Hi Barb,
I participated in the drug trial for IRessa several years ago. I was scared to death after I read all of the warnings and potential side effects of the drug I may/or may not get.
I teetered back and forth whether the trial was right for me. In the end, I chose to participate with the understanding that I could stop my participation at any time. I felt that this gave me a little control. If it was making me sick, too many side effects, adverse results I could walk away.
There is no doubt that it can be a scary decision. For me, participation was to my benefit - I was given the actual trial drug and its probably kept my cancer at bay.
I did rely heavily on my oncologists help in making the decision and I also discussed it with the hospitals research nurse and my surgeon.
Whatever you both decide to do, I hope that you get great results and those neck nodules disappear in no time.
Wendy