Karen_L Posted July 18, 2022 Share Posted July 18, 2022 In three weeks (starting August 11), I will be on vacation outside of Boston for two weeks. I never sought a true second opinion after the initial dx; I wanted to start treatment ASAP. I'm wondering if it makes sense to schedule a consult with an EGFR specialist while I'm back East. My thinking: I have 2 EGFR mutations, one of which is considered rare (S768i, an Exon 20 point mutation-- not an insertion or deletion, which seem to be the foci of current research). I've been on Tagrisso after progression to my brain; a checkup brain MRI showed no new badness and apparent necrosis of the lesion that was there. I have scans next week followed by a check-in with my oncologist If there is some progression, there's no question but that I'll stay on Tag, go on vacation (gotta live life, right?), get that second opinion, and start new treatment when I get back. --> The question is, do I seek a consult even if there is no progression (fingers crossed.) Background: I'm satisfied with my treatment thus far; it's been right in line with NCCN guidelines. At every step of the process, my case has been reviewed by the tumor board, I have a close relationship with my radiation oncologist, who is also a researcher, and a good one with my oncologist. Although my oncologist is not a researcher, the head of the lung cancer doctors is a researcher and has a good reputation on the West Coast. The only thing that might initially have been done differently would have been a liquid biopsy in addition to a tissue biopsy. Any thoughts would be welcome. As always, thanks. Karen Justin1970 1 Quote Link to comment Share on other sites More sharing options...
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