, I am sorry to hear about your mom, but it sounds like you have found out that a lung cancer diagnosis is not the end of quality life as many people believe! I once feared that as well. I am glad to hear your mom is working and playing. Many here are doing so also. Continue to live life with her and support her and eachother. We will be here for you as well. Quote Link to comment Share on other sites More sharing options...
stand4hope Posted February 6, 2005 Share Posted February 6, 2005 Hi Traci and WELCOME. I missed your post. It seems I missed several new people's posts this past week, and I usually try to catch them right away. I was having a couple of bad days myself when you posted, so that's probably why. Anyway, a great big WELCOME to you. Go slow with your mom as far as talking and wanting to know. My husband doesn't want to know as much as I want to know, so that's one reason I'm here on the website and he's not. LOL! I do try to pass along information to him that I think he might want to hear. The main thing is, though, that SOMEBODY needs to know, especially as far as treatments, choices, medications, etc. It sounds like you and your sister are going to appointments with her, so at least you hearing what she is supposed to do. Take Don's advice above and ask your mom if she will sign a paper (HIPAA authorization) letting the doctor talk to you about her illness. That's very important, and even if it doesn't seem necessary at the moment, it might be very necessary at a later time. If your mom doesn't want you asking questions of the doctor right now, then respect that and don't ask, but let her know that if she has problems later on you want to be prepared. Prayers for your mom! Love, Peggy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.