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close to the edge

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Everything posted by close to the edge

  1. what a great idea wouldnt it be great to do something like that during the month of november nation wide!!!!!!! ann
  2. I had major pain management issues after surgery so much in fact that i was readmitted to the hospital 8 hours after being released. stayed in the hopital for another 5 days with the anestesioligist and pain management team trying to figure out how to help me. anyway i suffered alot of pain in the hospital as well as when i was finnaly released. I promplty made an appointement with a pain management doctor. the way she explaned it was nerve endings. severed or streached durring surgery Owch this is what causes the pain and takes a long time to heal and repair themselves. she put me on an anti sejure med caled zonigran. started slowley and had the drug build up in my system. her attitude with the pain killers was. people like us who really need the pain meds dont get addicted cause they are aware of the conciquences and have real pain. any way the zonigran is supposed to help the nerve endings find each other and heal. my surgery was in feb and i just went off the zonigran. not that the discomfort has gone away I still have the discomfort and occasional pings and pangs of pain but they are short lived and i felt i wanted to get off of it. one thing i will say that i think really helped my torso get back in shape was the way i move my body when i ride my horse. i also did alot of yoga for toneing & strengthening. and i am sure this helped in my healing proccess i hope this helps good luck pain is so hard to deal with. i can remember crying buckets
  3. i am so sorry for your loss may the lord give you strength to get thru this difficult time ann
  4. I am so sorry for your loss may he rest in peace Ann
  5. I am so sorry to read this news may your dear husband rest in peace Ann
  6. i think a thread for teens would be great i also think kids are smarter than you think and dont like info to be kept from them my kids were VERY angry with me when i would keep the bad news from them.
  7. hello although i am a bit younger than you i also have/had the same cancer in the same location but my tumor was slightly larger my surgeon also stated the same facts and felt that i did not need chemo he stated it would ONLY improve my chances of LONG TERM survival by 5%. ( it may not be much but hey dont you want the best odds) He felt i was cured. that is a surgeon speaking. He did his job and other thatn post op check ups thats all i see of him. the surgeon however does not work with cancer every day. after consulting with my onc and doing reserch of my own i felt that being sick for a little longer now after the surgery and improving my odds of survival was worth all the side effects that chemo would give me since it would kill any microscopic cancer that may have escaped the surgeons scapel. My onc felt since i was so young i should do anything that would improve my chances of long term survival. I have to agree with her. As others have said it is a personal decision I chose to do the chemo and althoug it was rough doing it now that i am done i feel great and pray that the chemo got the b stered good luck in making your decision Ann
  8. hey all i have never paid for a copy of any report in pennsylvania with the cost of health care noone should pay for copies of tests you already paid for your doctor is required by law to provide you with a copy of any of your medical records. if the office asks for payment for administration services put up a fuss and i bet you will get them at no charge ask your doctor not the radiology department i even got a copies of my parents medical records which covered many years at no charge.
  9. Just met with my onc and my latest CT scan is clean - clean - clean words can not express how happy I am I am sure there are alot of people out there that can relate best wishes to all of you!!!! Ann Now if i could only figure out how to get my photo on here then you all could put a face to the name!!!!
  10. Dear Ginny a poem for earl god saw you getting tired when a cure was not to be so he closed his arms around you and whispered come to me you didn't deserve what you went through so he gave you rest god's garden must be beautiful he only takes the best and when we saw you sleeping so peaceful and free from pain we could not wish you back to suffer that again May god give you the strength to guide you through this difficult time Ann
  11. should you see the onc or an orthopedist if you have back and shoulder pain i have had shoulder and back pain for several weeks that seams to be getting worse i thought it was muscle pain
  12. cat close to the edge here my name is Ann
  13. I'm not sure how much I could help you but i would volunteer I get the "oh she was a smoker all the time" that infuriates me and i tend to disassociate myself from these people I also had major pain issues right from the recovery room also being that I was diagnosed in the early stages of this beast i would do anything to bring more awareness to early diagnosis i dont think enough is being done about that and i think the general public has no clue smoker or non what the early sighns might be let me know if you would like my help oh one other thing I participated on a survey from this board that was supposed to be about post op pain managment. In my opinion it was the lameist survey for major surgery and i have no clue how it would help doctors help others in the future
  14. close to the edge

    David A

    to david and his family God saw you getting tired when a cure was not to be so he closed his arms around you and whispered come to me you didnt deserve what you went through, so he gave you rest. Gods garden must be beautiful, he only takes the best and when we saw you sleeping, so peaceful and free of pain we could not wish you back to suffer that again Dear David May you rest in peace with you beloved dog! Ann
  15. for me the first one was the worst one mainly because you just dont know what to expect be sure to write all your symtoms down so when you go for your next treatment the doc can make adjustments. be sure to take meds to prevent side effects before they happen they gave me emend which helped alot especially with the carbo it does get better ya just gota keep track of everything you are feeling so they can help ya thru it good luck ann
  16. Francine the prayers are there without you even asking all of us are rooting for you only wish we could take some of the anxiety away good luck on monday and damit they better have a bed for you be sure to keep us posted we will all be worried here Ann
  17. I pray for Earl to pass the restof his days in happiness with you by his side in no pain and for you to have the strength to get thru the hardest days of your life Ann
  18. Best of luck tomarrow of course prayers are being sent your way that goes without being said Ann
  19. Welcome home eleven days are an eternity i am sure you will be feeling better really soon now that you are home with all your furry friends. the motivation to walk the dogs and get out to the barn will have you up and moving in no time. for the same reasons i too was up and about!!!! Ann
  20. best wishes on speedy pain management there is nothing worse on this planet than unmanaged pain Ann
  21. May she rest in peace and look over you from a better place Ann
  22. prayers for an easy transition to no pain Ann
  23. so glad you are home take it easy you have all the time in the world to fill us in we will all be waiting patiently for your posts luv & light Ann
  24. T ask your onc to lay the red carpet out to the pain management specialist I should imagine the onc should be able to bump you up in line so you could get this taken care of. there is no reason you should be in the ER with Docs that are not familiar with you. As a matter of fact i would imagine your onc could get you in there STAT.
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