Robert Macaulay

Kleo
The last two full doses of chemo were not very pleasant glad it was only two lost all my hair and two days with very bad fatigue and weight loss in the past now.
With this new drug I still cannot pick the winning lotto numbers, maybe with more infusions it might help..
Bob

Kleo
The last two full doses of chemo were not very pleasant glad it was only two lost all my hair and two days with very bad fatigue and weight loss in the past now.
With this new drug I still cannot pick the winning lotto numbers, maybe with more infusions it might help..
Bob

I go for my third infusion on September-27 and only feel tired the day after the infusion. Everyone has different reactions to any drug and for me I had none during chemo except for the usual fatique. What I have read if you can stay with it the results are very promising for some individuals who have posted  there results, So for my markers glad to be on it.
There is also a combination out there using this drug also.
 
Bob

Hi Kleo
The infusion took one hour and then the usual 15minute flush. I was in private clinic for the first time and the paper work and also the mixing  of the drug for the infusion as it does not come in bag that took about another hour and that looks like the norm in and out two hours. No other drugs or medication as far as i know. Felt bit tired this afternoon exactly 24 hours after the infusion other than that if Wednesday is good  with no side effects piece cake. They require I get blood work done and meet with doctor prior to each new infusion same as the last Chemo treatment, And I also have CT scan scheduled for October -29 and meet with the Oncologist November-8 That will tell the story if it is working or not.   The life of a cancer patient  Appointments.  lol

Kleo
I meet with Oncologist  November- 8th to review the results and make a decision to continue or cancel this treatment I will have had five infusions prior to the scan on October-29. I like quick results one way or another.
Bob

Kleo
I meet with Oncologist  November- 8th to review the results and make a decision to continue or cancel this treatment I will have had five infusions prior to the scan on October-29. I like quick results one way or another.
Bob

Funny had my  CT  July-25  Four weeks later August-27 had first treatment. 

Oh, I know it is.  I just meant it's great when anyone who needs these drugs has a way to get them.  Anyone eligible for such a program is fortunate.  
I know that R&D of new drugs is expensive, but some of the pricing really is off the charts.

Wow! Expensive stuff! I'm lucky as well I get it covered under a local charitable organization called Baycare.
I STILL don't have my start date though! Saw my onc today and she's ordering a CT first, follow up in 4 weeks...THEN I start. I think she's going on vacation so that's probably why I'm delayed. I guess there's no rush huh? October it is.... LOL
And YAY for no funky side effects Bob! 

And the clinic I use is Bayshore just a coincidence I doubt it.  Just buy good laxative and your good to go.  lol

Hi Kleo
I Do not worry about wonders I will be very happy to complete the full year of treatment as planned. Right now CT scan  in November and meet the doctor so go from there, They were happy with my previous treatment so I see no reason this will be any different but each individual can be very different in this game of medicine. I am very fortunate as all the treatment cost are covered at no charge to me and that is very substantial over the course of this type of treatment. The doctor did go over the side effects and seem no different from the previous chemo so the way I look at it  Que sera sera    lol
Bob    

Hi Kleo
The infusion took one hour and then the usual 15minute flush. I was in private clinic for the first time and the paper work and also the mixing  of the drug for the infusion as it does not come in bag that took about another hour and that looks like the norm in and out two hours. No other drugs or medication as far as i know. Felt bit tired this afternoon exactly 24 hours after the infusion other than that if Wednesday is good  with no side effects piece cake. They require I get blood work done and meet with doctor prior to each new infusion same as the last Chemo treatment, And I also have CT scan scheduled for October -29 and meet with the Oncologist November-8 That will tell the story if it is working or not.   The life of a cancer patient  Appointments.  lol

Hi Kleo
The infusion took one hour and then the usual 15minute flush. I was in private clinic for the first time and the paper work and also the mixing  of the drug for the infusion as it does not come in bag that took about another hour and that looks like the norm in and out two hours. No other drugs or medication as far as i know. Felt bit tired this afternoon exactly 24 hours after the infusion other than that if Wednesday is good  with no side effects piece cake. They require I get blood work done and meet with doctor prior to each new infusion same as the last Chemo treatment, And I also have CT scan scheduled for October -29 and meet with the Oncologist November-8 That will tell the story if it is working or not.   The life of a cancer patient  Appointments.  lol

Hi Kleo
The infusion took one hour and then the usual 15minute flush. I was in private clinic for the first time and the paper work and also the mixing  of the drug for the infusion as it does not come in bag that took about another hour and that looks like the norm in and out two hours. No other drugs or medication as far as i know. Felt bit tired this afternoon exactly 24 hours after the infusion other than that if Wednesday is good  with no side effects piece cake. They require I get blood work done and meet with doctor prior to each new infusion same as the last Chemo treatment, And I also have CT scan scheduled for October -29 and meet with the Oncologist November-8 That will tell the story if it is working or not.   The life of a cancer patient  Appointments.  lol

Hi Kleo
I Do not worry about wonders I will be very happy to complete the full year of treatment as planned. Right now CT scan  in November and meet the doctor so go from there, They were happy with my previous treatment so I see no reason this will be any different but each individual can be very different in this game of medicine. I am very fortunate as all the treatment cost are covered at no charge to me and that is very substantial over the course of this type of treatment. The doctor did go over the side effects and seem no different from the previous chemo so the way I look at it  Que sera sera    lol
Bob    

Hi Kleo
I Do not worry about wonders I will be very happy to complete the full year of treatment as planned. Right now CT scan  in November and meet the doctor so go from there, They were happy with my previous treatment so I see no reason this will be any different but each individual can be very different in this game of medicine. I am very fortunate as all the treatment cost are covered at no charge to me and that is very substantial over the course of this type of treatment. The doctor did go over the side effects and seem no different from the previous chemo so the way I look at it  Que sera sera    lol
Bob    

Hi Kleo
I Do not worry about wonders I will be very happy to complete the full year of treatment as planned. Right now CT scan  in November and meet the doctor so go from there, They were happy with my previous treatment so I see no reason this will be any different but each individual can be very different in this game of medicine. I am very fortunate as all the treatment cost are covered at no charge to me and that is very substantial over the course of this type of treatment. The doctor did go over the side effects and seem no different from the previous chemo so the way I look at it  Que sera sera    lol
Bob    

Hi Kleo
I Do not worry about wonders I will be very happy to complete the full year of treatment as planned. Right now CT scan  in November and meet the doctor so go from there, They were happy with my previous treatment so I see no reason this will be any different but each individual can be very different in this game of medicine. I am very fortunate as all the treatment cost are covered at no charge to me and that is very substantial over the course of this type of treatment. The doctor did go over the side effects and seem no different from the previous chemo so the way I look at it  Que sera sera    lol
Bob    

A little over a week from now! I'm not sure yet when I'll start. Probably sometime in September. I just finished 6 weeks radiation so I have to wait for the 3 week post check-up to find out. Not thrilled about infusions every 2 weeks...BUT...it shouldn't be nearly as long as the chemo infusions were! So YAY that! 
I believe I read that they have made Durvamulab the standard treatment now for unresectable lung cancer following platinum based chemo and radiation.  
Keep us posted on how it's going. 
I'll be right behind ya!
Hoping this stuff works wonders! LOL
 

Surviving lung cancer is like running a marathon in a hurricane.  To survive one needs to become resilient.  How?  Here is an approach.
 
1.  Develop firm beliefs
2.  Find meaning in the mayhem of your survivor experience
3.  Acquire a positive attitude
4.  Learn from the resilient among us
5.  Face things that scare you
6.  Get support when trouble calls
7.  Be open to new ideas; be a learner
8.  Exercise your mind and body
9.  Don't worry about the past
10. Recognize and rely on your unique strengths
 
Recall while in treatment, despite the many adverse side effects, the primary effect of treatment is extended life.  Do something meaningful with your gift of life.
 
Stay the course.
 
Tom

Amen!

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Daughter,
I am so very sorry to hear of your dad's recurrence.  That is what it is called when cancer returns -- a recurrence.  And unfortunately, recurrence with lung cancer is common.  I have non small cell squamous cell lung cancer and experienced four recurrences after treatment that showed me to exhibit no evidence of disease or NED.  Because lung cancer and in fact all cancer for that matter recurs so frequently, the treatment community has moved away from the word cure.  Remission is still used but the definition has narrowed to cancer that stops growing either as a result of treatment or not.  Here is a good summary of lung cancer that will acquaint you with basic terms.
What is the recurrence timeframe?  Mine were 6 to 8 months after last treatment.  It is not unusual that the duration is shorter or longer.  Everyone's cancer is somewhat different.  How effective will his second line treatment be?  The Lord only knows.  Cancer is a disease of one's genes.  Everyone's genetic structure is different thus on reason for the variability in treatment outcomes.  But, chemotherapy kept me alive for 2 years till a new treatment emerged from research to cause me to achieve NED.  In fact, I've lived nearly 14 years after diagnosis and many in fact on this site are long term survivors of lung cancer.  Those with small cell lung cancer are following emerging research in targeted therapy and immunotherapy.  These new methods are promising advances for small cell treatment.  Read about these here at the Clinical Research Study down arrow.
You may point your dad to this site as a place where he can understand and ask questions about his treatment and interact with survivors. Questions?  This would be the place for those.
Stay the course.
Tom