mamasbabygirl Posted March 29, 2005 Share Posted March 29, 2005 My family and I have had an attitude of "lets beat this cancer" since mom's diagnosis in May 2004. Recently, she has been so sick and even told me that she thought she was going to die yesterday. I was convinced from the looks of her. I am so afraid that she will just die, any minute. Her vomiting is not allowing her dylantin to stay down, so she could have a seizure that kills her or a blood clot could kill her. Or she could just starve to death. I tell you, my spirit is broken. I feel like we should talk about her dying, but then she will think I have given up. I guess I have. This sucks. Has anyone heard of someone having a seizure that kills them? I guess at this point I am just hoping that I can hold her hand when she leaves this place. Quote Link to comment Share on other sites More sharing options...
KarHart Posted March 29, 2005 Share Posted March 29, 2005 Lori, I am so sorry your mom is feeling so bad. I know seizures are really scary to see, but I don't think they are particularly dangerous. My father had brain cancer and when he had a grand mal seizure it just about scared me to death the first time. He was not even aware he had one when it was over. It was much harder on us then him. Hopefully, they will be able to get your mom stabalized and she can get back on track. Please just try to hang on there and we will all be praying for you. Karen H Quote Link to comment Share on other sites More sharing options...
Patkid Posted March 29, 2005 Share Posted March 29, 2005 We have no experience/or input..........just know we are praying and that we care. all the best for you and your mom. Pat and Brian Quote Link to comment Share on other sites More sharing options...
shineladysue Posted March 29, 2005 Share Posted March 29, 2005 (((Lori))), Lori, I wish I knew what to say. Mike's case is so different from your moms. Just know that I'm praying for you. Love, Sue Quote Link to comment Share on other sites More sharing options...
Tami Posted March 29, 2005 Share Posted March 29, 2005 I remember that feeling going through treatment. One night after getting chemo, vomiting till I thought my lung would surely come out, numbness to the point that I couldn't feel my fingers or toes, pain... I knew, just knew that I was dying. In fact I honestly thought that I would die that night. Days before I had gone through my important papers and stuff (tossed everything I didn't want my kids to find after I was gone), clean out my closet. I just had this feeling.. frightening to say the least but I knew if I closed my eyes and went to sleep I would die. So I stayed up all night. I can still remember in great detail the movie I watched and then watched again. Obviously, I didn't die but I know the feeling. I was just so "sick and tired of being sick and tired" your mom may be feeling the same thing too. While I have no idea what it feels like to be the Cancer caretaker I know what it's like to have had it. I would support her. If she feels like talking about dying let her talk. when she wants to fight help her fight. I wouldn't bring up the dying part... I would let her lead this dance. So she knows you haven't given up on her and you are there for her. Follow her clues and talk about whatever it is that she wants to talk about. No one knows what will happen or when it could happen. Take each day... I pray for both of you. I cared for my mother when she passed away (18 yrs ago) and it was the hardest thing I've ever done. Honestly thinking about my own death wasn't as horrible as trying to imagine my life without her. Lots of prayers and hugs for you both. Quote Link to comment Share on other sites More sharing options...
Treebywater Posted March 29, 2005 Share Posted March 29, 2005 (((Lori))) Wish I knew what else to say. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted March 29, 2005 Share Posted March 29, 2005 Can't tell you how many times I went to sleep not knowing if I would wake up the next day. And then I did. It is tough. No doubt. love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
Haylee_38 Posted March 29, 2005 Share Posted March 29, 2005 Lori, Just want you to know mom and you are in my thoughts and prayers. Haylee Quote Link to comment Share on other sites More sharing options...
betplace Posted March 29, 2005 Share Posted March 29, 2005 ((Lori)) I am so sorry your Mom is having such a hard time of it right now. I am sending Hugs and Prayers for a gentle path for you all to the winning of your battle against the beast. Blessings Betty Quote Link to comment Share on other sites More sharing options...
ginnyde Posted March 29, 2005 Share Posted March 29, 2005 Lori, I have no answers just genuine concern and prayers. This is not an easy journey but remember you are not walking it alone. Quote Link to comment Share on other sites More sharing options...
Jana_W Posted March 30, 2005 Share Posted March 30, 2005 Lori I am so sorry things are so rough at the moment. I really hope they can get your Mum's symptoms under control. If she is receiving the best medical care for her, the only advice I can offer to you is to just love her and love her as much as you can. And remember, while there is breath, there is always always hope. Jana xx Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted March 30, 2005 Share Posted March 30, 2005 Lori, I'm sorry your mom feels so rough right now. I'm sending prayers and good wishes, and hope that she feels better tomorrow. XOXOXOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
kim Posted April 1, 2005 Share Posted April 1, 2005 Lori, just try to be there for her. I think that when she is ready to talk about dying she will come to you. It's so hard to see someone we love who has always been so strong and indestructable, so to speak, go through what she is going through. I thought this can't be happening to MY mom! Try to find new ways to keep the meds down. Can she have nausea medication in the form of a suppository to try and combat the nausea? I hope and pray she gets out of this stage soon! Love and prayers, Quote Link to comment Share on other sites More sharing options...
lilyjohn Posted April 3, 2005 Share Posted April 3, 2005 I have no advice but am sending a lot of love and prayers. Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted April 3, 2005 Share Posted April 3, 2005 Just wanted to send love to you and Mom ((())). God will finish His plan. Your and Mom will be alright. God will help you both. Joanie Quote Link to comment Share on other sites More sharing options...
Ry Posted April 3, 2005 Share Posted April 3, 2005 Hopefully she has enough of the dilantin in her blood that her levels are ok. I believe you can get it in a liquid form also if you think that would be easier for her to hold down. Seizures can be very dangerous especially if she falls during one and hits her head. You should check with her doctor about her nausea and see if he can help somehow. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted April 3, 2005 Share Posted April 3, 2005 Hi Lori, I am so sorry you are going through such a hard, scary time with you mom. Take one day at a time and just enjoy being with her and holding her hand. You are a wonderful daughter and she loves you so much. I pray for strength for you both. Maryanne Quote Link to comment Share on other sites More sharing options...
berisa Posted April 4, 2005 Share Posted April 4, 2005 Serious seizure will kill. Did the oncologist or neurosurgeon know about your dear mom's current condition? Did they subscribe something or do something to help? Dilantin is a good medicine to prevent seizure, any way can get your mom have this med? Please ask the doctors. I hope your mom is getting better soon....i know it's very frustrating sometimes to the patient herself and to the caregiver, but don't give up please....i hope you feel better after vent....my thoughts are with you and your mom. Quote Link to comment Share on other sites More sharing options...
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