eppie Posted October 11, 2005 Share Posted October 11, 2005 change in stage. now IV with brain mets. Two small lesions. asymtomatic..10 rounds wbr. Stereodatic after. More later. spirits hopeful.....nothing else to say.. Prayers for all. eppie Quote Link to comment Share on other sites More sharing options...
Linus32 Posted October 11, 2005 Share Posted October 11, 2005 Aww, Eppie, I am so very sorry to hear this. Keep your spirits up, there is always hope! You will be in my prayers. Linus Quote Link to comment Share on other sites More sharing options...
ginnyde Posted October 11, 2005 Share Posted October 11, 2005 Eppie, WBR is very effective with brain mets. Keep the hope. Quote Link to comment Share on other sites More sharing options...
francesbean Posted October 11, 2005 Share Posted October 11, 2005 Oh I'm sorry about the news Eppie. Hoping the radiation will make it go away. God bless. Quote Link to comment Share on other sites More sharing options...
Ellen B. Posted October 11, 2005 Share Posted October 11, 2005 Eppie, So sorry to hear this! I hope that the WBR will be effective. Ellen. Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted October 11, 2005 Share Posted October 11, 2005 Prayers that the WBR will zap those mets away. Joanie Quote Link to comment Share on other sites More sharing options...
SDianneB Posted October 11, 2005 Share Posted October 11, 2005 Eppie, you and your dad are in my thoughts and prayers that the WBR zaps the mets quickly and thoroughly. Tell him to keep up with the kicking a$$! Di (another native Texan transplanted to another state!) Quote Link to comment Share on other sites More sharing options...
Darci Posted October 11, 2005 Share Posted October 11, 2005 Eppie..so sorry to hear your news. Sounds like there is lots of hope with the treatment planned. Keep up the fight! Quote Link to comment Share on other sites More sharing options...
bunny Posted October 11, 2005 Share Posted October 11, 2005 sorry to hear about the mets, eppie. keep those spirits up, and I'll keep you in my prayers. xoxo bunny Quote Link to comment Share on other sites More sharing options...
kamataca Posted October 11, 2005 Share Posted October 11, 2005 Well, to put it mildly, that stinks! I know you will all rebound and attack the beast, but the initial shock is horrible. You are certainly in my thoughts and prayers. Hang in there! Kelly Quote Link to comment Share on other sites More sharing options...
pammie Posted October 11, 2005 Share Posted October 11, 2005 Sorry for the news Eppie but you guys are to be commnedned that you continue to be upbeat. Praying for you. pammie Quote Link to comment Share on other sites More sharing options...
eppie Posted October 11, 2005 Author Share Posted October 11, 2005 WE're taking hope that the mets are small and that there are only two. Does anyone know about temozolomide? It supposedly crosses the blood-brain barrier to attack mets. Thanks for all the kind support. It means the world to us to know we're part of a chain of hope. It's strange that he has brain mets. I was more concerned with bone mets. HE's the one who pushed for the brain mri. THe radiologist admitted the she was only doing to fulfill his request. Just thinking "what if we hadn't scanned him" is another reason to keep hoping we're moving in the right direction with this fight. He does have many hot spots on both of his lungs. But this brain situation trumps all.... Gotta go....Much love and healing to all on this blessed message board, Eppie Quote Link to comment Share on other sites More sharing options...
Don M Posted October 11, 2005 Share Posted October 11, 2005 Eppie: Hold on to your hope and let the mets be zapped. Don M Quote Link to comment Share on other sites More sharing options...
TAnn Posted October 11, 2005 Share Posted October 11, 2005 Eppie, Your dad sounds alot like me. I was having random pain "points" in my head and finally asked my doc for a brain MRI, discovered I had 6 mets, all very small. I had WBR and it worked! All mets are now gone or barely there. I think your dad will be able to zap those 2 mets with no problem. The worst part about WBR is the steroids. They make you feel grumpy, hungry and really crazy sometimes! TAnn Quote Link to comment Share on other sites More sharing options...
nonni Posted October 11, 2005 Share Posted October 11, 2005 Hi Eppie.... Kinda new here and not to familiar with treatments...but sure hope whatever it is works for your Dad....my thoughts and prayers are with him and all on this board...Pam S. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted October 12, 2005 Share Posted October 12, 2005 Hi Eppie, Sorry to hear about your dads brain mets. Thank G-d he asked for a brain MRI. Sounds like the doc has a good plan for him. Keeping everything crossed that those mets will be zapped in no time. Maryanne Quote Link to comment Share on other sites More sharing options...
jorja Posted October 12, 2005 Share Posted October 12, 2005 I am so sorry about the brain mets. Just know we are all praying that the wbr will get rid of them. Just remember there is still hope. love, jorja Quote Link to comment Share on other sites More sharing options...
flacrakr Posted October 12, 2005 Share Posted October 12, 2005 Eppie: Hopes and prayers for successful treatment. Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted October 12, 2005 Share Posted October 12, 2005 Eppie, I am sorry to hear of the news!!!! My prayers are with you and your family. GOD BLESS!! Jamie Quote Link to comment Share on other sites More sharing options...
eppie Posted October 12, 2005 Author Share Posted October 12, 2005 TAnn, Dad won't be taking Decadron....I am glad too...if we can avoid it we will. I have a meeting with the onc. today to go over some questions. Did anyone here do six months straight of chemo (carbo/taxol)? THat is three days of infusions: one day carbo, next taxol then pamidronate. That's what my dad has been told he's doing. SO far week three he's tolerating it well. I want to know if we're being aggressive enough. How do we know for sure if he's responding...what exactly does response look like? I managed to get them to draw blood for a CEA today. THat should provide baseline. GOd, I want to grab cancer by it's throat and throttle it for giving us all this much trouble. On the good news: I bought my dad one of those space age memory foam mattresses. He loves it. The only problem is that it props his bed up another 6 inches and it's like his bed surface towers above everything else in his room. I will probably take it apart today so the whole thing sits on the floor and not the railing. Peace and healing to all in pain and strength to those in need. May all our prayers in mass bring peace! Eppie Quote Link to comment Share on other sites More sharing options...
Fay A. Posted October 12, 2005 Share Posted October 12, 2005 Hang in there, Eppie. Lots of folks have brain mets that are successfully treated. And the Docs are coming up with new treatments and ways to deal with side effects every day. Quote Link to comment Share on other sites More sharing options...
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