Trish Posted October 9, 2005 Share Posted October 9, 2005 My mom just finished 26 Whole brain radiation treatments on Friday. She was hoping it would help the double vision she has been having since August but it hasn't. The radiation doctor told her that it may be permanent but it still might improve in the next couple of weeks since the radiation will still continue to work. Has anyone ever heard of this? She wears a patch on her left eye and has a prism sticker on the right part of her eye glasses. If she has both eyes open she has double vision. Her balance is off and she has been using a walker. She had radiation Monday through Friday and it took us 45 minutes to get there each day for the 10 minutes of radiation to then drive 45 minutes back home. Mom could get around for about 1 hour once we were home but then was just too tired and stayed in her chair for the rest of the day. The steroids made her face swell and her appetite is crazy. She is frustrated that she had gained so much weight but feels like all she can do it eat. She goes to see the oncologist on Tuesday and is eager to start chemo again since it has almost been 6 months since she has been on it. She is really concerned about the enlarged lymph node on her collar bone. The oncologist was concerned about that in August too but didn't feel she was strong enough to do radiation and chemo together. I guess, I'm really scared for her, especially after she seemed like everything was back to normal for 4 months. My Mom has always been really tough and never complains but my Dad said she is really depressed, especially with not being able to drive. I live an hour away but go home with my 8 and 6 year old to help keep up around the house & farm. Plus, she loves seeing her grandkids. I guess, I'm just really emotional right now and wondering what can help my mom and what the doctor will say on Tuesday. Thanks for any ideas or similiar stories, Trish Quote Link to comment Share on other sites More sharing options...
slinaresholz Posted October 9, 2005 Share Posted October 9, 2005 That is true. Sometimes results will come even after completing radiation. That was true with a friend of mine with lc. They were trying to shrink a large tumor on his chest. It did finally shrink. Hoping the same happens for your Mom. Sharon Quote Link to comment Share on other sites More sharing options...
Don M Posted October 9, 2005 Share Posted October 9, 2005 Trish: I hope your mom's vison improves. that would surely be a morale booster. You all have my prayers. Don M Quote Link to comment Share on other sites More sharing options...
francesbean Posted October 9, 2005 Share Posted October 9, 2005 My prayers for your mom Trish. Quote Link to comment Share on other sites More sharing options...
Fay A. Posted October 10, 2005 Share Posted October 10, 2005 Hope the double vision disappears soon, Trish. Will keep you all in my prayers. Quote Link to comment Share on other sites More sharing options...
mayos Posted October 10, 2005 Share Posted October 10, 2005 WBR caused vision problems for me too. I couldn't even use my computer for quite a while.... But the longer I'm away from radiation treatment....the better it's getting. My ears took a beating too. I hope your mom's side effects fade with time like mine have. Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted October 10, 2005 Share Posted October 10, 2005 Hoping the double vision clears up, she is in my prayers. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted October 10, 2005 Share Posted October 10, 2005 Trish, I am so glad that you are able to get to see your Mom with her grandkids. I am sure that is what she has to really look forward to all week! No experience with WBR here, but lots and lots of good wishes for good healing and response for your Mom. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Patkid Posted October 10, 2005 Share Posted October 10, 2005 Lots of prayers coming. Love Brat Quote Link to comment Share on other sites More sharing options...
Darci Posted October 10, 2005 Share Posted October 10, 2005 Sorry to hear your mom is having such troubles...hopefully she will have some relief as the radiation continues working. It is hard when you don't live real close...sounds like you have found a way to help your mom as much as you can! Quote Link to comment Share on other sites More sharing options...
Ellen B. Posted October 11, 2005 Share Posted October 11, 2005 Trish, I hope your mothers vision will improve! I don't have lc but I certainly know about double vision. Had it myself a few month ago. I couldn't walk, read or watch TV because of it. I'll keep you and your Mom in my prayers. Ellen. Quote Link to comment Share on other sites More sharing options...
kamataca Posted October 11, 2005 Share Posted October 11, 2005 Trish, I can imagine that you are feeling overwhelmed right now. You are taking such good care of your mom, and be sure to take care of yourself as well. You can't help her or your two wonderful little ones if you burn out. I don't have any experience in WBR, but I will add my prayers for your mom. She's been through so much--I hope she gets some relief soon. Kelly Quote Link to comment Share on other sites More sharing options...
bunny Posted October 11, 2005 Share Posted October 11, 2005 I hope your mom gets some relief. sounds like such a rough road she's had. you're wonderful to help so much, and I am sure grandkids help whatever else ails her. of course, I'll say a little prayer for both of you. xoxo amie Quote Link to comment Share on other sites More sharing options...
Maryanne Posted October 12, 2005 Share Posted October 12, 2005 Hi Trich, I symphathise with everything you mom is going through. Especially, since she was feeling so good and had this setback. How frustrating and scarey this is. But there are a couple of posts here which is encouraging. For some people it is only temporary. Let's pay this is the case for her. Hang in there, I know it is hard. Just keep believing that this too shall pass. Prayers sent out to you mom. Maryanne Quote Link to comment Share on other sites More sharing options...
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