TeeTaa Posted August 28, 2004 Share Posted August 28, 2004 Hello all - At about the time that TBone was getting very sick (in July), we found out that my 83 year-old father-in-law had been diagnosed with a very rare, very aggressive skin cancer called Merkel cell carcinoma, which acts very similarly to melanoma by attacking organs including lung, brain, etc. Its rate of recurrence is very high, and since it's so rare they don't even know what to treat it with when they find it. Anyway, back in mid-July they went in and excised a larger area around the original skin lesion and took out the first four lymph nodes into which that area drained (they did a dye treatment to determine where the area drained). We found out on July 30th, the day TBone died, that all those lymph nodes tested negative, so we thought it'd been caught before it had spread. The doctors still were recommending radiation and possibly chemo, just because of the high recurrence rate. TBone had been very concerned about my FIL, and while he was still able had done a lot of research about this particular type of cancer. I was so glad to be able to tell him, only a few hours before he died, that the lymph node biopsies were clear. Well, things have taken a downward turn tonight . . . a suspicious lymph node showed up on my FIL's CT scan last week, and we just found out that it is indeed malignant. At this point, we don't really know what to expect, as he's meeting with another surgeon on Monday and they'll probably schedule a more invasive surgery very quickly. If any of you know anything about Merkel cell carninoma, please let me know. I've done a good bit of research on it on the internet, and it's not pretty. But I'd really like to hear some real-life stories if y'all know of any. We'd already tentatively planned to visit the in-laws (in southern Missouri) over the Labor Day weekend, and this has certainly solidified those plans. Please keep my FIL, Jack, in your thoughts and prayers. I HATE THIS DARN DISEASE!! Praying for us all, TeeTaa Quote Link to comment Share on other sites More sharing options...
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