Judy M2
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Posts posted by Judy M2
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I haven't had the procedure but Tagrisso should help after the fluid has been drained. Plenty of people report that Tagrisso dried up their fluid completely. Two weeks is a short time, so give it time to work. For me, chemo and radiation resolved the fluid in my left lung. Best of luck with the procedure.
- Tom Galli, laurie2020, KarenR and 1 other
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I was actually diagnosed with lung cancer in October 2019 based on a CT scan. At the time, my PCP told me it's not a death sentence anymore. It wasn't until after a bronchoscopy that the biopsy indicated adenocarcinoma and biomarker testing showed an EGFR mutation. I was staged at IIIB. So I understand getting that shock of a diagnosis, but try not to panic if you can. Stay away from Dr. Google. I'm on a targeted therapy (a pill) and have been NED (No Evidence of Disease) since April. Please let us know what your testing reveals.
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Hi Allie, my father also passed away a few weeks ago but did not experience this.
All I can say is to let any guilt go. Some people seem to wait for their loved one(s) to be out of the room. I wish that had happened in my case, because my father's death was traumatic for me. In the weeks afterward, I've worked very hard to move beyond his passing for my own good. Forgive yourself for sleeping, you had no idea when his end would come. In my father's case, we thought he would die at Christmastime but he lingered for almost 6 months with a very poor quality of life.
My condolences, and I hope you can find some peace within yourself.
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Good to hear from you, Ale. Glad you're doing what makes you happy. Fingers crossed for good scan results.
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Blood transfusions are verrry slow. I hope you feel better afterward.
As an AYA (Adolescents and Young Adults with cancer), you may find some of the resources within the links below helpful. You shouldn't be isolated during these awful times.
https://www.cancer.gov/types/aya
Take care, Ale.
- AleHondaa and Rower Michelle
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@LouT I agree with you about nausea vs. pain.
Congrats on the collar removal, Ale. Will you be doing physical therapy to strengthen your neck/shoulder muscles?
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Ale, have you mentioned these side effects to your oncologist? Mucinex should thin the mucous but they may have something better. Drinking lots of water is helpful too. I'm wondering whether the mucous is actually post-nasal drip. An ENT can look at your throat and determine if it is. Claritin (loratadine) really helps with mine.
Hope you feel better very soon. You are a real trooper.
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KM, MuGard is great for mouth sores but is very expensive. I was lucky that my chemo nurse just gave me a bottle. You might ask your oncologist if they have samples.
FYI, my targeted therapy drug Tagrisso also can cause mouth sores (mucositis) because it goes after rapidly growing cells like hair, nails and those in the mouth and stomach lining. Earlier this week I had a recurrence of mouth sores after a busy and stressful week before. I used the leftover MuGard a couple of times and the mouth sores are gone.
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Kathy, Lexie gives you wise advice. As she says, 2 and 9 mm are very small. I have a stable 6 mm apical nodule in my right lung that is too small for a PET scan to characterize. My oncologist is just watching it with my regular 3-month scans. But you should definitely see a pulmonologist.
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I had all of my estate planning done in 2015, after I moved to CA. That included a power of attorney, health care advance directive, trust and will. So when I was diagnosed in 2019, I did not have any extra work to do. I have already selected a hospice provider (my palliative care team is part of the same organization) and a nursing home, should I need them. I'm not being morbid, just prepared.
- KM_NRP, Justin1970, LexieCat and 1 other
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@Jesse L., I've never seen one of my scans either, only the radiologist's report, and I really need my oncologist to interpret all the mumbo jumbo. I usually have to wait several days, and up to a week, to get my PET scan results. The report isn't posted to the patient portal until my oncologist reviews it with me. So I have learned to be a patient patient.
- LouT and Justin1970
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Justin
in INTRODUCE YOURSELF!
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I always recommend palliative care. And acupuncture can help. I should have engaged palliative care 6 weeks earlier than I did. I also went through rough times with chemo and radiation but have come out on top. Hope you do too, Justin.