wvredneck4_48 Posted April 26, 2007 Share Posted April 26, 2007 Hi, my name is Charlotte. My husband, Jimmy, was just dx'd with pancoast tumor. He thought he had a pulled muscle. The past 3 weeks have been terrible. The news we got today was good & bad. He cant have surgury right now, its to large. But there isnt any node involvement according to the PET scan. Well, I dont know what else to say right now. Still in shock. So I will go for now.. Quote Link to comment Share on other sites More sharing options...
Kasey Posted April 26, 2007 Share Posted April 26, 2007 Welcome Charlotte! I am a pancoast tumor...stage IIIA or B depending on what institution you want to believe. There are more of us too! How about providing some additonal info and perhaps we can help you along this road. IF you want ~ PM me. There is a Personal Message function which works like email. Just click on the PM symbol on my post here.......type all your info, questions, etc. and then hit Submit. I'm happy to respond. Kasey Quote Link to comment Share on other sites More sharing options...
laban Posted April 26, 2007 Share Posted April 26, 2007 Welcome Charlotte & Jimmy, So sorry you had to find this site, but it will be so helpful with questions you may have. There are so many wonderful survivors and caregivers and others who are a wealth of knowledge when it comes to lung cancer. You're on the right road. Blessings to you both. Laurie Quote Link to comment Share on other sites More sharing options...
Ellen B. Posted April 26, 2007 Share Posted April 26, 2007 Welcome Charlotte! My friend also has a pancoast tumor. He's stage IIIB. He (and his docs!) also thought that he had a pulled muscle. This board is wonderful. Lots of info and support here. I see Kasey has posted already. She has helped us a lot! Ellen. Quote Link to comment Share on other sites More sharing options...
Ry Posted April 26, 2007 Share Posted April 26, 2007 Charlotte- I am glad you found us. The beginning is very hard, I remember it well. Let us know your husband's treatment plan and more information when you have it. Rochelle Quote Link to comment Share on other sites More sharing options...
Don Wood Posted April 26, 2007 Share Posted April 26, 2007 Welcome here! Let us know how we may support you through this. Don Quote Link to comment Share on other sites More sharing options...
trish2418 Posted April 27, 2007 Share Posted April 27, 2007 Welcome, Charlotte. I hope treatment goes well for Jimmy. Please keep us posted on his progress. Trish Quote Link to comment Share on other sites More sharing options...
Nushka Posted April 27, 2007 Share Posted April 27, 2007 Charlotte welcome to our group. Sorry you had the need to look for us but you are in the right place. There are many here that can help. If you can fill in your profile it will help us help you. Nina Quote Link to comment Share on other sites More sharing options...
Donna G Posted April 27, 2007 Share Posted April 27, 2007 Hi Charlotte. You guys should join our Pancoast tumor survivor club! I too went to the doctor thinking I needed an Orthopedic opinion! Have you got a game plan yet? I started with chemo and daily radiation to shrink the tumor before surgery and the plan included chemo after surgery again. As you can see this whole thing started 12/3/97 for me and I am still celebrating that I am cancer free today! Keep us posted. My story "Over the Mountain and to the Valley" is in that ribbon if you would like to read the whole thing. Best wishes and prayers, Donna G Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted April 27, 2007 Share Posted April 27, 2007 Hi Charlotte, My pancoast tumor when removed was thirteen pounds. Pretty big. The surgeon at NIH who does pancoast tumors may well see options your doctor doesn't. I'm out 7 years from diagnosis. He also did Kasey's surgery, after I told her about him. Her doctors were not optimistic. But they were wrong! Let either Kasey or myself know if you want contact information for this doctor with National Cancer Institute, NIH, Bethesda, Md. Good luck! Glad you found us. XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
ztweb Posted April 27, 2007 Share Posted April 27, 2007 Welcome Charlotte...you have come to an amazing place. Blessings to you, Jen Quote Link to comment Share on other sites More sharing options...
barbara5452 Posted April 29, 2007 Share Posted April 29, 2007 Hi Charlotte, every day will be a little better at accepting everything, of course the demon comes to visit on occassion but you will learn to deal with it. Sorry you have to be here but know you are in the right place for support. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted April 30, 2007 Share Posted April 30, 2007 Welcome Charlotte to the board. Rich Quote Link to comment Share on other sites More sharing options...
Flowergirlie Posted May 1, 2007 Share Posted May 1, 2007 Welcome Charlotte (and Jimmy). There is tremendous support here so use it to your advantage. I hope it all works in your favor with treatment. Peace...Flowergirlie Quote Link to comment Share on other sites More sharing options...
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