ladyhawk Posted January 6, 2007 Share Posted January 6, 2007 Don't know exactly how to use this thing, so will do my best. Just found out you can't leave this page where you are writing to check on something and then come back to it. It will be gone. So I started out with more than I have the patience to rewrite. Sorry Last May, my husband, 64yo was diagnosed with extensive SCLC. He presented with a seizure, which proved to be caused by multiple-brain-lesion mets. He started chemo, Cisplatin/Ectoplatin (this I am not sure of and will correct later if wrong)When I tried to check this is where I lost all that I had written and couldn't come back to it. He had 6 rounds of 3-day treatments every 3 weeks. Also, he immediately had wb radiation for 10 days. He had his last round of chemo on Sept 07, 06. His last MRI of the brain showed only one tiny spot left, and his chest CT scan showed no more tumor there. We have not seen the doctor since those test results Sept 27th. We will see him (oncologist) the 25th of this month, and the tests will be repeated. He has been doing pretty good I guess, but he is still very, very tired and sleeps most of the time. His appetite is a lot less than it was before he became ill, but he hasn't lost weight. His appetite diminished with the first chemo and radiation and they had him on decadron which brought it back pretty good, and they took him off of that, of course. Then he still had some brain swelling and had to be put back on the decadron for a while, because of nausea. He got over that and was taken off the decadron again, and his appetite was just ok. He has always been over weight, but now he eats a lot less, but his weight stays the same and his belly remains very distended. I guess you could say that he eats adequately, but not even close to as much as he used to. He lost only about 6 lbs. when he first started chemo, but gained it right back. What I am saying is that I just don't understand how he can eat so little now, and not lose any weight. I know that is a good thing, but it all seems to be in his belly, which I am not sure is a good thing. I know the rest of his body is smaller. Has anyone else experienced this? Usually, weight loss is the problem, but not with him. He says he feels very full when he eats very little. This is very confusing to me. Also, sometimes his breath is so bad that you can't stand to be in the same room with him. It is not his teeth as he has dentures and this is when they are not even in, which is most of the time. He only wears them to eat. Does anyone have any ideas as to what's up with that? We are very encouraged with his results so far, but they have not changed his prognosis of 8 to 12 months. I read somewhere that mets only to the brain is as good as limited stage SCLC. Does anyone else know of this? Sorry for this being so long, and I really did start out better the first time and lost it all. Thanks for your patience with me. This has been so devastating as you all know, and the stress is eating me up. Thanks all, Lorna Quote Link to comment Share on other sites More sharing options...
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