trishnmiller Posted April 29, 2005 Share Posted April 29, 2005 I am so thankful to have found this site! On January 13, 2005 I had my friends at the Fire Station take Jeff to the hospital because he was becoming increasingly "odd". For days he couldn't remember simple words and his eyes looked like he was on drugs. I kept demanding to know what was happening and he just kept repeating that he didn't fell well. Actually this had been going on all through the Christmas Season. When I got the diagnosis that he had 8 brain tumors from nsclc and 1 met in the liver, I felt like Alice falling down the rabbit hole into cancer wonderland ...not a nice place. We have 2 kids: John,12 and Megan,10. I work full time and we have no living relatives in the area. I never had felt so overwhelmingly alone in my life. They told me he had 1-3 months to live and to get his affairs in order. I won't go into the whole saga right now but that was in January and now it's almost May. He is back at work and has been since the middle of February. We changed oncologists and protocols several times. I became agressive and pro active. This is as much my disease as his and we are fighting for our life. After months on the internet there is very little clinical information left for me to read. What I need now is to know what "real people" are doing with their situation and the results they have. Statistics are depressing and seem to have no connection to our personal reality. We rely on brains, hope, and Faith in God. Trish Quote Link to comment Share on other sites More sharing options...
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