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DO NOT abruptly stop Neurontin!!!!


kimmek

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Of all the things Mom has dealing with lately you would think things would calm down but no...

I get to hospital this morning and Mom is just in more pain than I have EVER seen her in. In her FEET!!!! She said they were numb,tingly,(they are always that way but not as bad) and the aching and pain was unbearable. A sheet touching her feet made her cry. Her onc came in and although nueropathy (sp) does not normally just appear over night, we assumed this must it. Mom already takes 900mg of Nuerontin a day so she doubled the dose. Later in the morning another doc order a doppler of her leg to rule out blood clots. Her left leg had begun to get red and hot.

They finally do the test about 530pm and we are still waiting on those results, but I have already discovered the problem. WHen i gave the list of moms meds upon check-in, her specialist goes over everything and determines what meds she needs. I didnt give it much thought as she "needs" everything she takes.

After the test i get to the hospital and Mom is someone I have never in my life met. She was scared to death, having nightmares, said the nurses were there doing secret tests on her, takng her body parts. It would have almost been funny had it not been sooo very real to her, but the leg pain is gone now. Finally I get her nurse in there because she is being discharged and I just didnt feel this was a good idea given the state of mind she was suddenly in. After talking to the nurse we discover that the "hospitalist" have not ordered her Nuerontin upon check-in so she had not had any since Wends, night. So, we knew immeditaly why she was acting so odd and since they had started her back on it the pain was going away. Said it could take a few days to get enough back in her system to make her feel normal again. So she is still there at least for one more night. I am not a doctor but I knew that Nuerontin was a med that could not be abruptly stopped and you have to slowly taper off it. Are these doctors really that dumb? Do they just not pay attention to whats in a chart? i dont get it.....

So because of another imcompetant doctor we have put mom thru unnessecary pain,mental anguish, extra expensive tests, and another night in the hospital.

I can hardly wait to see what tomorrow brings!!!!

Thanks agian for listening and be cautious if you take this medicine.

Kim

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I am on Nuerontin for neuropathy and take 1200 mg twice a day. My nuerologist is changing my med as the neurontin is not working for me anymore. He told me to go off it 300 mg every 3 days as I am taking this new med. I have been in a lot more pain as I am going off it and have only dropped 300 mg twice now. It scares me as to what I will feel like when I am off of it.

Thanks for the warning but I did know it is a drug you need to taper off.

How awful for you're Mom. She is in my prayers.

God Bless you both,

Jane

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Hope your Mother can get some relief from her illness.....and her doctors/hospitalists!

I've just recently started a regimen of 600 mg Neurontin TID for idiopathic neuropathy (which means "no known cause") for a severe stabbing pain in one toe. The neurologist says it could be coming from a pinched nerve @ L5 or L6 and another in cervical which causes tingling and numbness in left arm along with itching on thumb and first finger. Could be on it the rest of my life or until I decide I'm willing to have surgery. The doctor said I could try to back off of it after a year or so just to see if I still need it. All I know is that now if I skip a dose, my toes reminds me sharply that it is in charge.

Fran

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Kim,

I just finished reading your first post about your mom's "hospitalist" and now about this negligence. It truly scares the hell out of me. I'm so sorry these things have happened to your mom and to you. All of these things are inexcusable. The sad part is that all of us have to get involved and ask questions, follow up and if need be report things such as what happened to you and your mom. I sure hope she continues to feel better once her medications are straightened out.

Sue

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Thanks for the support!! The only good thing about this stay has been the incredible nurses she has had, luckily pretty much the same ones so they are on top of everything. Its the darn doctors, they should just let the nurses care for the patients sometimes. Mom's foot pain is alot better but not gone. Dr said it may take a few days to get the Neurontin built back up in her.

Unfortunatly the saga continues........but I am totally exhausted and going to bed but will post about it in the morning before I go back to the hospital.

Kim

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Thanks for the support!! The only good thing about this stay has been the incredible nurses she has had, luckily pretty much the same ones so they are on top of everything. Its the darn doctors, they should just let the nurses care for the patients sometimes. Mom's foot pain is alot better but not gone. Dr said it may take a few days to get the Neurontin built back up in her.

Unfortunatly the saga continues........but I am totally exhausted and going to bed but will post about it in the morning before I go back to the hospital.

Kim

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Kim I am sorry your mom and your family has to go through this, she is lucky to have you there keeping an eye on things.

Do they just not pay attention to whats in a chart?

Sadly that has been my experience. You fill out all the forms and answers all the questions and then it seems know one bothers to read them. :(

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Kim:

I also am sorry you still have to put up with this incompetence. I know it takes a lot of energy to respond to the incompetence, but if it were me, it would at least make me feel good to find the doc and yell at him. I am not a lawyer, and also not a litigatious person, I think doctors are sued too much, but in your situation, they should be sued. If you document everything, you can always talk to an attorney when you have more energy at a later date. Anyway, I hope things go more smoothly for you and your mom from this point on.

Don M

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