[Surgery/recovery tips]

Frank

Welcome. I suggest you post a new comment so for sure get responses. The wedge is great!

Lexie

Speak of the devil. Gotta believe this was one of your first posts? And look who was there right off the bat to help, Bridget and Tom G. Not at all surprised. 

Now you are very much like them and graciously offer your help as soon as you read a new post. You rock!

Peace

Tom

[Durvalumab]

9 hours ago, TerryB said:

Hi,

Ended up having pneumonia and spent two days in hospital. Learned that I should have pushed it more with my doctor. I knew something wasn't right. I pushed but not hard enough. Feel fine now and good news is that it did interfere with my infusions.

Listen to your body. If I hadnt I would have died twice! First from the original cancer and second when I had a PE. In both cases it required me to keep pushing until we found the cause. It is how it is....which means YOU have to listen to your body.

Surprised they didnt see elevated WBC in a blood test?

Peace

Tom

[Lung nodule]

Kathy

Could you repost this as a new topic in the Introduce yourself section? I think you will get more reads and you will also start a string of your own that will build a chronology.

Agree with the other comments. Please keep us posted...and welcome

Peace

Tom

[Introduction...3.5 cm Right Lower Lobe mass]

I'll be contrary to the consensus of the group here. I LOVE that they must post the results in the patient portals immediately now.  If the mumbo jumbo is to hard to understand just read the impression, it's like the summary.

I just had a scan on Monday, the results were posted by the time I got back home. Good results which saved me a lot of anxiety waiting for my appointment with my Onc. Even if it had been a bad result I, personally, want to know ASAP

 I always ask if they saw anything when the scan is done and they always tell me they cant discuss.

Peace

Tom

[Introduction...3.5 cm Right Lower Lobe mass]

Welcome. 3 cm is a pretty good sized little bugger. With the lymph nodes I would be pretty suspicious.

So. Cancer or not, you are learning the first lesson of the cancer struggle, hurry up and wait.

Keep us informed.

Peace 

Tom

[Any Pancoast survivors/stories?]

FWIW...get a second opinion but if it was me I would want the surgery. If my docs had known I had Large cell they may not have approved my surgery. I am so glad they didn't and that that vile tumor is gone.

Again. Just one man's opinion. Regardless I am rooting for you both.

Peace

Tom

[List of some commonly used acronyms on this site]

Rower is such a stud. A gender neutral stud of course 

[Who has Small Cell Lung Cancer?]

I have Large Cell Neoecrodin Non small cell lung cancer.  It supposedly acts much more like SCLC than NSCLC and has the same first line treatment.  So I tend to follow this forum the most. Had lower right lobe removed, Chemo (cis/etp) and adjunctive radiation. I should be NED.....will find out soon enough.

As for depression, I just finished treatment last week and almost immediately went to a dark place for a solid three days.  By far the most depressed since all this started in January.  Yesterday was the first day I felt mentally better since last week. No idea why, just glad the cloud has passed.

Wishing you all the best

Peace

Tom.

[Durvalumab]

DFK. Go Breavs! (Not sure if that is the school). If it is OSU and you haven't walked the campus in years I highly recommend that you take a stroll. Nicest campus in the Pac 12. Corvallis is the best town in the Pac 12.

Avoid Eugene at all cost and NEVER wear green and yellow... 😎

[Small Cell Diagnosis]

Yes I know the Chemo I will get -Cisplatin/Etoposide 4 cycles. Radiation is not a surething. Up to the tumor board but my oncologist didnt think there would be an issue. Would be daily but I dont know how many times. Guessing between 10 and 30. Basically standard treatment for small cell.

Yes, I am getting a port put in next Tuesday. Yes can do radiation with port.

You are correct that it takes some skill, luck and patience to get any specific information on Large cell but I think I am up to speed now. Have a couple specific questions for my oncologist appointment next week. And yes it is frustrating! And ask away. I too have become a cancer junkie.

MRI this Friday to confirm no brain mets.

Good luck with scan results

Peace

Tom

[Small Cell Diagnosis]

 

 

21 minutes ago, D iane said:

 

To be more specific, I have read one article that implied tecentriq could work on any solid tumor including Large cell. But it was only one article (but less than a year old). I'll talk with the witch doctor next week... 😁

[Small Cell Diagnosis]

11 minutes ago, D iane said:

Thank you, Tom.   I've been reading about your recent diagnosis, surgery, and getting set up with a treatment plan.  I don't think you will be given this immunotherapy drug?  I am hopeful that the chemo/radiation yields very good results for you and can keep away from the immuno stuff until much later...……..if at all.   

From what I can find Large cell is not normally treated with immunotherapy and the have not done any checks o  the tumor yet. I have read of two potentially effective ones tho and will talk with oncologist next week about them.

Regardless..the first line of treatment I am getting seems standard and any immunotherapy would be a second line of treatment, so I have time.

Thanks for the support and again I am hoping things get better.

Tom

Tom

[Small Cell Diagnosis]

Wishing you the best. You are so much further down the journey than I so my advice is not worth much...but I am approaching the coming fight one day at a time, one treatment at a time, one symptom at a time.

Hoping for good results and for one more treatment, one more time.

Peace

Tom