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Wendy

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Everything posted by Wendy

  1. Thanks for sharing the LaCrosse pictures with us. What a handsome family you make. My niece graduated from UW-LaCrosse a couple of years ago and we visited Grandad bluff too. Its a very beautiful location. Wendy
  2. I also had cisplatin and etopiside (vp16) for nonsmall cell. I had my treatment Monday - Friday and then the following Monday, every 3 weeks for 3 rounds. I felt ok during the treatment. I was definetly tired, lost my hair and had a little bit of neuropathy in my hands and feet. I never was nauseated but I lost 20 pounds. My advise, Make sure that you get enough rest. Drink lots of water. Take the pre-medication even if you don't feel nauseated. Include a little exercise in your day even if it is just a walk around your house and eat small mini meals through out the day. Good luck with the treatment, I have my fingers crossed that they will work their magic for you. Wendy
  3. I could definetly lose a pound or two.....or twenty. I remember something similar that was done, gosh I don't know, 3-4 yrs ago here. Count me in. Wendy
  4. Welcome Caty, I am a survivor or adenocarcinoma. I have been fighting the beast for 4 1/2 years with the last 2 1/2 at stage iv. Over the 4 years I have visited alaska, wyoming, seattle, florida, montana, canada, san francisco, san diego, las vegas, canada......and I am sure there is more that I have forgotten. I celebrated my 40th bday, welcomed a grandchild, watched my kids graduate, my daughter got engaged...... My list goes on and on. Try not to take the statistics too sweriously. We all respond differently to the treatments. There are many stage iv survivors enjoying each day. My prayers are with you as you start your lung cancer journey. Let us know how we can help, Wendy
  5. Wendy

    My mom

    I am so sorry, prayers to you and yours, Wendy
  6. Wendy

    Just Checking In

    Welcome back again! Don't feel guilty posting your good news - Good news is ALWAYS welcome here. As a survivor I really need to here good new to keep hope alive. Cheers to many more great years ahead, Wendy
  7. Andrea, I have my fingers and toes crossed that your mom gets good scan results. Good luck with the diet. Wendy
  8. I have my fingers crossed that you are getting the "real thing" and that it is doing its magic. Congratulations on 41 years!! Wendy
  9. Wendy

    He is gone.

    Many prayers to you and yours, Wendy
  10. Prayers to you and yours, Wendy
  11. Wendy

    im new

    Welcome Mary, Wendy - 4+ yr survivor
  12. Wendy

    hola

    I am glad you checked in! I have had the Tarceva, Avastin, Zometa combo and it worked miracles for me. I have my fingers crossed that it is the magic bullet for you. Thats alot of activity for 1 household. Make sure you take a little time each day to be good to yourself too!! See you next month, Wendy
  13. Chris, Yikes, definetly a sad and scary situation. I hope better days are ahead for your mom and yourself. Welcome back, were here if you need it, Wendy
  14. Those little changes can turn into big changes..... Glad to here your hubby is getting some relief, Wendy
  15. Hi Judy, Yep, I have had the symptoms you mention. They started around the 7th month after being on Avastin and Tarceva. I have had two rounds with the combo - the 1st for a year, the second I am on now is at the 7th month. Both rounds I started developing the brain fog. The fog feels different from the chemo brain I had after my first line chemo. I sometimes explain the fog as the world moving a little bit faster than I can think The numbness in my finger and toes seemed to increase about this same time frame too. Do you have temperature issues with your hands and feet (extremely cold/hot fluxuations) too? My doc eventually cut back on the Avastin at about 9 months which decreased the side effects for me a little. Once the Avastin was stopped the symptoms decreased. My husband and doc like to remind me that I have been on some type of chemo/treatment almost continually for the last 4.5 years. I haven't a clue my side effects are from the Avastin, tarceva (been on daily for 2.5 years), the taxotere, cisplastin, vp16, iressa or just getting older. I couldn't tell you if it is the original chemo brain and neuropathy coming back or new side effects from avastin but I am betting it is the avastin since it has happened twice., My hubby and doc like to remind me that I have been on some type of chemo/treatment almost continually for the last 4.5 years - who knows whats what anymore. I have found that the symptoms get worse if I am tired so I tend to take extra time to rest when the effects are at their peak. Wendy
  16. Bravo Bravo Bravo - thanks to all for this thread! I have not been blessed with the ability to express my feelings well. I can stumble all over myself trying to explain how I feel at times. Dear fellow survivors I thank you for saying what I have felt so deeply but have been unable to express. (Does that make sense??) Hugs to all, Wendy
  17. Wendy

    Normal Shmormal

    Debi, You just crushed me - I have been telling myself that one of those pretty little underwife bra's were still in my future. I guess I am going to throw that dream in the drawer.... Ha-ha Your words truly mirror my thoughts on the subject. It is amazing how many stores carry bras that don't have an underwire Wendy
  18. Hi Sandra, Isn't it amazing how dreadful our mind can wander around scan time? I am so glad that you got good results back from the doc on the lungs. Sorry to hear that the back pain is sitll there. Hopefully the procedure your doc is suggesting will help. Wendy
  19. Wendy

    Intro

    Hi Deb, Welcome to the site! I am so sorry that your mom left us because of lc - stupid cancer!! Reading your story brought chills down my spine. Your mom was truly watching over you. Cheers to continued good health. Wendy
  20. Wendy

    5 years ago

    Bruce, Cured!!!!! Ok - my eyes were watering along with Kasey. You have been a great contributor here on the board. Thank you for sticking around and given us hope. God bless you, Wendy
  21. Wendy

    results are in

    Stable - One of my favorite words. Cheers to many more good reports, Wendy
  22. I am so sorry, my prayers are with you and yours. Wendy
  23. I havent had the experience of a paralyzed diaphram, but I did get a paralyzed vocal cord during the lung surgery I had. I think there was something I heard during my respritory rehab that they can give you a device to stregthen the diagphram but I can't recall if it was do anything for paralysis or not. I am sure there will be a few members here that can answer your questions. Take care, Wendy
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