dcorey33 Posted November 11, 2006 Share Posted November 11, 2006 After my lung surgery back in May the oncologist I saw said I was cured. Now after months of mysterious symptoms, they are now saying that maybe the carcinoid has spread. I knew after all the reading I did there was a 75% chance of it reoccuring somewhere else, because of it's size when it came out and because it was atypical. I have always held on to that 25% chance it had not. Nothing confirmed yet. I go in for an octreotide scan this next week. The one test I told them I needed in the first place and back then they said it was not needed. As my Dr. put it he (the oncologist) pulled an oops. So I am facing my worst fear all over again. I am actually really calm. I think in part that I knew that this was a possability. I just was not expecting it to come so soon. I am hoping that it is nothing, even though they are prety sure. I am just a little nervious and wanted to get it out somewhere. Only my husband, best friend and my mom know. My husband and I have decited not to tell our daughter and other family untill we know something, but I needed to get it out. Thanks for listening. I will update as soon as I know something. dani Quote Link to comment Share on other sites More sharing options...
Kasey Posted November 11, 2006 Share Posted November 11, 2006 So sorry, Dani, BUT try to breathe until you know something for certain. I'm not sure I could do that, but just felt the need to tell YOU to do that. I will reamin hopeful right now. I am glad you felt this was the place to let it out. You know we are all here to support you......no matter what. Let us know when you find out for sure. Kasey Quote Link to comment Share on other sites More sharing options...
Ry Posted November 11, 2006 Share Posted November 11, 2006 I hope your symptoms are nothing. It hasn't been very long since your surgery. In reading your profile, you may want to think about another oncologist. Let us know how the tests go-- I am hoping your worry is unfounded. Quote Link to comment Share on other sites More sharing options...
dcorey33 Posted November 11, 2006 Author Share Posted November 11, 2006 I recently found out about an oncologist in San Francisco who is supose to be an up in coming carcinoid specialist. He joined Kaiser last year (my health plan). My reg. Dr. has emailed him to get opinion and to see if he will see me. It is over 50 miles from where I live, but I told her I was not going to see the same oncology Dept. again because of the way I was treated. I am luck in the fact that I have a great Dr. who is willing to help me. Like I said I am still holding on to that 25% chance that it has not spread. Life goes on and this is just my new normal. Thank you dani Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 11, 2006 Share Posted November 11, 2006 I'm hoping also that this is just a bump in the road. Don Quote Link to comment Share on other sites More sharing options...
carolhg Posted November 11, 2006 Share Posted November 11, 2006 I certainly hope you see the new doctor soon. It is very important to be proactive when it comes to your own health care. Prayers Quote Link to comment Share on other sites More sharing options...
Don M Posted November 11, 2006 Share Posted November 11, 2006 I hope it turns out to be nothing Dani. I am holding on to the chance that my latest cancer is dead and that there will be no more. I am glad you are holding on to the chance for a cure too. Don M Quote Link to comment Share on other sites More sharing options...
trish2418 Posted November 12, 2006 Share Posted November 12, 2006 My prayers that all goes well. Trish Quote Link to comment Share on other sites More sharing options...
Andrea Posted November 12, 2006 Share Posted November 12, 2006 I hope this all turns out to be a scare Please keep us posted. Quote Link to comment Share on other sites More sharing options...
dcorey33 Posted November 12, 2006 Author Share Posted November 12, 2006 I don't know when I will get the results, but I will let all of you know. This is going to be a busy week for me. I have a head CT on Mon.(I passed out a few times last week at work and it is just a precaution) and the scans on Teusday and Wed. I also work full time so I will have to make up the time somewhere as well LOL... Thank you for your thoughts and prayers. Don M- I hope yours is gone as well. I like to see the positive in everything, even if it turns out to be not so great news. It always could be worse. Here is to hope dani Quote Link to comment Share on other sites More sharing options...
Nushka Posted November 12, 2006 Share Posted November 12, 2006 dani, I sure hope this is just a scare. Glad you have a second opinion and don't blame you for not wanting to go back to the first group. Best of luck. We'll be waiting to hear your results. Nina Quote Link to comment Share on other sites More sharing options...
nonni Posted November 12, 2006 Share Posted November 12, 2006 Hi There...sorry you are having concerns...not gonna tell you not to worry cause that's all I ever do...but try not to jump the gun...it may not be anything but "another' scare...AND...I would positively see another 'onc'...no reason for you to be treated like that...prayers for you...PamS. Quote Link to comment Share on other sites More sharing options...
golden275 Posted November 13, 2006 Share Posted November 13, 2006 Dani, I too hope this is just a scare. I've been through this twice so can't tell you not to worry. Hope everything turns out well for you. Quote Link to comment Share on other sites More sharing options...
blaze100 Posted November 13, 2006 Share Posted November 13, 2006 My prayers are with you and your family Dani. Hopefully it is false alarm but even if it is the real thing, sounds like your new doc will know what to do and have a good plan. Barb Quote Link to comment Share on other sites More sharing options...
dcorey33 Posted November 17, 2006 Author Share Posted November 17, 2006 I got my scans done this week and it looks like the cancer might have spread to my pancreas They are sending me to get a P.E.T. scan next, to get a better image. Not sure when that will be scedualed, being the holidays are next week and all. I am hoping it is nothing and just a meaningless shadow. I have so many feeling running through my mind right now. My husband says it is going to be nothing, but it is kind of hard to have his optimisum all the time. I am really scared Danica Quote Link to comment Share on other sites More sharing options...
Shar Posted November 18, 2006 Share Posted November 18, 2006 Danica my thoughts are with you at this time. It is a lot to be going through, terrifying. I will be hoping it is nothing to worry about and will be sending every positive thought I can your way. Sharon Quote Link to comment Share on other sites More sharing options...
Tracey Huguley Posted November 18, 2006 Share Posted November 18, 2006 Danice, I will keep you in my prayers...sending healing energy and positive thoughts your way.... Tracey Huguley Quote Link to comment Share on other sites More sharing options...
gail Posted November 18, 2006 Share Posted November 18, 2006 At my high points of anxiety, I try to tell myself not to give cancer one more minute of my time. I tell myslef not to let next week's test to interfere with this week. I don't want to spend THIS week worrying about NEXT week. Sounds good, but of course it doesn't always work. Prior to my lung surgery I was on an anti-anxiety med, and anti depressent, and an ativan for those over the top moments. Good wishes and good vibes gail Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted November 18, 2006 Share Posted November 18, 2006 Oh Dani, So very sorry for the angst you are going through right now. Wish I had a magic wand and could whirl and twirl the fears right out of you. Staying hopeful with you! Cindi o'h Quote Link to comment Share on other sites More sharing options...
dcorey33 Posted November 18, 2006 Author Share Posted November 18, 2006 Thank you so much for all fo the prayers ans advice. I think the only time I really think about it is at night when I can not sleep and I look over at my husband and he is just staring at me (because he can't sleep either). Neither one of us ha really talked about it. It is like we are avoiding it. This coming holiday is going to be interesting, because we have not told any family. His family is coming into town and I am wondering how we are going to explain my apperance to them. I have dropped 40 pounds since they saw me and that was a heathy weight.For the past few months I have not been able to keep food in me for any lenth of time (one of the symtoms of carcinoid syndrome). It is kind of sad when you can wear your 11 year old daughters jeans, because yours don't fit LOL... It is not for lack of trying. My husband is set agaist not telling his family untill we have concrete news. I agree as long as they don't have to see me. I just don't want to lie to them at all either. Other than that my days are so full of everyday activities I don't have time to think about the cancer except for when I am in hthe Dr.s office LOL.. dani Quote Link to comment Share on other sites More sharing options...
mayos Posted November 18, 2006 Share Posted November 18, 2006 I'm sending along some extra strength I'm not using right now..... Sorry to say this disease seems to know no boundaries. Quote Link to comment Share on other sites More sharing options...
carolhg Posted November 18, 2006 Share Posted November 18, 2006 I am praying for you and I pray that all works out well. Quote Link to comment Share on other sites More sharing options...
dcorey33 Posted November 21, 2006 Author Share Posted November 21, 2006 I got the test date for my P.E.T. scan. They want to do it this Sunday the 26th. I didn't think they were going to have an opening that soon, but I guess it depends on the priority of the case. Apparently mine was high. I still have hopes that this is nothing but a shadow and all is well. Even if the Dr.'s say otherwise, but even they have known to be wrong Danica Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted November 21, 2006 Share Posted November 21, 2006 Hoping all works out well. Quote Link to comment Share on other sites More sharing options...
trish2418 Posted November 21, 2006 Share Posted November 21, 2006 Danica, you're in my prayers. Trish Quote Link to comment Share on other sites More sharing options...
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