New Here

[Guest lblice]

Hi. I've just been diagnosed with adenocarcinoma stage 3b. I'm so scared it was such a relief to find this board and find a group of people who know how you feel even when you can't put it into words yourself. I have been surfing the net and trying to get all the info I can but it is so confusing. The statistics aren't promising,in fact,they will scare you to death but I want to beat this thing. I WILL NOT GIVE UP! Any help on nutrition or supplements or treatments would be appreciated. I see my oncologist Monday but I'm sure in the meantime I will be back to post. Thank You all for being here, Linda

[kimblanchard]

HI and welcome.

I'm doing broccoli sprouts this week. Supposed to have oodles of something that kicks cancer hard -

At this point, I think I'm ready to begin the whole foods only approach - grapes, sprouts, carrots, water, etc. - some swear it works. I'm ready to give it a try!

[norme]

Linda,

sorry you have to be here but you are at the right place for there are many survivors here and much much knowledge.

i would suggest you go to www.chemocare.com and www.blochcancer.org and you will learn a lot from those sights.

there also is someone on this board that posted not so long ago about supplements but i can't recall who she is. if i remember, i will get back with you or maybe she will see your post and let you know.. God be with you....

[Margaret]

Linda,

You found the place for support and information. Please don't dwell on statistics...so many things contribute to your recovery. I look forward to getting to know you more and hearing of your successes with this beast of a disease.

Prayers for you and for everyone here.

Peace,

Margaret

[Guest lblice]

Hi again. saw my replys and wanted to say hi again. Funny how emotional it makes you just to know people you don't even know care enough during their own troubles to answer. Will try the brussel sprouts-got to taste better than the carrot juice . Of course I know this is nothing compared to the chemo. 2 years ago I lost my 9 year old grandson to gliomablastoma so I have a real horror of chemo. I don't believe I have it in me to be as brave as he was. Not like we have lot of choices tho. Boy feel like I am babbling-sorry. Thanks again for listening, Linda[/code]

[kimblanchard]

Know what? Carrot juice is actually GOOD. Really and truly, it is sweet as can be and quite agreeable. Now, I absolutely DETEST V-8 juice or tomato juice - but fresh carrot juice is really good tasting. I was shocked. LOL

Give it a try.

We *do* have choices. Maybe not many, but we have choices. I'm not too sure about this whole doctor - chemo - radiation thing and I'm not sure if I'll stay with that approach. They don't seem to have a whole lot of success. If my PET scan is right, and I'm late stage, I don't see any value in torture to prolong my days by a month or two - Daddy went through that, was absolutely miserable - he told me if he had it to do over again, he wouldn't have done it - he also told me if he could have reached a gun while he was so sick with the chemo and radiation, he would have blown his head off - just so he could feel better.

I think I may just go another route - namely lots of prayer and whole foods, uncooked foods, and the care and consideration of my Adventist friends - I don't think their failure rate could be much worse than that of modern doctors. At least if I"m not terribly ill during my last few days and weeks - maybe I can get something done - I need to raise money for the mortgage so the children will have a home after I'm gone!! I can't do that if I'm holding my head, laying in bed, wallowing around in misery. I also can't do that if I'm paying out what little money we DO have to the doctors for their medicine that doesn't work - leaving none for my children after I'm gone! I prefer my children to have my money, not the doctors.

The only person I know that has refused treatment and who died from the cancer, rather than the treatment - she was in pretty good shape up until the very last few weeks. She refused chemo/radiation because she had just finished caring for her sister going through the same thing - and was horrified by what her sister went through, and who died anyway. She didn't want to go through that and just refused any treatment. THere in the last month she slept almost all the time, and the last few days got really bad but it was over quick. Up until that point she did pretty well, all in all - the last couple weeks needed morphine some - I'd rather go like that, I think - than like my dad and my uncle went.

[Debi]

Dear Linda,

Welcome to the board...sorry that you have to be here, as always, but welcome anyway!! I can't give you any advice on the things you want to know, but I can assure you that you are definitely not alone.

I understand you being scared...I'm scared too. In fact, most nights I wake up (like tonight) with cancer on my mind and can't go back to sleep. Today I went to a new dentist and had to fill out one of those forms they give you. I had a chill go through my body when I got to the part about diseases that you have, and I had to check cancer. It just hit home hard for some reason...the first time that I acknowledged it, on paper. No more filling out doctor forms quite the same.

I think that half the battle with cancer is conquering the fear of it. Especially after surfing the net!! I went to some sites that made my hair stand up straight! The most important thing in your post was: The statistics aren't promising,in fact,they will scare you to death but I want to beat this thing. I WILL NOT GIVE UP! Sometimes the fear of everything makes me forget my resolve but it always returns. As you'll see from this board, sometimes people have bad days, and that's okay. When its your turn to have a bad day, you'll know that its okay to write about it...everyone has them! But as long as you keep returning to that positive attitude, that YOU WILL NOT GIVE UP you are ahead of the game.

I wish you lots of luck with your fight with this. Please keep posting and let us know what the Oncologist says.

Debi

46 years old

Stage 1A-NSCLC

Surgery June 16th, upper and mid lobe removed

[Hebbie]

Hi Linda,

Although I am sorry you have to join our family -- Welcome!

I was diagnosed 8 months ago with Adenocarcenoma IIIA and have been through a lobectomy, radiation and chemo all in a 6 month period. It was certainly a whirlwind of activity, and there were times when I SWORE those doctors were TRYING to kill me with their treatment, I did manage to make it out the other side feeling like an (almost!) normal person!!!

As far as supplements, I've found that some doctors are more receptive to the idea than others. My radiology oncologist told me to "take a multivitamin and eat whatever I wanted as long as it kept my weight up".

My medical oncologist (chemo doc) only suggested supplements when I pushed the issue -- then he rattled off a few (Folic Acid, B6, B12). My hospital also has staff nutritionists who work with the cancer patients -- check with your hospital and see if they offer that service. She was pretty helpful in suggesting foods to eat/foods to avoid.

There are also several books out on the subject, some are a little "out there" in theory and some just offer suggestions for good "whole food" eating. I like "What to eat if you have cancer". I can't remember who wrote it, but the cover is green and you can pick it up in Borders or Barnes & Noble. My nutritionists confirmed that it was a worthwhile book to read and follow. One that seems a little "intense" (for lack of a better word) is "Beating Cancer with Nutrition" by Patrick Quillan. The concept is that cancer is a sugar feeder and to avoid sugar at all costs. My doctor told me that was nonsense, but I know many people on this board consider it a "nutritional bible". I did pick up a copy and have definetely cut down on my sugar intake since reading it. I figure -- my doctor may say they have no PROOF that cancer is a sugar feeder, but he didn't exactly say they DISPROVED the theory either -- so what is the harm in trying to follow it?

I've also been downing about 2-3 cups of green tea a day -- supposed to do wonders in squashing those tumors -- but I may have to try those broccoli sprouts as well!!

I hope these suggestions help you and I'll be keeping you in my thoughts!

[Don Wood]

Welcome, Linda (the beautiful one)! That is my niece's name. Much info and support here. Keep us posted. Blessings. Don

[Guest lblice]

Hi all not much sleep for us, is there? Read all the posts tonite and I have to admit I have thought about the all natural approach too, mostly out of fear of the chemo but need to talk to onc tomorrow to make halfway intelligent decision altho I am still doing the carrots and will start the brussel sprouts tomorrow Can I at least cook those?! Anyway will post tomorrow but for tonite just want to say thanks to all who while dealing with your own probs post and try to help people like me. Take care and hang in there, Linda

[Donna G]

We read this article a while back on foods that fight cancer.

http://www.cancerproject.org/medicine/i ... nates.html

[Hebbie]

Janet -- I took your advice and brought some BroccoSprouts -- eating them right now on my tuna sandwich!! Thanks for the tip!

[Gina D.]

I am so sick of brocholli I could just Wommit Actually, I like it and have at least one serving a day, I don't really think thats a lot more than what I used to eat. I do contiously make it now, and if in an eatery etc and have a choice of veggies, Thats what I order.

Next..they will make ice cram out of it and we can all think we are having a treat!

[Guest lblice]

Saw my oncologist and I will have ports put in next week then a regimen of taxol/carboplatin. Chemo once a week then radiation 5 days a week. Guess I am ready. On with the carrots and brussel sprouts- We'll beat this monster!!! Love and prayers to all,Linda

[norme]

Hi Linda, I was just searching the member list looking for an old friend when i saw you were from Cinti and have not been on for a while. How are you doing? I live over in Ft. Wright, top of the hill out of Covington on I75. Wish I would have known earlier you were so close, we could have chatted by phone often and still can. Let me know how you are.

[bobmc]

Hello Linda,

Just wanted to join the ladies in welcoming you to our wonderful group here.

Yes, such a terrible and dreadful disease but we don't have to go through it alone!! And as for the statistics , SCREW EM!! Many us feel there outdated and hav'nt kept up with technology anyway, and besides only God knows when our times up. Don't dwell on it, it's really pointless.

Iv'e found the best thing I can do is to stay informed, get second opinions, try to be treated at a cancer center by specialists and be an advocate for my own health. I can see from your questions on nutrition that your doing the same. Thats good,

again welcome and you'll be in my thoughts and prayers

Bobmc- NSCLC- stageIIB- left pneumonectomy- 5/2/01

MRI's taken 12/18/03 - 2 brain mets found- named em Frick & Frack

PET taken 1/5 - hot spot in mediastinum May be cancer??

"Absolutely insist on enjoying life today!"

[dadstimeon]

Hi Linda,

Sorry to hear about your diagnoses. You’re at the right place. Wonderful people with lots of information compassion and caring. Forget the statistics. Stay positive and focused. Learn as much as you can. Be pro-active. Peace, take care and God Bless.

Rich

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http://www.centerwatch.com (Clinical Trails Listing Service / Center Watch)

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[karen335]

Linda,

Hope to hear from you and how you are doing. Hope all is well and the chemo wasn't too harsh for you. Prayers for you...

God Bless

Karen

[TBone]

Hi,

I am confused by the date on your post.There are two different ones.One from August and one from yesterday.Anyway it doesn't really matter in the context of what I want to say.I just want to welcome you and let you know that you have found an incredible place.I am a short-timer.Have only been here a few days.Diagnosed in late December.I had surfed and surfed for info and the bad news was dragging me so far down.I found this place and the love that radiates from it and have had a complete turnaround on my attitude about fighting this monster.I think you will soon realize how sincere and helpful these people are and how the power of group prayer works.I am already seeing signs of miracles.I can type and laugh and was told not too long ago that I would not be able to.Keep coming back and keep us posted and God bless you and yours.You are in my prayers.TBone