Jump to content

Fear and Hope...


Recommended Posts

I'm so thankful for this list....I might have drowned in my own terror if not for the camaraderie shared here in this forum. I've been reading and learning for a couple months now. Lucky for me...a clean scan has given me a 3 mth reprieve...I'll be watching and waiting with so many other LC sufferers. Please accept me into your fold...I can see your member numbers are rising daily... count me in.

Link to comment
Share on other sites

Hi Mayos,

Welcome aboard. That’s great news on your scan. Stay with us. Great place with lots of compassionate people. Lots of information and knowledge here. Peace, take care and God Bless.



The Power Of People Helping People / The Power Of Knowledge / The Power Of God / The Power Of Believing / The Power Of Positive Thinking / The Power Of Never Taking No For An Answer / United We Stand, Divided We Fall / That’s The Key


https://cissecure.nci.nih.gov/ncipubs (NCI Publications Locator)

http://www.lungcancercoalition.org (Global Lung Cancer Coalition)

http://www.plwc.org/plwc/MainConstructo ... 008,00.asp (PLWC Feature: Financial Support Resources)

http://www.usnews.com/usnews/nycu/healt ... hqcanc.htm (Best Hospitals)

https://www.alcase.org/advocacy/sign_the_petition.html (Advocacy /Sign the Petition)

http://www.cancersymptoms.org (Oncology Nursing Society)

http://www.plwc.org/plwc/MainConstructo ... 08,00.html (Questions to Ask the Doctor)

http://www.alcase.org/education/publica ... reath.html (With Every Breath A Lung Cancer Guidebook / From ALCASE / A Wealth Of Information / Free)

http://www.cancersurvivaltoolbox.org (The Cancer Survival Toolbox / Free / From NCCS)

http://www.centerwatch.com (Clinical Trails Listing Service / Center Watch)

http://news.google.com/news?hl=en&editi ... ung+cancer (Lung Cancer In The News)

http://www.thewellnesscommunity.org/pro ... /guide.asp (The Wellness Community / National Cancer Support, Education And Support / Free)

http://www.drugs.com (Drug Information Online)

http://www.alcase.org (ALCASE / Alliance For Lung Cancer Advocacy, Support, Education)

http://www.nlm.nih.gov (Unites States / National Library Of Medicine)

http://www.nlm.nih.gov/medlineplus/encyclopedia.html (Health Information / Medical Encyclopedia)

http://www.google.com (Great Search Engine)

http://blochcancer.org (R.A. Bloch Cancer Foundation, Inc. / Please read: A Letter to all newly diagnosed cancer patients)

http://www.cancer.org (American Cancer Society)

http://www.cancer.gov (Cancer Information Service / NCI)

http://www.cancerresearchcenter.org (Cancer Research Center)

http://www.aicr.org (American Institute for Cancer Research; Nutrition Hotline / AICR)

http://www.cancerhopenetwork.org (Cancer Hope Network)

http://www.acor.org (Association of Cancer Online Resources / Free Online Lifeline For Everyone Affected By Cancer & Related Disorders)

http://www.meds.com/lung/lunginfo.html (Lung Cancer Information Library)

http://www.lungusa.org (American Lung Association)

http://www.ama-assn.org (American Medical Association)

http://www.docguide.com/news/content.ns ... g%20Cancer (Doctor’s Guide / Lung Cancer)

http://www.healthfinder.gov/Scripts/Sea ... ?topic=506 (Healthfinder)

http://www.medicinenet.com/Lung_Cancer/article.htm (Medicine Net)

http://www.cancerindex.org/clinks2l.htm (Cancer Index / Lung Cancer Resources Directory)

http://www.nfcr.org/site/PageServer?pag ... ncers_lung (National Foundation For Cancer Research)

http://www.patientadvocate.org (Patient Advocate Foundation)

http://www.lungcanceronline.org/effects ... fects.html (Lung Cancer Online / Hematologic (Blood) Effects)

http://www.cancerlinks.org/lung.html (Lung Cancer Links)

http://www.cancer-free.com (Cancer Free Connections)

http://www.healthinsite.gov.au/topics/C ... ung_cancer (Health Insite)

http://www.lungcancerclaims.com (Lung Cancer / Lung Cancer Information Page)

http://www.cancerlifecenter.com/engine. ... =dictionar (Cancer Life Center/ Cancer Dictionary)

http://www.canceryellowpages.com/Resour ... G%20CANCER (Cancer yellow Pages)

http://icare.org (ICARE / The International Cancer Alliance)

http://www.vh.org/index.html (Virtual Hospital)

http://www.lungcanceronline.org/support/financial.html (Lung Cancer Online / Financial, Legal & Insurance Issues)

http://cancernews.healthology.com/focus ... cancernews (Cancer News)


If I Could Catch a Rainbow:

If I could catch a rainbow, I would do it just for you, And share with you its beauty, On the days you’re feeling blue. If I could build a mountain, You call your very own, A place to find serenity, A place to be alone. If I could take your troubles, I would toss them in the sea, But all these things I’m finding, Are impossible for me. I cannot build a mountain, Or catch a rainbow fair, But let me be what I know best A friend that’s always there. Author Unknown


Link to comment
Share on other sites


I'm glad you found us.

It's great to hear about your scan. Now take a break from being scared for awhile. No sense in "borrowing trouble", you don't need any more anyway and the interest rates are a bi**!

I've found the "one day at a time" thing works real well for me. I can't be all wigged out about next week or next month when I'm using all my time and energy to focus on today.


Link to comment
Share on other sites

Consider yourself counted!!! Fear and Hope-we must walk with them hand in hand. Welcome, and lets not just consider it a reprieve, but rather consider it to be the 'first three months of the rest of your life'!!! Wishing you continued good health and we would love to know your story, when you are up to sharing it. In the meantime, welcome to the boards.

Link to comment
Share on other sites

Hello Mayos.

A big welcome to ya, and glad your here!! :):):)

Congrats on the scan and may there be many more just like that!!

God bless and be well

Bobmc- NSCLC- stageIIB- left pneumonectomy- 5/2/01

MRI's taken 12/18/03 - 2 brain mets found- named em Frick & Frack

PET taken 1/5 - hot spot in mediastinum May be cancer??

"Absolutely insist on enjoying life today!"

Link to comment
Share on other sites

Welcome Mayos. You are officially part of our "family" now. Thanks for joining and bringing great news. Another with a clean scan Yehhhhhhhhhh! Now you must keep us posted Donna G

Link to comment
Share on other sites

Thank you for your kind replies. I didn't realize I gave so little info about myself. So here goes:.............I've been married 25 yrs to a great guy (Charlie). He's taken good care of me through my surgery and while I was traipsing down that ugly chemo road. I have no children...but I'm close to Charlie's 2 kids from his first marriage. We also have 5 'great' grandkids I'm pretty wrapped up in. My story is not typical. I've been SOB since '98...and was finally dx with Primary Pulmonary Hypertension in 2000. "PPH" is a presently incurable lung/heart disorder.....and only 2 in one million people come down with this. Technically it is an endothelial disorder in the artery that runs between the heart and lungs. There's a new oral drug out (Tracleer)...and I started taking it along with diuretics and calcium channel blockers. My experience with Tracleer was not as good as my other friends who'd begun taking it. So I kept complaining I was still short of breath. Last June my cardio here in Ohio decided to do a left heart cath to see if any blockages might be causing my continued discomfort. Well....the chest x-ray during my hospital stay showed something...hence the cat scan and petscan concurred. By Sept I was having lung cancer surgery and here I am. After much research...to my knowledge...I'm the only known patient with PPH and lung cancer simultaneously. I'm an anomaly my friends. That's my story....thanks for sticking around to read it.....................mayos

Link to comment
Share on other sites

Welcome Mayos,

Sorry we all have to be here, but if we have to be someplace this is it. You will find so much support here and the greatest group of people. Any questions you may have, please come here to ask them. Glad to hear that you are doing well and wish you continued good health. Adding you to my prayers...

God Bless


Link to comment
Share on other sites

Hey there Mayos.

Welcome, and clean scans are a good thing. You need not ask for acceptance from this group. As you will find, this is a wonderful place to "hang out". You probably have some experiences under your belt that others on the board will find useful. I look forward to hearing more from you. Take care,

David P.

Link to comment
Share on other sites

Welcome, Mayos!

Now you have clean scans you can remember that cancer, while it is a part of your life, is not the sole focus of your life.

Thank the Lord for He is good.

I am glad you were accidentally diagnosed early.

It happens to too few.

May you have many more clean scans in your future.



Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...

Important Information

By using this site, you agree to our Terms of Use.