ursol Posted June 11, 2009 Share Posted June 11, 2009 It has been three years since my diagnosis and I'm generally doing okay...Imagine that. For those of you that remember my first post here...I was in a complete panic and thought I was going to die in a month. Thanks to everyone who calmed me down with your responses and your continued support over these three years. I'm ready for when this thing comes back to fight on! As much as I respect God, I'm not going easy...I have alot to contribute still. Lilly Quote Link to comment Share on other sites More sharing options...
dahknee Posted June 11, 2009 Share Posted June 11, 2009 Hi Lilly, you are another amazing story here, everyone just keeps boosting my hopes even tho my prognosis has always been way above my initial expectations. I too thought I was going to die in 1 to 6 months, strange how we seem to have that perception with no information to go on. to quote your story, "Day 10 of Tarceva, started rash..It's on my chin, scalp, around nose. Also sores in my mouth. I'm using antibiotic and steroid creams for my face and a oncologic mouth rinse for my sores." I have just started carboplatin / alimta last week and I have the mouth sores, rashing and extreme tenderness in my nose and all over my face my hair even hurts, what there is of it, as well as diarrea and jittery and awake way to much. Did the steroid creams and mouth rinse help you? I'm in the docs everyday lately for B-12 shots and I'm on a ton of B complex vits as well. Anyway it is very nice to meet you and to see you brought ned with you. Keep it up, I'm in your corner. Donny Quote Link to comment Share on other sites More sharing options...
beatlemike Posted June 11, 2009 Share Posted June 11, 2009 Three years! thats wonderful Lilly. I also thought I would have 3 to 6 months to live when I was diagnosed. Im sure glad we were wrong. Quote Link to comment Share on other sites More sharing options...
LovesLife Posted June 11, 2009 Share Posted June 11, 2009 Lily - God respects you right back girl! Congratulations on 3 years!!! You are amazingly strong and continue to fight back at every turn - not only does He respect you , but I respect you and admire your tenacity. You will be here to contribute for many years to come...you inspire me and so many others. Hugs, Linda Quote Link to comment Share on other sites More sharing options...
carolhg Posted June 11, 2009 Share Posted June 11, 2009 Lilly, You (we) have come a mightly long way, and we have a mighty long way to go. Carol Quote Link to comment Share on other sites More sharing options...
chloesmom Posted June 11, 2009 Share Posted June 11, 2009 Congratulations Lily, you are awesome! Cindy Quote Link to comment Share on other sites More sharing options...
Patti B Posted June 11, 2009 Share Posted June 11, 2009 Congrats Lilly- I am so happy for you. I am close to three years and also believed it when they told me 12 months tops!!! Well......guess they don't know who they are messing with, huh????? Hoping and praying for MANY MANY more three years!!!! Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
fillise Posted June 11, 2009 Share Posted June 11, 2009 Congratulations Lilly! I have learned a lot from you during the two years I have been a member here. Thanks for sharing your story and most of all, thanks for fighting like h**l to beat this disease! Susan Quote Link to comment Share on other sites More sharing options...
Kasey Posted June 11, 2009 Share Posted June 11, 2009 Good for you, Lilly. I do remember when you first came here. You've come a long way, baby, as they say. Just keep on keeping on and let us all offer our hopes, prayers, and good wishes that things keep going in the right direction. I'm already starting to feel anxious over that PET coming up in August. In the meantime - celebrate how far you've come! Kasey Quote Link to comment Share on other sites More sharing options...
jstdzy Posted June 11, 2009 Share Posted June 11, 2009 Congratulations! Thanks for the good news! Dana Quote Link to comment Share on other sites More sharing options...
TracyD Posted June 11, 2009 Share Posted June 11, 2009 Wonderful news Lilly!!!! Quote Link to comment Share on other sites More sharing options...
jaminkw Posted June 11, 2009 Share Posted June 11, 2009 Lilly, I wasn't here for your early panic but I do recognize your picture. Congratulations on three years. I'm ready for when this thing comes back to fight on! I wish I'd cultivated that attitude during my year in remission. It would have made the eventual progression easier on my psyche. I'm working on it but it's a fine line to walk. Hope you don't ever have to take on that fight again but if you do, at least you are prepared. Judy in Key West Quote Link to comment Share on other sites More sharing options...
Wendy Posted June 11, 2009 Share Posted June 11, 2009 Great news Lilly! Wendy Quote Link to comment Share on other sites More sharing options...
SandraL Posted June 12, 2009 Share Posted June 12, 2009 Hi Lilly. It is so good to hear from you and to be able to celebrate your awesome news. Your attitude is so commendable. You go girl! Keep up the good work. Sandra Quote Link to comment Share on other sites More sharing options...
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