brm1949 Posted April 19, 2004 Share Posted April 19, 2004 Well, I was a head and neck cancer survivor, I now have become a lung cancer survivor. Just got the results of my last ct scan and have a mass in my upper left lung apex. Next going to get pet scan to see if any other tumors. From there we will discuss options. For me this is round three of this fight. Was told if no other mets than I will have surgery then chemo, if other mets found than pallitive care. After two years of this battle, I'm not totally devastated as I was when first DX. Coming here to this board for support and to give any if possible. Quote Link to comment Share on other sites More sharing options...
Ry Posted April 20, 2004 Share Posted April 20, 2004 Welcome to the board. I am hoping surgery is an option for you! Hang in there and keep us posted on your progress.. Rochelle Quote Link to comment Share on other sites More sharing options...
Don Wood Posted April 20, 2004 Share Posted April 20, 2004 You didn't mention whether a biopsy had been performed. That is the only way to tell if it is actually cancer. Don Quote Link to comment Share on other sites More sharing options...
TheresaKB Posted April 20, 2004 Share Posted April 20, 2004 Welcome to the board. You sound like a real fighter. Please stick around and let us know what's going on with you. Theresa Quote Link to comment Share on other sites More sharing options...
stand4hope Posted April 20, 2004 Share Posted April 20, 2004 I'm sorry I didn't welcome you sooner. I didn't see this post until tonight. Welcome! Welcome! You really do sound like a fighter. Please keep us updated with test results and how you are doing. We're sure glad you found us. God bless you, Peggy Quote Link to comment Share on other sites More sharing options...
stand4hope Posted April 20, 2004 Share Posted April 20, 2004 Well, that was silly wasn't it. I didn't see your post until tonight because you just posted tonight. Duh!! I read the date wrong. Anyway, I guess that's my signal that it's time for bed. Once again, WELCOME! and Good Night! Peggy Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted April 20, 2004 Share Posted April 20, 2004 Welcome! I hope surgery is in your future. Sounds like you've had a long road to get here... Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted April 20, 2004 Share Posted April 20, 2004 brm, Welcome. I hope that this tumor turns out to be isolated, and that would be the end of it. Stick around, and keep us pposted on what's going on. Prayers for us all, XOXOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
J.C. Posted April 20, 2004 Share Posted April 20, 2004 brm, hoping all goes well and the operation will be a solution. Welcome and keep us posted. J.C. Quote Link to comment Share on other sites More sharing options...
Tiny Posted April 21, 2004 Share Posted April 21, 2004 brm- I'm in your corner. Hope that it is operable and goes well. Your bravery inspires me. Quote Link to comment Share on other sites More sharing options...
chloesmom Posted April 21, 2004 Share Posted April 21, 2004 brm-- Standing right beside you, doing whatever I can to help......keep us posted here. You've beat this back before, you can do it again. Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted April 21, 2004 Share Posted April 21, 2004 Prayers and best wishes headed your way. Have they said what type of cancer they think this one is? SCLC or NSCLC? God Bless, MO Quote Link to comment Share on other sites More sharing options...
brm1949 Posted April 23, 2004 Author Share Posted April 23, 2004 Thanks everyone for your support. Now I had my pet scan yesterday and from what they saw and showed me, there is nothing to report. The scan came back negative. Just to be sure, they did another one of the area that the ct scan showed positive. Still came back negative. Will see my onocolist on Monday, but I believe I am still clear and that maybe the ct scan picked up scar tissue from the radiation I got for lymph node which was positive just above my collarbone. The ups and downs this disease causes with every little developement can wear one down. I'm elated that the pet scan shows nothing, but what ever the ct scan shows I guess they will go in and biopsy anyway. That's just a guess, won't know until Monday what direction they will suggest. Thank you again for your support and if I can be of assitance to anyone, I will try my best to help. By the way, my onocologist diagnosed me with stage 4 SCC with unkown primary. That was for the second occurance after the tonsil SCC. Quote Link to comment Share on other sites More sharing options...
betplace Posted April 24, 2004 Share Posted April 24, 2004 I am sorry brm 1049, can I ask you please to define what you mean by SCC? DX SCC Right Tonsil 5/2002 Right radical neck dissection 6/2002 DX SCC unknown primary 9/2003 7 weeks Taxol carboplatin 11/2003 7 weeks Radiation 11/2003 DX Lung SCC 4/2004 I am of course familiar with SCLC and NSCLC, but have no clue as to what you mean by the above initials. Thanks for any help in advance, and welcome to our happy home, sorry you had to find us, but we are glad you are here! Blessings Betty Quote Link to comment Share on other sites More sharing options...
brm1949 Posted April 24, 2004 Author Share Posted April 24, 2004 SCC, Squamous cell carcinoma. I was DXed with it in may 2002, right tonsil and 3 of 33 lymph nodes which they took out in june 2002. Then in Septmber of 2003, Dxed with SCC on left side of neck in lymph node close to collarbone, but no primary was found, Dr said this lymph node normally points to lung cancer but at the time none was detected, now they believe growth they found in ct scan is probably the primary, but the pet scan came up negative so I really don't know where I stand now. Waiting to see Dr on Monday. Quote Link to comment Share on other sites More sharing options...
Tiny Posted April 24, 2004 Share Posted April 24, 2004 brm- This "limbo" thing is really the pits!!! But for the time being, the fact that the PET was negative sounds like really good news!!! Please let us know what measures will be taken next. Hoping and praying for no cancer! Quote Link to comment Share on other sites More sharing options...
stand4hope Posted April 25, 2004 Share Posted April 25, 2004 Hey brm, Thanks for posting your picture. I love the pictures - it really helps me to identify with others. You are a real cutie! Now, the next step is a first name. If you don't use it, when Snowflake gets back, she might take out the "r" and blame it on a typo! By the way, you have a great attitude! You call yourself a "survivor" right from the get go. That's a good sign and a good attitude helps in the whole process. Welcome again! Peggy P.S. You and my husband must go to the same barber - identical hairstyles!!! Quote Link to comment Share on other sites More sharing options...
stand4hope Posted April 28, 2004 Share Posted April 28, 2004 Hi again brm, What did you find out from your doc on Monday? I hope everything is ok. Peggy Quote Link to comment Share on other sites More sharing options...
brm1949 Posted April 28, 2004 Author Share Posted April 28, 2004 Well, Dr said pet scan was negative but the ct scan showed a new growth that he is convinced is malignant. So I will see the surgeon on thursday to set up biopsy and possible removal of upper lode. My onocologist believes I'm stage 4 advanced. He says the only reason he is even considering surgery is because I young and relatively healthy. He also said if it proves positive, they probably won't do chemo again. I quess he is suggesting pallitive care. I have to see what the dr says thursday. I'll keep you posted. Quote Link to comment Share on other sites More sharing options...
Fall54 Posted May 1, 2004 Share Posted May 1, 2004 Best of luck Bruce .. I am rootin for ya!!!!!!! God Bless You Quote Link to comment Share on other sites More sharing options...
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