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Karma1976

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Posts posted by Karma1976

    Continuous vomiting - common w/NSCLC?

    in NSCLC GROUP

    Posted

    First off Michelle preparing for his death??? I honestly believe there is no such thing! take it from me! you can try as hard as you want but it just does work that way! I understand the medical community TRY as hard as they can to be "sensitive" in statements but jesus do they sometimes have no clue!

    Did you ask the doctor about the vomiting??? maybe he should go in before wednesday if that is not clearing up. I will be thinking of you and your family!! please keep us posted

    deleting all posts

    in GRIEF

    Posted

    I get that feeling too and i have sooo soo many dreams where i get to hang with my dad for a day. Keep his spirt alive and it will be cause hell....now when i watch national geographic explorer i am going to think of him. also HUGE learning channel, animal plant and discovery watcher...i wil be looking for his name now!!

    Jimmy Santilli

    in GRIEF

    Posted

    I was asked to post this again so here i go. it is a great poem for grieveing. it is on my dad's prayer cards.

    James F. Santilli

    July 8 1944 - May 25 2003

    God Saw you getting tired

    And a cure was not to be

    So he put His arms around you

    And whispered "Come to Me"

    A golden heart stopped beating

    Hard working hands at rest

    God broke our hearts

    to prove to us

    He only takes the best

    Miss you dad!!

    Mom-9:21 p.m. Mst

    in GRIEF

    Posted

    Rana!!!! I am here for you if you need to talk!!!!!! PLease accept my sympathy, i have been there and I thinking of you!!!! Remember all the good times!!! talk about the good times!!!! i can say a bottle of wine and some good friends and his fmaily remisinsing about what kind of person he was made me feel like he was watching over us and laughin along with us!!!

    Update On Dad

    in NSCLC GROUP

    Posted

    well the fever is normal (well NOT) but does happen. my dad's first chemo treatment he was right back in there cause he had a fever. YOU NEED to take him in when a fever is there cause he shoudl get an IV and he may have an infection like pnemonia or something and they can get him some antibiotics. so for his own good even if he doesnlt want to you need to.

    My dad was also on a VERY HIGH dose of OC's and i hated it. he was on 100's and took them 2x a day. so i hear ya. i have a funny story about his first time when the oc's hit the pain on the head.....he was so HIGH. haha i had to laugh cause he called EVERYONE to tell them he felt no more pain, he laughed he cried....i didnlt even knwo it was him casue iswear his voice was an octive higher! my mom was like i have no idea WHAT to do casue he will not stop calling people. i said unplug the phone!!! hahaha

    How do I get my husband to accept hospice?

    in NSCLC GROUP

    Posted

    Michelle I have heard of Bridge(heard great things) they wanted my dad to follow with that cause you can still do treatment. the never did bridge cause they could not staff enough people which was dumb. so he was only given the choice of hospice after that.

    as FAR as that doctor...shame shame on him!!! honestly it is one thing for a doctor to detach themselves from the patient...but to be inhumane??? NO WAY. I think my dad's oncologist was a little assholic myself and he told me after he told my dad no more treatment (by the way planned on going STRAIGHT for a second opinion hey if they said the same ok, but worth the effort) well after he told my Dad he said...I think he has accepted his death....I said oh really cause my dad might be guy not afraid of much BUT I HIGHLY doubt that jerk. like honestly!!! WTF you serious!! so so cold. I would say something. and I would ALSO reiterate if this was your family member??? would you not fight until you can not fight no more. that is what my dad did and I am very proud he did!!!

    I would talk to doctor and if he says that is it no more treatment. i WOULD get a second opinion. some people critize you when you do saying oh just let them die in peace!! no such thing. no peace unless you know you did all you could. or if you are content and they are content with it. I laugh at the people who discourage others from fighting as long as they can

    Did you Lose Your Eyebrows?

    in GENERAL

    Posted

    Luckily, so far, Keith still has his brows and lashes (especially lucky since he has the most beautiful eyes). Last week Keith and I had a good laugh because for the past two weeks he's been seeing a lot of hair in the tub. He was looking at his hair repeatedly everyday, and it looked the same, plus there was no hair on his pillow or shoulders. Then one day I noticed that his legs were nearly completely hairless. He was so concerned about losing his hair on his head, he never looked lower. I guess you had to be there, but we thought it was funny.

    Keith just started losing his hair this past week. We shaved his head Wednesday night and that was pretty traumatic. He has been depressed and moody since, and doesn't want me looking at him. He has said many times that he was expecting it, but really didn't want to lose the hair because he didn't want to look a cancer patient. I am really hoping he doesn't lose the eyebrows or lashes. That would just tear him up.

    Carleen TRUST ME my dad felt the same way. It was the worst part of all of it cause the man had a full head of hair very thick and a moustache almost all his adult life. His hair thinned to the point it was very umm wispy but never completely went bald but I am sure if he continued it would have. His eyebrows lashes and moustache got thin. But never fell out completely. funny thing thought was when he stopped chemo for a month he by accident started growing a goatee and he looked so cute. They cleaned him up for the funeral and he looked AWESOME and I was very adamant saying he ALWAYS had a moustache I have never in all my life seen him without so PULLLEASE make a special note to NOT touch that but clean everything else. It is hard for men I think more then some are willing to admit.

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