Jump to content

Recommended Posts

Hello, diagnosed 3/1/19.  Small cell limited stage ... dr says early and curable.  Completed 30 radiation appointments 2 times per day over 3 weeks.  Chemo next week is the start of third cycle.... new to public boards ... looking forward to becoming active...

Share this post


Link to post
Share on other sites

Hello, welcome.  Sorry to hear about your DX.  I was diagnosed a few days before that.  My treatment was surgery so far.  We do have this!   

Share this post


Link to post
Share on other sites

Welcome to the group.  Like Curt my diagnosis was around your time and I'm now recovering from my lobectomy.  You'll find a great group of folks here that can share first-hand experience.  While I have not had chemo, many others have and you'll also get great tips on working through the medical system and life in general (especially through the tough times).

And yes...I'm with you and Curt, "We Got This".

Lou

Share this post


Link to post
Share on other sites

Thanks for the responses.  Been a long journey over the past two months.  Two weekends in the hospital due to low  levels of blood counts and potential infection.  However not this weekend.  Tomorrow is more blood work in preparation for Tuesday which starts another chemo  round (Tuesday Wednesday and Thursday).  Had the 1/2 way CAT Scan on Friday and have an appointment with the oncologist on Tuesday before chemo to get the progresses report from the cat scan.  What I do know is small cell lower left lobe - involved two lymph noids in the same lung with no indication that it progressed beyond the lung.  Doctor indicated limited stage.   He said curable ....  Hope and pray he still has the same thoughts on Tuesday.  Had 30 rounds of radiation twice daily over three weeks.  Graduated from that.  Two more chemo rounds left.  

Would love to discuss with others and support others in the same situation.  We can not win this alone - but WE GOT THIS together.

Hope everyone had a great Mothers Day - I did get out to go to the movies with daughter, wife and future son in law.  Wedding is a little more than two months away.

Anyone else experience loss of voice due to the tumor laying on the nerve that runs back up to the voice box?  How long did it take for your voice to come back?  Did they discuss the possibility of ENT (Ear Nose Throat) doctor having to inject the vocal flap?  

Lost over 30 pounds due to the burning in the esophagus.  That appears to be getting better but not 100% yet.  Also noted today - two weeks after radiation was over that I started two feel burnt on the skin across the chest.  Used some cream on it today but not much better.

Thanks for this group!

God Bless...    Ken

 

 

Share this post


Link to post
Share on other sites

Good morning Bridget,

Cisplatin and Etoposide are the two chemo drugs currently.  The Etoposide three days and the Cisplatin on day one only.

Ken

Share this post


Link to post
Share on other sites

Hi Ken,

You are a trooper!  Twice daily radiation couldn't have been much fun, especially with the side effects.  But I am happy you made it through!  I look forward to hearing about your progress report from your doc, keeping my fingers crossed for positive news.

Take Care,

Steff

Share this post


Link to post
Share on other sites

Thank you Steff

blood work was good today so I am sure we are starting round three tomorrow.  Only elephant in the room is the cat scan results.... will share tomorrow and then I guess I have to move off this topic and find a new topic that will be more appropriate.

have a great day....

Ken

 

has anyone done any comparison on the costs of newlasta and it’s likes?

Share this post


Link to post
Share on other sites

Hi Ken,

Welcome to LCSC.  Just wanted to pop in and give you a warm hello.  I'm very glad your sclc is limited disease.  I'll pop round to see if you've posted an update somewhere else.

 

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


×
×
  • Create New...