We got this Posted May 11, 2019 Share Posted May 11, 2019 Hello, diagnosed 3/1/19. Small cell limited stage ... dr says early and curable. Completed 30 radiation appointments 2 times per day over 3 weeks. Chemo next week is the start of third cycle.... new to public boards ... looking forward to becoming active... Link to comment Share on other sites More sharing options...
Curt Posted May 12, 2019 Share Posted May 12, 2019 Hello, welcome. Sorry to hear about your DX. I was diagnosed a few days before that. My treatment was surgery so far. We do have this! Link to comment Share on other sites More sharing options...
LouT Posted May 12, 2019 Share Posted May 12, 2019 Welcome to the group. Like Curt my diagnosis was around your time and I'm now recovering from my lobectomy. You'll find a great group of folks here that can share first-hand experience. While I have not had chemo, many others have and you'll also get great tips on working through the medical system and life in general (especially through the tough times). And yes...I'm with you and Curt, "We Got This". Lou Link to comment Share on other sites More sharing options...
Rower Michelle Posted May 12, 2019 Share Posted May 12, 2019 Hello and Welcome! You’ve landed in the right place! Your spirit is so inspiring! Go get ‘em. Let us know how we can help you. Michelle Link to comment Share on other sites More sharing options...
We got this Posted May 12, 2019 Author Share Posted May 12, 2019 Thanks for the responses. Been a long journey over the past two months. Two weekends in the hospital due to low levels of blood counts and potential infection. However not this weekend. Tomorrow is more blood work in preparation for Tuesday which starts another chemo round (Tuesday Wednesday and Thursday). Had the 1/2 way CAT Scan on Friday and have an appointment with the oncologist on Tuesday before chemo to get the progresses report from the cat scan. What I do know is small cell lower left lobe - involved two lymph noids in the same lung with no indication that it progressed beyond the lung. Doctor indicated limited stage. He said curable .... Hope and pray he still has the same thoughts on Tuesday. Had 30 rounds of radiation twice daily over three weeks. Graduated from that. Two more chemo rounds left. Would love to discuss with others and support others in the same situation. We can not win this alone - but WE GOT THIS together. Hope everyone had a great Mothers Day - I did get out to go to the movies with daughter, wife and future son in law. Wedding is a little more than two months away. Anyone else experience loss of voice due to the tumor laying on the nerve that runs back up to the voice box? How long did it take for your voice to come back? Did they discuss the possibility of ENT (Ear Nose Throat) doctor having to inject the vocal flap? Lost over 30 pounds due to the burning in the esophagus. That appears to be getting better but not 100% yet. Also noted today - two weeks after radiation was over that I started two feel burnt on the skin across the chest. Used some cream on it today but not much better. Thanks for this group! God Bless... Ken Link to comment Share on other sites More sharing options...
BridgetO Posted May 13, 2019 Share Posted May 13, 2019 Hi Ken and welcome. You've been through a lot in a short time with your treatment. May I aske what chemo you're on? Hang in there! Bridget O Link to comment Share on other sites More sharing options...
We got this Posted May 13, 2019 Author Share Posted May 13, 2019 Good morning Bridget, Cisplatin and Etoposide are the two chemo drugs currently. The Etoposide three days and the Cisplatin on day one only. Ken Link to comment Share on other sites More sharing options...
Steff Posted May 13, 2019 Share Posted May 13, 2019 Hi Ken, You are a trooper! Twice daily radiation couldn't have been much fun, especially with the side effects. But I am happy you made it through! I look forward to hearing about your progress report from your doc, keeping my fingers crossed for positive news. Take Care, Steff Link to comment Share on other sites More sharing options...
We got this Posted May 13, 2019 Author Share Posted May 13, 2019 Thank you Steff blood work was good today so I am sure we are starting round three tomorrow. Only elephant in the room is the cat scan results.... will share tomorrow and then I guess I have to move off this topic and find a new topic that will be more appropriate. have a great day.... Ken has anyone done any comparison on the costs of newlasta and it’s likes? Link to comment Share on other sites More sharing options...
Deb514 Posted June 5, 2019 Share Posted June 5, 2019 Just wanted to say hello. I too was diagnosed with limited small cell on March 12. It has been a long journey. 35 radiation treatment's and 4 rounds of chemo. MRI head last Monday and if no problems will start PCI radiation next week. I had the same chemo as you are and it made me so sick and unable to function for days later. My skin is burned to from the radiation and swallowing is still hard. I too have lost over 30 pounds. It's been very hard but the fight is worth it. My Doc says 100 percent remission. Having pet scan the 17th. I truly think it's gone. My tumor right lung was 7.5cm x 5cm and involved lymph nodes but only on the right side. Stay positive, nice to hear your story. Sounds similar to mine. Link to comment Share on other sites More sharing options...
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