joanna1022 Posted June 5, 2007 Share Posted June 5, 2007 HI MY NAME IS JOANN NEW TO THIS SITE AND LUNG CA WAS DX MAY 8 07 . MY ONC STS IM A STAGE 4 DUE TO TWO VERY SMALL SIZE OF A PEA ON MY UPPER SPINE NO WHERE ELSE PRAISE GOD. AND A 3.5CM 2.2 TUMOR LUPPER LOBE NO SYMPTOMS, NO SOB WEIGHT LOSS COUGH JUST VERY LITTLE UPPER BACK PAIN I THOUGHT FROM WORKING OUT. WELL JUST CHECKING IN AND THANKS FOR BEING HERE HUGS PRYAERS JOANN : : : Quote Link to comment Share on other sites More sharing options...
karenlaureti Posted June 5, 2007 Share Posted June 5, 2007 Hi Joann, Welcome. There is so much you can learn and so much positiveness here. I wish you all the best. E-mail me any time. Quote Link to comment Share on other sites More sharing options...
tiredmom959 Posted June 5, 2007 Share Posted June 5, 2007 Welcome to the site, I think you'll find it a wonderful place to come for comfort and information. Do you have a treatment plant yet? We (I'm the caregiver for my mother) are from Pittsburgh also. Are your doctors from UPMC? Quote Link to comment Share on other sites More sharing options...
trish2418 Posted June 5, 2007 Share Posted June 5, 2007 Welcome, Joann. You'll find lots of hope, encouragement and knowledge here. Good luck and keep us posted as you continue through treatment. Trish Quote Link to comment Share on other sites More sharing options...
beatlemike Posted June 5, 2007 Share Posted June 5, 2007 Welcome Joanne, i hope and pray the very best for you.I hope you get as much support from here as I have. Quote Link to comment Share on other sites More sharing options...
recce101 Posted June 5, 2007 Share Posted June 5, 2007 Hi, Joann, and welcome to the LCSC! Even though you're considered Stage IV because of the spine mets, it sounds to me like you just barely qualified for that honor and there will be a number of potentially very helpful treatments available to you. When you get more information such as specific cell type (adenocarcinoma, etc.) and treatment plan (radiation if any, plus names of the chemo agents), a good place to post it would be in a chronological profile (symptoms, diagnoses, treatments, side effects, test results) like you see at the bottom of our messages. Use the "My Profile" link at the top, scroll down to "Signature," enter/update your information, and ensure "Always attach my signature" is marked "Yes." Will save you lots of time in the long run and help you get more and better answers to any questions you may have. By the way, some of us old guys have a REALLY hard time reading messages where every word is in capital letters. I've heard people object to all-caps because they say it's like SHOUTING, but that part doesn't bother me. I simply find it hard to read and tend to avoid posts and profiles in all-caps if I'm tired or pressed for time, which seems to be rather often these days. So you're in Pittsburgh! I love your city and drove up there every chance I got during my 3 years as an Air Force ROTC instructor at West Virginia University (Morgantown) a long time ago. That first view of the city coming out of the Fort Pitt Tunnel is breathtaking, to say the least! Best wishes and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
terriep Posted June 5, 2007 Share Posted June 5, 2007 Hi, Joanne - I am from the Pittsburgh area as well. North of Pgh. actually. Welcome - and pm me anytime if you want to! Praying for all the best for you, Quote Link to comment Share on other sites More sharing options...
laban Posted June 5, 2007 Share Posted June 5, 2007 Welcome Joann Quote Link to comment Share on other sites More sharing options...
Shelley (MLC) Posted June 5, 2007 Share Posted June 5, 2007 Hi Joann, welcome to the boards. Sorry about your news but you have found a great source of support and information. Please keep us updated as you and your Dr. come up with a treatment plan. There are many people here that will be able to answer your questions and help guide you along this new road. Shelley Quote Link to comment Share on other sites More sharing options...
Maryanne Posted June 5, 2007 Share Posted June 5, 2007 Welcome here Joann, So sorry you had to find us, but you will find we are the best support family. We are here for you if you need advice, prayers, questions or if you just want to vent. We have walked in your shoes an we know how scared and unsure you are feeling. Please know that there are so many new treatments out there that if one does not work they will try another. Also please know the stage IV is not a death sentence, there are many here who have beaten the odds and its been years. Keep a positive attitude that is half the battle right there. You MUST fight this beast. So put on those boxing gloves and start slugging away. We are in your corner routing you on! Keep us in the loop and up to date on your prognosis. We are here for you 24/7. Maryanne Quote Link to comment Share on other sites More sharing options...
fillise Posted June 5, 2007 Share Posted June 5, 2007 Joann, Welcome to our corner of the internet! It sounds like you have a very treatable disease so please be sure to ask any questions and let us know how you are doing. Susan Quote Link to comment Share on other sites More sharing options...
Wendy Posted June 5, 2007 Share Posted June 5, 2007 Welcome! Wendy Quote Link to comment Share on other sites More sharing options...
ztweb Posted June 6, 2007 Share Posted June 6, 2007 Joann, Welcome to the boards. I am so sorry that you needed to find us, but I am so glad that you have. Keep us posted, and hopefully we will be able to help. Stay strong! Blessings, Jen Quote Link to comment Share on other sites More sharing options...
joanna1022 Posted June 6, 2007 Author Share Posted June 6, 2007 Thanks for all of you input already I feel a sense of warmth. I started on carbo/taxel June 1 and a clinical trial verdale every 3 weeks and the verdale on mondays and fridays it an injection into your IV. Had some nausea weakness after the verdale buth other than that oky. not sure how many treatments I will receive . No radiation I guess my oncolgist is just hoping the cehemo will work for now. I have a 14 year old son Who is a severe hemophliac so for the past 14 years we werew in out of hospitals withhim but he is doing great now gives himseelf his own meds started taht in aug 2006. Snow its my turn I guess oh well this a reason for everything Gods ways are not my ways. But I will praise him anyway hugs prayers joann Quote Link to comment Share on other sites More sharing options...
recce101 Posted June 6, 2007 Share Posted June 6, 2007 Joann: It's great to hear that your son is doing so well. You've certainly had your plate full for many years. I'm quite familiar with the taxol/carboplatin combination as I was on that every 3 weeks October thru January -- the profile attached to my previous post (above) goes into some detail on my side effects, but overall I tolerated it pretty well and the bad guys have shrunk. My chemo was combined with avastin, which I'm still on, now as a single-agent therapy, also every 3 weeks. My cell type is adenocarcinoma (non-small cell), for which the taxol/carbo/avastin combination followed by avastin alone has become a fairly standard treatment. I don't know anything about verdale, and couldn't find reference to it on Google (except as a variety of olive) or at all on Dr. West's site at onctalk.com. Maybe it's better known under a different name? Good luck on the clinical trial, and please keep us posted as your journey unfolds. Aloha, Ned Quote Link to comment Share on other sites More sharing options...
Gail10 Posted June 7, 2007 Share Posted June 7, 2007 Hi Joanna Just to say welcome. I am new here too. You will find a great deal of support and help here. Keep us informed Gail10 Quote Link to comment Share on other sites More sharing options...
Andrea Posted June 7, 2007 Share Posted June 7, 2007 Welcome. Sorry you had to find us. Keep us updated on how you are doing. You will find lots of support here! Quote Link to comment Share on other sites More sharing options...
Lady Salt Posted June 7, 2007 Share Posted June 7, 2007 Hi and welcome! Quote Link to comment Share on other sites More sharing options...
SherryNeedsToLaugh Posted June 7, 2007 Share Posted June 7, 2007 Welcome Joann, I also have a teenager who is bipolar to deal with and now she is my caregiver... Life goes on. You seem to have the right attitude and take life as it is. I have stage 3b with mets to my spine and have had radiation. It did do some good as it shrunk alot of the junk. Maybe you should talk to your onc about it or get a second op as it never hurts to know more and get the best treatment as you can. Remember we are fighters and will never give up. My attitude is that I am just waiting on the cure so they can give me the shot and I will live my life like it use to be one day. Ok so I can never go back but it will be better one day soon. Keep us posted on how you are doing. Sherry Quote Link to comment Share on other sites More sharing options...
alexan Posted June 18, 2007 Share Posted June 18, 2007 Hola Joann, bienvenida, sorry that you are here but...verybody is so nice. Best of luck, a lot of prayers hugs bucky Quote Link to comment Share on other sites More sharing options...
IAAM Posted June 22, 2007 Share Posted June 22, 2007 This site is great! Read many posts and am very glad to know that there are so many others with similar experiences. It's very encouraging to hear your stories and know that there are many survivors, many years after their diagnoses. I am very grateful to have huge support from my family and friends and can tell already that this site can also be a source of support. I can relate to many things... incision pain, hating bras and more. Right now I'm enjoying my 1st month Dr./test free in 1 and 1/2 yrs! I think I am, but what does NED mean?javascript:emoticon(':lol:') Thank you all, -E Quote Link to comment Share on other sites More sharing options...
Don M Posted June 23, 2007 Share Posted June 23, 2007 Hi Joann and welcome to the message board. Don M Quote Link to comment Share on other sites More sharing options...
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