spicysashimi Posted March 31, 2007 Share Posted March 31, 2007 My doctor friend got me the results. I've progressed. Lung tumor has grown. Tumors in bone have grown. Returned tumor in shoulder blade. New tumor in neckbone. All have increased uptake compared with last study. This sucks. I'm really bummed out. Popped an ativan. What now? aaron Quote Link to comment Share on other sites More sharing options...
wiesia Posted March 31, 2007 Share Posted March 31, 2007 Ughhhhhh. I am so sorry about this. You should get some sleep and get ready for the next line of attack on Monday. If it is any concollation Tarceva did not work for many many people (they had progression while on it) but second lines of chemo worked very well. Is there a chance they could radiate that sucker in the lungs ? Quote Link to comment Share on other sites More sharing options...
raneyf Posted March 31, 2007 Share Posted March 31, 2007 Well, shoot. I'm so sorry about the bad news. I can't believe it - I thought for sure the Avastin would hold you for a while. I'm sorry if I'm weirdly personally invested in this, it's just that your diagnosis is so similar to mine. I just found this other vaccine that looks good. Not Stimuvax, that's discriminating against us stage 4's. This is called Lucanix. It just finished phase 2 trials and the results didn't look too bad. The website is www.novarx.com. It says Phase 3 trials starting in 2007. Maybe you could check into that. Other than that, I'm sure your docs will have some good ideas. You're still working-out, working, taking care of yourself, etc. There's got to be a treatment. Hope Julia gets back soon. Try to distract yourself till Monday if possible. Take care. Raney Quote Link to comment Share on other sites More sharing options...
Liz13 Posted March 31, 2007 Share Posted March 31, 2007 ((((Aaron)))) It hurt so bad to read this. I had to stop and pray for you before I could answer. I know this must be very frightening news, but you will keep on fighting. You have more guts then most folks I've met. I really enjoy reading "wheresmyp53". I check everyday to get a personal update from you. I hope Julia gets back from Mexico soon and I will pray for her safe return. Please take care of yourself. I wish I had some really wonderful words to share with you to make you feel better. But I don't. Praying for strength, courage, peace and healing for you. Hugs, Liz Quote Link to comment Share on other sites More sharing options...
Ry Posted April 1, 2007 Share Posted April 1, 2007 It does suck-- I'm sorry you've had progression. Get with your doc on Monday and go on to the next round. Something is going to work to knock this crap back-- just need to find it. Quote Link to comment Share on other sites More sharing options...
Welthy Posted April 1, 2007 Share Posted April 1, 2007 Aaron, This sucks eggs. Getting less than stellar scans really knocks the snot out of you emotionally. Sorry your girl is away. We are all here for you. Feel free to post, pm, or whatever. I felt so bad, hubby and I had to hug after reading your post. Hubby had a lot of progression while on a break and on Tarceva. His new treatment is working. There is still a lot of treatments out there for you and DON'T you forget it! (Putting my best Mom/caretaker voice on.) Hang in there honey, there is a plan for you that will work again. Take some deep breaths and try to relax. (Ativan is good!) Welthy Quote Link to comment Share on other sites More sharing options...
Shelley (MLC) Posted April 1, 2007 Share Posted April 1, 2007 Aaron, I am so sorry about your results. You are working so very hard to stay in shape and I know you'll keep fighting this. You and your Doctor will come up with a plan on Monday and you can start taking the next step in beating this monster! Shelley Quote Link to comment Share on other sites More sharing options...
wendyr Posted April 1, 2007 Share Posted April 1, 2007 Aaron, I'm just so sorry to hear this news. I was hoping for a good report for you. Let us know what the doc's new plan of attack is. Good Luck & God Bless. wendyr Quote Link to comment Share on other sites More sharing options...
Heather_T Posted April 1, 2007 Share Posted April 1, 2007 This just all sucks. I hope you and your doctors find a line of treatment that will work. I am also sorry that Julia is not with you. My prayers and thoughts are with you. Quote Link to comment Share on other sites More sharing options...
mary colleen Posted April 1, 2007 Share Posted April 1, 2007 Aaron, I won't be sorry; in my mind, you are a brave fighter, and you simply must keep fighting. I have faith in you. You keep at it - it has been so darn hard for you, so unfair at your age, but I have faith that you will move on to the next option, and ultimately win. Here's a big hug ((()))) - now go back at it! I am rooting for you! Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted April 1, 2007 Share Posted April 1, 2007 Aaron, You are such a fighter and this is just a little bump in the road. Keep the faith and keep hoping. There are alot of good treatments out there. I'm praying that you will find a very successful one... God Bless!! Jamie Quote Link to comment Share on other sites More sharing options...
sharonjo Posted April 1, 2007 Share Posted April 1, 2007 Oh Aaron, This truly sucks! I am so sorry to hear this news. Please hang in there and keep fighting. I honestly believe that your mental status is a large part of overcoming disease. Talk with your oncologist and move on to the next line of treatment with the mental resolve that you can and will beat this. I continue to pray for your success! God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
Don M Posted April 1, 2007 Share Posted April 1, 2007 Aaron, I was sorry to read of your bad news and share your disappointment. Maybe you could try a different chemo with the avastin. Don M Quote Link to comment Share on other sites More sharing options...
ernrol Posted April 1, 2007 Share Posted April 1, 2007 Arron, I am so sorry to hear about the progression. I was wondering why they discontinued the Cisplatin/Docetaxel, or did they. You had a 40% reduction. When I started my chemo I had Carboplatin/Taxol along with the Tarceva. After two months I showed good shrinkage. They continued the Carboplatin/Taxol till I was in remission. They left me taking Tarceva 100mg, which I still take. I often think what I would do if things seemed that they were not going well. I have been to MSK. I had my second opinion there and was happy with them. I now think that I would go to M.D. Anderson in Houston. They really seem to do some new methods of beating this disease. It wouldn’t hurt to give them a call. I will keep you in prayer. Stay positive, Ernie Quote Link to comment Share on other sites More sharing options...
trish2418 Posted April 2, 2007 Share Posted April 2, 2007 I'm so sorry, Aaron. Hopefully the next line of chemo will do the trick. I started on Taxol/Carbo but had to switch to Taxotere/Carbo after 2nd infusion due to reaction to Taxol. Taxotere worked great for me. Saying lots of prayers, Trish Quote Link to comment Share on other sites More sharing options...
fillise Posted April 2, 2007 Share Posted April 2, 2007 Dadgummit (really, I'm thinking of a much stronger word right now). Let us know what the Dr. says. In the meantime, I'm thinking about you and praying for a more effective line of treatment.--Susan Quote Link to comment Share on other sites More sharing options...
ErinC1973 Posted April 2, 2007 Share Posted April 2, 2007 Damn. I'm just so sorry Aaron. My mom had no luck with Tarceva either. However, she switched to Taxol/Carboplatin and had fabulous results. And no more severe skin problems, either. And, I think it just sucks that you had to wait so long for the results. Quote Link to comment Share on other sites More sharing options...
pewjumper Posted April 3, 2007 Share Posted April 3, 2007 Man, I've got a lot of faith in you. Come here for support, but I think you're gonna be fine. I also enjoy your blog. Quote Link to comment Share on other sites More sharing options...
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