Nancy B

Don, Lucie and you are in my prayers. Hope she is much better and home soon. Hugs, Nancy B

Hi Andrea, your Dad is still in my prayers. The Los Angeles Times puts out a "Health Section" every Monday. I e-mailed them last year but think I was too late. (latimes.com/health)) Just a thought. Hugs, Nancy B

Hi Jen's sister, I have sclc also and Jen and I talked on the phone acouple of times. I wish I could have gotten to know her better and meet her in person. I am not Irish, but it sounds like we are alot alike. I miss her and you and all of Jen's family are in my prayers. Hugs, Nancy B

Hi guys, thanks for asking. I haven't posted as I didn't want to sound like a whiner. The chemo/radiation combo has just about done me in. I have 10 radiation treatments left and 2 chemo, but my blood counts are pretty low so they cancelled this weeks chemo. Will get checked again tomorrow. I have had a really hard time getting the nausea and vomiting under control. Just generally feeling sh""ty. They may have to do a platelet transfusion, my port is on the radiated side (burned) - see what I mean about whining! I do check on you guys daily and all of you are in my prayers. Hugs, Nancy B

I was born and raised in Missouri which has a high incidence of radon in the ground...I had radiation therapy to my upper chest and face for acne as a teenager...I have lived in air polluted Los Angeles for 30 years, oh, and I smoked - quit 20 years ago. I have had nsclc and now on my 2nd time of sclc (same lung). So, WHAT CAUSED MY CANCER? I don't care, I just care that I have it and I don't want it. I am so sick of the stigma, I don't feel like I should have to explain "why" I have lung cancer. It makes my cry sometimes.

Hi Marco Jo, I am having the same problem with this chemo. My onc. nurse said it is ocular edema, sometimes it just happens but will clear up so don't change your eyeglass prescription. I am on Cisplatin. Hope this helps. Hugs, Nancy B

Thanks Chris, This may be something I will have to look into. Thanks for the info. and a big thanks for all the caring notes you have sent my way. Love and hugs, Nancy B

Hi guys, haven't been on here much. I have radiation every day and chemo every Thursday. We have tried (lst time) Emend and Zofran, besides what they put in the bag with the fluids. Extreme nausea Friday, Sat and Sun. Next time, Zofran and went in the next day for extra fluids and Aloxi. Still sick, can't eat for 3 days, vomiting Sat night and Sun morning. My onc doc told me that Cisplatin is worse as far as nausea goes - he wasn't kidding!. I can't even watch a food commercial on tv. My onc nurse said it is hard to force yourself to eat anything when you are ready to "toss your cookies" all the time. I average a yogurt and maybe a piece of toast by Monday morning, but that is it. I did get a Boost down Sunday night. I am feeling really weak, but that may be from the chemo/radiation combo. Anybody got any suggestions? I am sorry I haven't posted, but I think about you all and pray for you daily. Love and hugs, Nancy B

Many prayers for Joanie and you too Brian. Please give Joanie a big hug from all of us. Take care, Nancy B

Hi Andrea, I e-mailed a pic - did you get it? I might have done it wrong. Thanks

Jen, I don't think you need to apologize. I have seen "sending prayers, sending good thoughts", and some even quote scripture (which is just fine with me). I firmly believe that prayer has gotten me through 3 bouts of this disease and without God and Jesus, I don't think I could handle this. However, this is my belief. I think we can honor everyone's beliefs, or non beliefs, here. We all have our own ways to get through this life and we need to respect each of those ways. God Bless you too, Nancy B

Hi Jen, yes, I guess recurrence of small cell can be a bad sign, but I choose to look at it as just another battle in this lung cancer war. I am six years out of non-small cell and still clear. I was two years out of small cell when it came back this past May. They tried surgery as they had to find out if it was sc or nsc. No go, sc again. So, I started chemo and radiation and I will keep fighting this - I am not giving up. I believe it is possible to live with chronic lung cancer. I truly believe I will achieve another remission. I have to, I want to live to see grandkids and my son is only 24 and not married yet! I will be praying for a continued remission. Hugs, Nancy B

I firmly believe in the power of prayer. Lots of prayers for Karen, Tony and you. Love and hugs, Nancy B

telegraph

Many prayers for Rich - please be OK, we need you!

I had a port put in on Tuesday. I guess I had no idea what was involved. I am still VERY sore and bruised. Is that typical? When will it feel normal again? Also, how do you wear a seatbelt with this thing? Thanks Nancy B

Hi Holly, welcome. I don't really have an answer for you but I may after tomorrow. Two years ago I was given Carboplatin and Etoposide (VP16) for sclc. The sclc had been surgically removed so the chemo was a precaution to make sure it hadn't gone anywhere else. Well, two weeks ago I had another thoracotomy to biopsy something that showed up hot on the PET. It is sclc again and my oncologist did mention Cisplatin this time around. I have an appt. with him tomorrow and will find out more. It is my understanding that Cisplatin is a harsher chemo, but two years ago he told me that Cis and Carbo were pretty much the same but carbo was easier to take (fewer side effects). I will see what he says tomorrow and will let you know. Take care, Nancy B

Oh Andrea, nobody is getting sick of you, we love you. I am sure all of this will turn out good. My son (he's 24) developed blood in his urine when he was about 4. We took him to Children's Hospital and had every test in the book run. The concensus was "that is just the way he is". He still has it. They did say that if he ever got strep throat to get him on antibiotics immediately - not sure why. I guess it runs in the family as my Mom and I both have it. Thinking good toughts for you. You are right to have this stuff checked out. Let me know what happens. Hey, let's get together for lunch some Saturday. Love and hugs, Nancy B

Debi, I so agree with you. Reading his book has certainly helped me keep a positive attitude. Even spurred me on to do two half-marathons. If he appears to be somewhat arrogant, so what. I too think it is great that he is using his name to further cancer research. I didn't see the show either, there was racing on ESPN 2.

Louise, after my Grandma, her name was Grace Louise.

Dear, dear Carlene, my heart is breaking for you. Like TeeTaa said, just hold on tight. I don't have any words of wisdom, but I am praying for strength and comfort for you. Please stay with us. Love and hugs, Nancy B

Hi Billy, welcome. Just let us know what we can do to help you along, or if you just want to "blow off steam" (this CAN be a very scary thing). We will be here for you. Take care, Nancy B

A lion - 18 %

Hi Max, it sure never hurts to get another opinion, or 2 or 3. Just think positive, seems like this doctor isn't thinking positive. I haven't been on any medications between my remissions, and I am headed for my third surgery. OK, I changed my mind, definitely get another opinion, you need a doctor that will fight with you, if that is what you want to do. Max, you are in my thoughts and prayers. Hugs, Nancy B

Welcome Eileen, I am scheduled for surgery on July 10 also. My first surgery (nsclc) was done after a needle biopsy. Upper left lobectomy. But, the second tumor was too deep in my lung and too close to my heart for a needle biopsy, so I had to have surgery (lower left wedge resection) for them to biopsy it. Turned out to be sclc. This time a tumor lit up on a PET scan but, again, it is at a place they can't get to, so off I go to surgery again. Please let me know if I can help. I will be glad to try to answer any questions you might have about the surgery and recovery. The surgery is not easy but, as Connie said, it is certainly doable. I will be thinking about you on the 10th. Take care, Nancy B